Family

I have been recently been diagnosed with Fibro but been suffering many years with it doctors kept saying it vitamin d but I kept pushing them till I got diagnosed with Fibro . I use to be achieve but find things difficult know tiredness and pain all the time ,I find things difficult to do the smallest of tasks but keep fighting it I won’t let it beat me .But like I was reading about people they see me as fit and healthy but don’t see the pain and conflict with my tiredness ,I have three grown up children living with me although my daughter helps they think I can carry on as normal do everyday things but don’t release I need help I am a very proud person ,always done things for my self and they look and me and they still carry on before I had my Fibro diagnosed ,similar thing my dad is 97 and has dementia and my siblings think I look ok they ask me help with things for dad I try to help but they don’t seem to understand how much pain I am in and how much it takes out of me but everyone still want more .sorry for moan I just had to get it off my chest .

[Danni636]

Hi stexta64, I have had the same issues recently, told I had low vit d and they told me to take supplements, yesterday I had a docs appt with another doctor that I havent seen before, went through all my symptoms and he said its highly likely I have fibro. Sent me for bloods to rule out a load of other stuff first but its likely to be that. I am really struggling with the tiredness side of it, some days I dont even know how I get through work. The thought of having to live like this for the rest of my life scares me. Totally understand your need to want to get stuff off your chest!!

[ShelleMc82]

Hey Hun I know what you mean it’s so hard when people don’t really understand how some days the easy of tasks can be so hard for us to do.. encourage them to read up about fibromyalgia to help them to better understand how to support you.. I had a booklet for my husband for him to read to help him understand how best to support me and that really helped him to be more thoughtful.. but you moan away don’t let it eat away at you that’s what we are here for if ever you need to vent or just a chat send me a message xx

[Hidden in reply to ShelleMc82]

Thank you it's great to know that there is support out there and people who can understand what we all go through from day to day .

[Gshaw]

We all feel like we are moaning dont we, when all we want is an ok I understand I totally get you. I feel like one big moaning person I give up now my family just dont understand I have a referral and hoping I get the diagnosis then maybe they will start to understand

[Hidden in reply to Gshaw]

This is why I joined this site not to have moan ok some times lol but to be heard and understand that most days is a struggle and talk to people who can help .And have laugh sometimes.

[Gshaw in reply to Hidden]

We can all moan together

[Hidden in reply to Gshaw]

Hi

Show your family this forum, it might just be what they my. Also, take a member of your family with you to your next appointment, ask your Dr to go through everything and how it is from day to day. Take care Lynne

[auntysue]

Relate to that, yes im superwoman, (according to my kids ) I guess they don't want to see us weak, doesn't make it any easier for us though, so rant away!😊

[Bakery40]

Hi stexta64 😊🤗 and sorry you feel this way but hopefully you find some tips here.

I know how you feel. Friends, family and sometimes even doctor's ( very rarely) say ' oh you look so lovely, so good and well rested ,you also lost some weight.🤯

I'm like ' thank you' but feel like telling them ' you don't have a clue how crappy I'm feeling, how much effort I had to put it to wash/dry my hair, put make up on and by the way the weight I lost is due to my recent stomach problems I had. '

When I finished my pain management program , on the last day the last 2hours was dedicated to family. My husband came - I asked him because he is great but I wanted him to understand pain.

Anyways they are very good - nurse, physio and psychologist. They will try and explain/answer what they can.

For my 10 and 8 year old kids I bought a Medikids book where the chronic pain is explained in a way the kids understand.

So this helped.

I'm not ashamed of my disability/ chronic pain condition, I did not ask for it. I don't think any of us did.

There should be more awareness, family support including children .

Big hug xx

[Hidden in reply to Bakery40]

Thank to you and everyone for there wonderful support on this site .It much appreciated.