Hiya, im afraid i dont know what to do to make it better either, but i know how you feel - i read about pacing and things like that but i dont get the opportunity to be able to do much of that, i rest when i can and get the odd nap when i can but im also at the point of not being able to wake and if im honest i think not even wanting to wake! Your not alone and lets hope someone has at least some tips! gentle hugs xxx
Same here, the only consolation is coming here as medical profession don’t know what to do with us
Pacing is key, I wish someone could shake me up and give the old brain back, the one I have now is selfish, childish and do not want to do anything. I went out for a few hours and I am just exhausted and hazy 😑
no its ok im not wanting any more diagnosis - i have enough already! Just agree with Painny on the desire for the old brain back and pacing - just miss the old me! xx
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