Pregabalin

[Ladyatlunch]

Hi folks, sorry this has likely been asked a million times. Is there a standard treatment dose of Pregabalin or does it differ with each individual?

Hope everyone is safe and coping ok 👌

[Ladyatlunch]

Thank you. I’m currently on 300mg but it has just been increased. I will see how this goes. Appreciated thanks x

[Ladyatlunch]

I haven’t had a formal diagnosis yet but the rheum consultant started me on that to see how I’d go. She says it’s likely connective tissue disease. (I attend with autoimmune conditions already). The pain across my chest is excruciating at times. Also nerve type pain in my legs, mostly at night. The other muscles pain it tolerable. Hope you and the family are managing through this difficult time and thanks for taking the time to reply 😃

[Ladyatlunch]

I will keep you posted on progress

[rosewine]

I was started very low and then slowly built up until I reached a level where the side effects outweighed the benefits and then dropped it a bit so it was more tolerable. Some people can tolerate a higher dose than others, sometimes because of a different metabolism or sometimes it clashes more with medication they are already on.x

[Ladyatlunch in reply to rosewine]

Thank you for sharing your experience. So far no side effects but it’s not quite getting on top of the pain x

[rosewine in reply to Ladyatlunch]

It certainly helped with the shooting, burning pains I was getting constantly. I still get them but nothing as bad as before but I have found they didn't really help my muscular pain but any port in a storm as they say. I wish they could wave a magic wand and make it all go away it is like a waking nightmare some days isn't it.

[Bakery40]

Hiya I'm on 75mg twice a day. To be honest I'm worried to go higher.

I even started to reduce this one , after about a week my seizures went out of control ( Pregabalin was prescribed for fybromialgia , im taking meds for epilepsy) . I'm not sure what the heck has happened but I'm not a happy bunny.

Pain easy up a bit in spring/ summer but goes bad in autumn and winter.

I'm going through flare up now because I was showing of , my stupidity doing some cardio exercise for 20minutes.

All I take is paracetamol and bath with thyme salt . Pain will bring up my seizures up - yet again.

So take it easy on Pregabalin as your body gets use to it and won't work anymore. Try and use some alternative medicine - heat rub, bath and do on.

All the best. 😊👍

[Ladyatlunch in reply to Bakery40]

Thank you. That’s some interesting points you make. It’s a shame you aren’t getting along with the pregabalin. I will try the Thyme salt as well. Hope things improve for you x

[Sandcastle27]

Hi, like you I have fibro, plus connective tissue disorder and also sjogrens syndrome. I take 150 of pregabalin at night, have for about 7 years now. It's enough to stop the stabbing nerve pain so I can sleep. My arms also twitch quite badly if I don't take it. Other than that, it doesn't do much I'm afraid. I take nothing else for pain relief. I meditate which helps a lot, and even though it's difficult, I keep active. It helps. Once you let it make you lie down, it's hard to get back up again. If you can change your mindset about the pain, and learn to coexist with it, it makes life a little easier. Sounds very new age I know, but honestly, a positive attitude really does make a difference

[Ladyatlunch in reply to Sandcastle27]

Yes I’m absolutely with you on that one. A positive mind is the most helpful thing. The Pregabalin is not doing for the pain over my chest wall. It does help with jumpy legs and nerve type pain for me. Thank you.