Hi everyone. I've not been on here for a long time. I'm at my worst ever at the mo and just feel so down and low. The pains are constant, I cant sleep, sleepwalking is back again. I know this whole crappy situation isn't helping anyone right now and we just have to learn to live with it but why should we, why is nobody looking into how to make us better eh, here's some drugs (that probably won't work) have a good life,,,,,cause that's how I feel. Any other illness is looked after, ie, patients get seen on a regular basis for check ups etc but us with Fibro dont get any of that and it really riles me. Sorry for the rant, just lost myself there. Anyway what I wanted to say........so back in August I had my first Lidocaine and Ketamine infusion. 10 mins after the initial injection I felt like I was floating, i had no pain and i fell asleep,,,,,however an hour into it I woke up crying in agony, my nurse called the consultant who suggested giving me another medication on top and I persisted with the rest of the infusion. After recovery consultant came to see me and he said he never had a patient suffer like that and did I want to try again. I said I would give it another shot just to see what happens. So the next one was in December and this was worse than the first, even more extra drugs, consultant decided to stop infusion halfway through. After recovery he said it was pointless pumping me full of all these drugs if they are not working. He thinks there may be something else wrong and has suggested to my doc that I need to see a Neurologist. I have been trying to get through to my gp but with this pandemic it's just mad busy so I emailed them this morning in the hope that someone sees it and hopefully I won't have to wait too long for an appointment.
I'm sending gentle hugs and love to you all xxx
New gal ..my first post
Hello.
feel so useless
Lidocaine infusion 
