Where to go for advice and help - Fibromyalgia Acti...

Fibromyalgia Action UK

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Where to go for advice and help

ShelWhitt profile image
4 Replies

77 yrs old. Had fibro for 35 yrs+ but only diagnosed 10 years ago. Also hypothyroid. Worked full time until I was 53. Never paid full stamp (for various reasons) but that's another story, but did pay married woman's stamp all those years, with contributions amounting to more than a friend paying full stamp but only working part time, obviously I wasn't aware of this at the time . Never had any benefits of any kind. Couldn't even get unemployment benefit. Did try once for some help but was told I was 100% fit, so no help, and wasn't aware you could appeal. No one told me anything or gave me any advice. Move on to 2017. After having a knee replacement in 2015 which didn't go well, hubby was diagnosed with early dementia, then last December he fell off a low ladder and broke his foot, the result is now he is almost immobile , no longer drives and his memory is getting worse, which he doesn't really acknowledge causing a lot of friction. My fibro is also getting worse. I have had three falls in last two years, banging head. Didn't go to hospital, no one to take me, but don't think there have been any major bad effects, I think my biggest problem now is trying to cope with almost continuous flares with no support, whilst dealing with my husband . I am totally stressed out which is affecting my memory and having more physical, problems. The doc whilst fairly understanding has I think run out of options. I have had no success with medication. I have tried three courses on mindfulness which have helped a bit, but the problems are still there. Sorry about the rant but now to the point. Can anyone tell me, if I or my husband are eligible for any financial help towards anything, such as transport or where do I go to get more information. I know we will not get any means tested benefits as we have savings and own our own home, but other people in similar situations seem to get help, but no one says how, and obviously i can't ask them what their financial situation is. Also I need to look into whether at some stage either of us will need residential care and need to know whether that will be funded . Any and all information or advice will be very welcome. Thanks and hugs to all fellow sufferers.

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ShelWhitt
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Bananas5 profile image
Bananas5

You can both apply for Attendance Allowance...link below

gov.uk/attendance-allowance

Badbessie profile image
Badbessie

Perhaps ageuk my be able to help you. This may point you in the right direction.

ageuk.org.uk/information-ad...

Dizzytwo profile image
DizzytwoModerator

Good afternoon :) I am sorry to read how your struggling. Do you have any family or friends who you could ask to give you a hand. Maybe to take you or your hubby to appointments etc.

You may like to give our benifits advisor Janet a call. It is free and completely confidential. The link below will show you how to contact her.

healthunlocked.com/fibromya...

May I just give you the heads up on how to lock a post. I see this post is unlocked and you have put in quite a lot of information you may wish to make private to this community only. Most members prefer to reply to locked posts for privacy reasons. Unlocked post can be picked up by the big search engines like Google FB etc.

If you wish to lock your post this link will show you how.

healthunlocked.com/fibromya...

If you need further help with this or anything else please feel free to ask any of the admin team. We will be happy to help if we can :)

I hope you enjoy the rest of your day. xx

Momo

As mentioned above, attendance allowance, age UK, citiz advices please search these in your area. Also try your local council. Some have great schemes that could help you. Good luck.

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