Hi! I am new here and i need your hel... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hi! I am new here and i need your help guys

Aida_RB profile image
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About one week ago i understood that what is wrong with me and i was shocked cause i have never imagined the stress and anxiety can do this to me, you know what i mean: having pain in all of the body all the time, being tired and sleepy all the time, having headache all the time.... and i became more deppressd than before.... now i even cant leave my bed and i am totally empty of any good energy in my body. I have read some stuff on line but none of them helps... my parents dont take it seriously and it makes me feel worse...if you have any idea for getting better please share it with me!

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Aida_RB
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Hi hun from Nurse Gladys Emanuel (still open all hours) can i ask if you have been diasgnosed with fibro? and what if any meds have you tried? Have you been offered any physio or Hydro?

Midori profile image
Midori

OK, if you have been diagnosed with Fibro, its possible you are suffering from an additional emotional shock, But you need to keep your doctor up to date on what is happening, not just assume you will never improve.

Depression is sneaky, its rather like having a gaslighting partner who puts you down all the time. Has your GP given you antidepressants? They can take 3weeks to a month before you notice a difference in your moods.

Laying in bed is not good for anyone. You will be losing muscle tone all the time you stay in bed, and the longer you stay there the more difficult it will be to get your fitness back. Yes, I know that sounds daft, fitness with Fibro? but it is true. One of our members here runs in Fun runs and is aiming for a half marathon soon, so fitness is possible.

Many of us have sunk into depression when diagnosed, me included; But I had responsibilities I couldn't escape; two children who needed care and attention. Yes, there are days I spent crying because I was in pain, or I couldn't afford the bills, and having to tell my children we couldn't go away for the weekend because the car was out of MOT or similar. I've had to walk them more than 2 miles to school on occasions.

I've never been able to take my kids abroad since my husband suicided (long story for another day), although we used to go with him to the USA on long trips whilst he was working out there. When he suicided, we went from pretty affluent to less than 10% of our earnings, at the opposite end of the earnings scale, and it was touch and go if we would become homeless on several occasions. But I managed, with forays into antidepressants at times, and while fighting the Fibro. It can be done.

Nowadays, some 25 years later, I'm still here, still fighting every day. I have decided that the Fibro is my enemy, and I have declared war on it. I am determined to keep all the abilities I haven't yet lost. OK, Walking is difficult, my sports are impossible (horseriding, rockclimbing, fencing and ballroom dancing are out of the question,) but I can still enjoy them from my armchair, and go to shows to watch my friends compete. keeps me in the loop. I crochet and knit (badly!), I draw and write, get on here and help others where I can. I can no longer drive, as my sight is failing.

My son is my carer now, he has made it clear that it is his turn to look after me, so he does most of the cooking, as I am dangerous around knives and sharp things. The Fibro fog can make for some hilarious moments.

I hope you will take this as encouragement, It is how it is intended, to show you there is life beyond a Fibro diagnosis, and it isn't all bad.

Cheers, Midori

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