Hi, yes I know how you feel it's really difficult. Maybe you could try taking your Amitriptyline earlier in the evening to see if it makes any difference the next day? Sleep or lack of is a massive issue for most people unfortunately x
No, it's hard for people to understand fatigue is not just tiredness... And going to bed earlier, getting a few hours extra sleep doesn't make any difference.
I use my hubby as an example. He has always been great at trying to understand my fibro symptoms, but after he had a stroke in 2015 and started suffering fatigue himself - he only realised just how debilitating it was - and how you could go from doing something to completely wiped out in no time at all.
I have to say that I still feel exhausted every morning with or without the amitriptyline. It's a symptom of fibro.... But I don't have the overwhelming grogginess of the drug and I have "slept" more.I find that if I can get a set routine of bed by 10, up at 7.30 and a shower and off, then I can avoid the worst of the symptoms.
I worked as Student Support Assistant for students with disabilities. I was training to be a Teacher. During the afternoon we would have a sensory session with soft lighting, music etc. It was horrendous for me as I constantly fell asleep. Then I would wake and feel absolutely rubbish for the rest of the afternoon. I have left work now and am concentrating on my health but I miss working so much. The only advice I have, is speak to your employer about any adjustments that could be made to help you. For example more frequent short breaks. Fatigue can be completely overwhelming and debilitating.
I’m so sorry you had to quit working and I know you’ll be missing it yes, I love my job as the little ones are like little sponges and a pleasure to teach.
I would be better just working until lunchtime but it’s just not possible.
Thank you for replying to me and I hope you continue to put your health first.
Depending on what dosage you are on could be there too strong speak to your gp and see what they suggest or try and play for time and give them time .Good luck
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