Joint/bone pains

[healthkick1973]

Hi guys,

I’ve been having the worst pains in my knees primarily but ankles, elbows and now my tailbone is really sore too. When I feel my tailbone there is a hard mass there that’s painful to touch and all my joints snap and crack. I’m only 21 and as well as my other symptoms like migraines and abdominal/back pain I’m thinking it could be Fibro.

Has anyone else has similar pains in there joints and/or tailbone? I was diagnosed with Endometriosis 2018 so it’s easy for my consultants to always point to that (frustrating!!!)

[Fibroska]

Hi Healthkick, so sorry to hear that you are in so much pain right now. I couldn't say for sure that what you are experiencing is Fibro. you'd really need to be assessed, ask your GP for a referral to a Rheumatologist.

I have had Hyper Mobility Syndrome for ever and was diagnosed with Fibromyalgia in 2018, I'm afraid I have little knowledge and less experience with Endometriosis.

Heat and bathing usually help ease the pain in my joints, as well as the medication I am on that is. Pacing your activities, especially during a flare up is extremely important, keeping your body mobile and staying as positive as you can; is as equally important.

I've been having horrendous flare ups these past 6-7 weeks, 2-3 alright days in the week, I've been putting it down to the uncontrollable stress we are all under right now; like the life situation I am hoping that it is temporary. Could you be experiencing an extreme flare up.

With regards to the painful mass at your tail bone, I would get back to your GP about that, remember your GP is still available to you, ours are doing phone consultations; if already discussed with your GP, then I'd be asking for a referral to have it explored further(peace of mind).

I am sure you will gain some wonderful advice from the wonderful people on here. I really just wanted to say Hello! and let you know you are not alone.

I wish you all the very best, remember and be kind to yourself.

Stay safe, keep well and be strong.

X

[healthkick1973 in reply to Fibroska]

Thanks for that detailed reply I really appreciate it! I’ve spoken to my doctor about possible FM and he’s referring me to someone so hopefully they’re a rheumatologist! If you don’t mind me asking, what medication is it you’re on for the pain in your joints? Baths are a saviour for Endo so they’re doubling up for all my other aches and pains at the moment too.

I’m sorry to hear you’ve been having bad flare ups hun, I’d agree with the stress theory all I can suggest is avoid the news and any other negative sources and (if the pain/fatigue isn’t too bad) try doing some things you enjoy to feel a bit of normality again. Also message me if you ever need to vent or just have a chat ❤️

[Cat00]

All of those symptoms sound very familiar to me.

I have chronic migraines, IBS, fibro and hypermobility, anxiety and insomnia. I've been like this most of my life but half of the diagnoses came in the last 20 years. I wouldn't underestimate the impact of hypermobility, I always had. Before lock down I was doing about 8 hours high impact exercise a week and the amount of extra energy I would need bc of hypermobility compared to normal people is depressing, plus ive broken my ankle twice and my wrist twice. My ankles, elbows and lower back are s particular problem, that and very tight hamstrings. Extreme doms is always a problem too but I'd rather be fit and in pain than just in pain.

Obviously you need to go to a gp though and have everything checked so they can rule out other disorders. Good luck.

[healthkick1973 in reply to Cat00]

Thanks Cat I’ve got through to the doctor who’s apparently referring me to a “specialist” in what I’m not too sure but a start nonetheless! What tests/scans etc did you have to finally diagnose hypermobility and FM hun? Xx

[Cat00 in reply to healthkick1973]

Well diagnosis was me googling everything on earth finding FM printing it out and taking it to the Gp and saying I think I have this! This was after years and years of having problems including the breaks and the doctors not helping at all. The Gp confirmed and after another 10 years of no help at all referred my to a Rheumatologist who also confirmed just by bending limbs etc that I had Fibro and gave me some websites to look at. I was never given any scans except for years later when being referred to a pain clinic, they scanned my neck and said I had "severe muscle spasm down one side" which they said was probably from years of migraine pain. The gave me a load of injections down my spine which they said were 50/50 chance of helping, unfortunately they didn't. I've tried accupuncture a few times but it had no effect either. Physio is where you end up frequently for hypermobility and get given masses of different exercises to do daily.

[Ninapod]

I had severe problems with my tailbone 2 years ago before I became really ill and was diagnosed with FM. It got to the point that I could not sit on any hard chair and only for about 10 minutes on a soft chair. I bought a cushion with a hole in it which did ease the pain. Eventually I visited a chiropractor and also had acupuncture which finally sorted out the problem.

[healthkick1973 in reply to Ninapod]

I’m sorry to hear you’ve suffered in pain for so long hun I’m glad things are a little better now! That’s pretty much exactly what I go through as well so I’ll have to try acupuncture xx