I think I need to talk ....

[Edenstar]

I think I need to talk to someone..... I fight this everyday... but right now I feel as if I’m losing the fight.

I’m trying I really am but maybe it’s not enough sorry for the depressing topic but I really needed to tell someone xx

[desquinn Partner Volunteer FMAUK Trustee]

our helpline is there if you need a chat about fibro but it sounds like a chat with the likes of mind or samaritans may be a good place to go even just for some breathing space and the chance to talk about things. Cannot rate them high enough.

[Hidden]

Hi there depression and anxiety is awful and comes hand in hand with fibromyalgia sleep is so important are you sleeping ?your not alone were all on here because at times we all feel how your feeling it will pass hunny keep strong are u on a pain management xxx?

[Edenstar in reply to Hidden]

I’m on basic pain management until I’ve been to the fibro clinic as it’s taken ages to get an appointment, no I’m barely sleeping now at all x

[Hidden in reply to Edenstar]

Your anxiety will be sky hight especially if you don't sleep could and would u ask doc for sleeping tablets I take zopiclone when the insomnia is so bad because i become in such a state it's awful if it's not the anxiety it's the depression and pain on top I have 3 girls it's hard mate but you no what we gotta keep fighting xx

[Hidden in reply to Hidden]

If u ever wanna chat I'm Lauren x

[FRreedman]

Phone your GP now, and tell them how you feel. If they can't see you or advise you , then you can phone the Samaritans (24 hours) or even call 999. Please let us know you are ok, and keep yourself well. Good luck, we're all routing for you.

[Edenstar in reply to FRreedman]

Thankyou xx

[rosewine]

Do get some help as you sound very low. Don't feel embarrassed as if we are honest we have all been there and sometimes it is so hard to get out of this low on your own. Do speak to the Samaritans and ring your GP and ask for an emergency appointment asap. Sometimes a course of counselling can help.

Come as often as you need as there is normally someone around to talk to.x

[Edenstar]

Thankyou xx

[Edenstar]

Thankyou to all the reply’s i think I will call my doctor I feel so stupid and I’m sorry for all of this xx

[desquinn Partner Volunteer FMAUK Trustee in reply to Edenstar]

do not feel silly. You would not feel silly with a sprained wrist. Its just something your body is doing and you need some help and support. It would be silly if you ignored it but you have not.

All the best.

[Hidden in reply to Edenstar]

Bless you, why do you feel silly? Not silly atall how can it be when talking on here has helped you make that decision to call your GP? I hope you get to see them soon and that they can help lift you up a little please keep in touch and let us know how you're going? Sending much love xx

[bobbybobb]

Lack of sleep is very bad for us. When you're struggling so much it can change your thought process, so you're not actually thinking straight anymore. This can cause high anxiety and stress and feelings you might not be use to. It will make everything very difficult to cope with. Get and urgent appointment with your GP or ring the other organisations that are available that have been suggested. Don't suffer. Get help. xx

[worried4me5]

Dear Edenstar,

I think you have been really brave to take that first step to reach out and let people know how you're feeling and to get help and support.

There are lots of self-help organisations out there which your GP should know about in your area. I am currently using one of those services and it gives me a reason to get out and focus on what I want for my future.

This group has been amazing, full of friendly and funny people, who despite their pain, manage to support each other and I've learned so much just from reading others' posts.

Best wishes,

Ang x

[Painny in reply to worried4me5]

Me too I see a couple of support groups face to face, I do not want to take their presence lightly, their existence make a huge difference. FM Action UK has also support groups x

[Edenstar in reply to Painny]

I’ve never been to a support group, I don’t even know if there are any around here xxx

[Edenstar in reply to worried4me5]

Thankyou xx I really don’t feel brave if anything I feel as if I’ve failed xx but I’ve spoken to my gp and she is referring me for councilling xxx

[worried4me5 in reply to Edenstar]

Hi,

I'm pleased that you decided to take that step. No-one on here would say you're a failure. It is brave to ask for help and a positive thing to do rather than take a more detrimental route.

We're all here to support where we can and you've definitely come to the right place, no shame in it at all x

[Painny]

If you speak to FM Action UK they can send you a list of Fibro groups, then you can see if you have anyone close to your area. I sometimes travel 3 hours to go to that group, that’s why I don’t see them regularly. Also your GP surgery may know about some groups in your local area. Hope you find one as I do know it makes a difference. We are also here for you when you need it. With this weather I had a difficult flare up today but I know I will be better tomorrow.

💌❣️

[Hidden]

Hi

I really feel for you. It's so hard. Have you managed to get a GP appointment? Talking to your GP might help, he should know of organisations that could help you. Please do not feel stupid, you are not stupid you are asking for help. I've had councilling and it really helped me emotionally. I have one hour or less sleep per night due to my many conditions, being sleep deprived is really hard. Pm me anytime. Love and hugs Lynne xxxx

[Edenstar in reply to Hidden]

Thankyou babes xxx yes I did I managed to get a call appointment with her and she will be referring me for councilling and hopefully between that and when I get my fibro clinic appointment I’m hoping my brain might settle a little xxx

[Hidden in reply to Edenstar]

There you go then! You took the decision to talk to everyone on here which helped you make the decision to call the doctor and things are already looking up for you well done! xx

[Hidden]

Hi

I do hope your appointments come soon. Take care Lynne

[Edenstar in reply to Hidden]

Thankyou xx you too feel free to message me if you fancy a chat xx

[Hidden]

Thank you much for your kind words. Love and hugs Lynne xxxx

[Mackembabe]

Do not feel bad about putting this on here, we all need help at some time or other and that is what this site is for, so we can talk openly and get the help we need, please go and see your Dr and explain to him how you are and hopeful he will give you something to help you sleep, we all no if you don't sleep our problems and pain multiply Love & Hugs Xx

[Midori]

Dear Edenstar,

I think we all go into depression with the diagnosis of Fibro. I certainly did, and was for several years on various antidepressants. I had to shake myself and tell myself off, then find myself a new mindset.

I decided to treat the Fibro as the Enemy. I fight it each day, not allowing myself to sink into self pity. I refuse to allow the Fibro to steal any more of my abilities; it has already taken Rock climbing, archery, fencing, horse riding and ballroom dancing. No More!

I make myself walk every day, either with a rollator or sticks. I do have a wheelchair, but I only use it if I'm going to have a long day or am feeling particularly painful or achey.

Scared myself a few weeks ago when I had a fall and twisted my back badly, the back spasms were excruciating, but they have subsided over time, and I can now stand upright again. Worrying, though.

I find stress is the worst thing for my Fibro. It also puts my blood pressure up, resulting in headaches.

I hope this is of some help.

Cheers, Midori

[Edenstar in reply to Midori]

It was helpful Thankyou 😘

[Tootiepie]

Please please phone for a Drs appointment as an emergency.

I am sure that most of the people on this site have felt as you are at one point or another. Please do not think that you are alone. Things will get better. Your Dr needs to be aware of how you are feeling, you need support - maybe an appointment with a councillor to talk through your darker times.

Pain support is so important, if you are not in the right meds don’t give up. I went through several variations and have finally found one that seems to reduce the symptoms - not cure, but certainly takes the ‘edge’ off. It took time and patience but I finally got there. Also sleep is SO important.

Please let us know how you are. Take good care of yourself. Big Hug, TootiePie

[johnsmith]

Stop fighting. Fighting takes up energy. Your brain needs a rest. Rest and sleep is a good mood changer.

Many people say talking about a health disability problem is good. I find that for me it makes it worse. Low mood feeling suicidal is part of a chronic pain disability on occasion. 3 o clock on a Sunday morning is a time when no help is available. So it becomes a time when a most unpleasant emotion needs to ridden. It comes it will go. The trick is to have something of purpose that you need to accomplish. This helps you to endure what can be highly unendurable.

We feel in the body. The mind responds to the state of the body. There is something called fascia. Fascia is the bit which joins everything together. In fascia there are thousands of nerve endings which feed into the spine and then into the brain. Change the state of the fascia and you change how you think and respond to things.

There is a youtube video on walking meditation. Meditation changes the thinking and the walking changes the fascial state.

youtube.com/watch?v=_IFvabl...(Not working as expected?)

[johnsmith]

Thanks for the reply. You say: "I think that you need the correct attitude to l" It is a nice thought. I find that my attitude to the pain I feel is very variable. Out of all these variable attitudes I have no idea what is the right attitude.

You say: "I don’t agree with everything that you have said!" Good approach. Words can change in meaning from peer group to peer group depending on background experience. There is also the dreaded result that what works for one person at one particular point in time may not work for someone else at another point in time because an environmental variable has changed.

Which do you not agree on?

[johnsmith]

Thanks for the reply. Goes to show how difficult it is to craft words to give meaning that we want.

All the best.

[johnsmith]

Please take a Tramadol tablet. It will put a little bit of the drug in your system. This will ease the explosion of the withdrawal that is to come.

You must taper. Okay i accept you cannot taper by taking smaller doses. You can taper by reducing the days you take it. By taking a tablet you have not failed because you know you can do 3 days off 1 day on.

[johnsmith]

Thanks very relieved.