Mess: It’s my birthday today. I’ve been... - Fibromyalgia Acti...

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vmagpie profile image
22 Replies

It’s my birthday today. I’ve been a total mess. I also suffer with a personality disorder along with fibromyalgia. I thought my mental health was making me super emotional (sad)

But I came on my period for the first time in nearly 4 years today. I suffered badly with my hormones so I had the marina coil and it’s helped a lot.

Can I ask the ladies of the group, do you suffer with hormone troubles and do you think it’s related to fibromyalgia? I used to think a lot of my undiagnosed fibro issues were a bad form of pms.

I just feel all round sensitive to life and everything it throws at me and I’m struggling to know what’s what and what to do. I just feel shit about myself mentally and physically and emotionally... but I’m so fortunate in life with friends and family and a roof over my head and food in my belly.. I just want to feel grateful but I just feel worn out and hurt

This has turned into a rambling mess.

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vmagpie
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22 Replies
Jooles1971 profile image
Jooles1971

Yes I have personality disorder aswell. Super sensitive to everything . And I have suffered a lot of my life whilst taking hormones as they make depressed

vmagpie profile image
vmagpie in reply to Jooles1971

I’ve always thought it’s all connected or all the same thing. Sorry you struggle in the same way.

Jooles1971 profile image
Jooles1971 in reply to vmagpie

Never thought it was all connected to hormones ur probs right xxxx

vmagpie profile image
vmagpie in reply to Jooles1971

What I mean is each issue impacts the other, but I always assumed it was one issue making me unwell x

vmagpie profile image
vmagpie

Thank you so much 😊

AllthatGlitters profile image
AllthatGlitters

Happy birthday 🎂

Lovecavatese profile image
Lovecavatese

Happy Birthday, you're here and alive,! 🥰💃🌹🎉

Cape_Cod_Sharon profile image
Cape_Cod_Sharon

Happy birthday

vmagpie profile image
vmagpie

Thank you for the birthday wishes guys x

Boyboy15 profile image
Boyboy15

I take the mini pill continuously & don’t have a period.I haven’t for over a year.

My friend who has this also swears by HRT!

But my doctor won’t put me on it yet as I’m to young still.

When I had a period it was game over for me!!!

The pain was unbearable & I would be bed ridden.

I agree that your period definitely contributes towards the pain.

And I could not go through that again!

Hope you had a good birthday 🥳 xx

penny profile image
penny in reply to Boyboy15

I had an issue with periods which would have me on my knees with pain - turned out I had a large ovarian cyst with endometriosis in the cyst. That was a long time ago. The cyst was removed which then caused a lot of problems with the scar distorting my body. (This was before I trained in Scarwork.). There’s always a knock-on.

“If you know not that you know not you are a fool. If you know that you know not you are a wise man.”

Happy Birthday.

vmagpie profile image
vmagpie in reply to penny

Thanks penny. I ended up with endometriosis in my csection scar and this still gives me pain even after operation to remove it. That’s awful pain isn’t it

penny profile image
penny in reply to vmagpie

Yes, it is. I recall being in bed with the pain but not able to move to reach any painkillers. I would literally drop to my knees when I had a spasm. My GP just gave me strong painkillers until I went back and said that I thought something wasn’t right. Mercifully the endometriosis was removed when I had to cyst taken out. Have you had any Scarwork done on your scar? It can really help. Good luck.

vmagpie profile image
vmagpie in reply to penny

No I haven’t and even nearly 3 years later it gets sore or painful at certain times. What does scar work entail?

penny profile image
penny in reply to vmagpie

Scarwork is a treatment ‘invented’ by Sharon Wheeler in Seattle. It is very gentle and aims to re-integrate scar tissue. If you search on either ‘Scar work, Sharon Wheeler’ or Jan Trewartha, Scar Work’ you should be able to find out a lot more about it.

vmagpie profile image
vmagpie in reply to penny

Thanks I’ll look into that x

DAWN104 profile image
DAWN104

Happy birthday

lioncub profile image
lioncub

I had to take time off work every time I had my period as I just needed to sleep. I felt exhausted and the stomach cramps were so bad. Iron levels were normal so my Dr told me to take the pill for 3-4 months at a time and then have a break. This helped and over time these symptoms stopped but I still continue to take the pill this way. I think our bodies are hypersensitive and overreact which is why we need to pamper them and be kind to ourselves. You might find the words of Jeff Foster helpful. I do when I get frustrated with myself for not just being grateful for having so much compared to others.

Pbyllis profile image
Pbyllis

Happy birthday 🌷

vmagpie profile image
vmagpie in reply to Pbyllis

Thank you x

I feel for you. We are expected to be happy on birthdays, but thats not always possible! Especially in this climate. Life is almost non existent and so difficult to cope with.I have ADHD and body dysmorphia. I suffer from anxiety and stress. I'm single with 2 sons who both have autism and adhd. I'm struggling with Fibromyalgia etc. So life is very hard! I'm already dreading my birthday end of November. I will turn 50 and the thought of it makes me depressed & tearful. I didn't relish 30 or 40 either and sulked and refused to go out. Nowadays I don't bother anyway.I didn't have a period for a year in 2018 and the doc said it was the beginning of menopause. But a blood test showed otherwise. So they blamed my weight. I'm a size 16, so do me a favour! Then stress. No investigation or interest. 'Just one of them things dear'. They have returned since. I too had a coil years ago, the Mirena gave me acne and mood swings so I had the copper coil instead with no issues. Mirena doesn't suit everyone.

Unfortunately having food to eat doesn't mean you can't be struggling and 'should be grateful'. Life doesn't work like that. Go back to the GP. Be honest and dramatic! It sometimes wakes them up I think.

Good luck, big hugs and Happy Birthday x

vmagpie profile image
vmagpie in reply to

Thank you. I really hope you find this year easier.

It’s hard when suddenly everyone is finding life hard.. as the things we’ve always struggled with seem to blend in with that ‘everyone is finding things hard’ in the current climate.

I considered the copper coil but was told it could make my already heavy periods heavier.

Wish I had steered clear of hormonal contraceptives altogether but when you’re a teen suffering you’ll take what’s offered when promised it will help relieve things.

Wishing you good health and happiness

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