Advice on fibro please

[Rossy123]

Hi friends recently been told I possible have fibro if been off work for 8 weeks I'm struggling ie pain and strong fatigue but I'm after that I was 7 weeks ago I have a million question s how to control this horrible fatigue and pain any help please? Also I was very active but not best diet I just don't understand how you can get it so fast

[Chrisbel]

I joined an M.S. charity, where they run a hyperbaric chamber, there are 60 odd centers in the uk, and went for 80 x 1 hour sessions breathing oxygen at 2x normal atmospheric pressure. Now I go once a week for a top up, it really helped with the fatigue and brain fog.( theres a study carried out by the ben gurion university that outlines the positive effects.) it can help with the pain in some people, it only helped me with tiredness and fuzzyness. Cut out chemicals in everything, eat organic where possible, sugar and caffeine increase pain levels noticeably, so avoid them, check out food intolerances as any foods that your body reacts to will increase the pain, gentle aerobic exercise and lots of stretching seems to work for me, as I can’t do weights any more. I take lots of natural anti-inflammatories, and supplements that decrease the pain and increase the energy. If you are interested, I can list them. Hope this helps.

[Hidden in reply to Chrisbel]

Hi I would very much be interested in ur list of natural anti inflammatory tips please if u don’t mind x

[Chrisbel in reply to Hidden]

Hi

Here is my reply to a fellow fibro sufferer who asked what I did to stay active and upright. I went through the whole process, it does mention L glutamine, you can buy from amazon and I take one heaped teaspoonfull per day in the morning in my nutribullit mix but you can take it on cereal or whatever.

Excercise. I go to a gym every 2 days and do aerobic excercise for 30 mins and slow stretching for 30 - 60 mins, based on pilates stretches and strengthening, as these are more gentle than yoga or anything else, I cannot do weights as it causes flare ups. Obviously I did not start at this level, but built up to it. At first it was agony and I did not want to carry on, but the more I stretched the more mobile I became, and i had to start from the beginning again quite a few times. I also found a good physiotherapist who teaches pilates and go for an hour a week to work on the muscle stiffness and knots, and mobility.

I go to see a chinese herbal doctor who gives me accupuncture, and herbs to help, in particular some detox herbs that I take at night and definitely help me sleep better.

I read a study from an israeli university about treating fibro using a hyperbaric chamber breathing pure oxygen under twice normal atmospheric pressure, for one and a half hours a day for 2 months and doing this cured 75% of the participants, so I joined the local M.S. charity which has it’s own chamber, (there are 60 odd centers around the country) and had 80 one hour sessions, to see what would happen, so the result was that it cured my brain fog in the morning and most of my fatigue (at 70 it’s not possible to know how much is age and how much is fibro) but it did not get rid of my pain. I still go once a week and it seems to improve my cognitive abilities and keep my head clear. So I started looking at supplements and diet. My take on this next bit is to cut out anything inflammatory and look for any deficiencies in the diet, and take supplements and eat things for energy.

So, I cut out sugar, caffeine, dairy (mostly), cut alcohol down to the odd glass of wine and was prepared to feel worse if I strayed, wheat based products, and started eating organic in order to cut out the toxic chemicals from the pesticides and fungicides that are sprayed on most fruit and veg. Carbohydrates need to be cut down as well as they turn into sugar in your system and I definitely feel better if I eat mainly organic vegetables and proteins with small amounts of carbs.

There is a woman doctor called Dr Terry Wahls who has written several books on how to cure autoimmune diseases using diet, and I recommend reading her stuff as she has managed to put her M.S. into remission using diet, and she recommends the same protocol for fibro.

Supplements.

I think each person has to experiment with these over a period of time as each of us is different, this has taken me 5 years to get to and I am still experimenting and learning, there is a wealth of knowledge out there on the internet, and I have been searching for a while.

I use:-all organic and have to take for at least 2-3 months to see if they work for you

Magnesium malate 1000-1500 mg in the morning

Magnesium bis glycinate 500-800 mg in the evening

This helps the muscles relax and aids sleep

Curcumin extract with piperine 200 mg twice a day for inflammation

Ginger 500 mg per day inflammation

Vitamin D3 3000-9000iu/day inflammation and energy in the evening

Vit K2 2500 mcg per day clearing arteries and should be taken with D3

Hyaluronic acid 300 mg per day

( this is for arthritis and needs to be taken for at least 3-4 months before it will have an effect, if it is going to work for you, it did for me and now I take it every day and have no pain or swelling)

Coenzyme Q10 for energy ( there are many different strengths on the market, I use basic Mitoq brand which is expensive but I like the science behind the product and I definitely noticed a difference in my energy levels after about 6 weeks)

PQQ pyrroloquinolinequinone 20 mg per day again for energy ( both of these last two products act at a cellular mitochondrial level to help give energy and as antioxidants)

Quercetin up to 500 mg per day anti-inflammatory

Zinc piccolinate 15mg per day anti inflammatory like magnesium most diets are short of zinc.

Astragalus 700 mg per day

Rhodiola 500 mg per day these are adaptogenic herbs that both are anti inflammatory and give energy.

Cordyceps sinensis 500 mg per day, this is a chinese mushroon powder that boosts the immune system, which I have been using for 10 years and as a result very seldom get colds or viruses.

Omega 3 oil Anti inflammatory. this can be fish oil or flax seed oil , you need to read up about which one would suit you as there are many differing opinions,

I take scandinavian rainbow trout oil as it has no heavy metals

Vitamin B complex . generally helpfull for fibro. I use high strength 5000 mcg patches as they are supposed to assimilate more into your bloodstream than taking it orally, I notice an immediate effect on my mental clarity.

Selenium 200 mcg antioxidant that increases blood floe and reduces pain

Probiotics high strength 50 billion organisms per capsule enteric coating a must. There is a school of thought that suggests that all auto immune system problems come from the gut. Which can be disrupted by chemicals in food, so to combat this eating organically where possible and using probiotics to help heal the gut can help the symptoms of leaky gut etc, so I take a high strength probiotic every morning on an empty stomach and in my morning nutribullit mix of fruit and veg I add l Glutamine and Macca root, both of which help to heal the gut, and I no longer suffer from irritable bowel.

Most of these products can be found online at Amazon or from individual producers, of which there are many, and as I go along I tend to try different ones to see if there is any change in my reaction to them, they tend to be cheaper on line, but I only buy from reliable sources, and it is necessary to do a bit of research.

Also one should check the contraindications of all these supplements before trying them, to see if there are any interactions or negative effects with any drugs you may be taking, I do not take any drugs so I do not know what the interactions may be.

I should add that the quantities of each supplement has to be determined by the individual by research and trial, the quantities I have given work for me.

That’s about it for the time being, hope this is helpful.

Any questions, just email me

Cheers

[Bird88 in reply to Chrisbel]

Id love to no x

[Chrisbel in reply to Bird88]

Hi

Here is my reply to a fellow fibro sufferer who asked what I did to stay active and upright. I went through the whole process, it does mention L glutamine, you can buy from amazon and I take one heaped teaspoonfull per day in the morning in my nutribullit mix but you can take it on cereal or whatever.

Excercise. I go to a gym every 2 days and do aerobic excercise for 30 mins and slow stretching for 30 - 60 mins, based on pilates stretches and strengthening, as these are more gentle than yoga or anything else, I cannot do weights as it causes flare ups. Obviously I did not start at this level, but built up to it. At first it was agony and I did not want to carry on, but the more I stretched the more mobile I became, and i had to start from the beginning again quite a few times. I also found a good physiotherapist who teaches pilates and go for an hour a week to work on the muscle stiffness and knots, and mobility.

I go to see a chinese herbal doctor who gives me accupuncture, and herbs to help, in particular some detox herbs that I take at night and definitely help me sleep better.

I read a study from an israeli university about treating fibro using a hyperbaric chamber breathing pure oxygen under twice normal atmospheric pressure, for one and a half hours a day for 2 months and doing this cured 75% of the participants, so I joined the local M.S. charity which has it’s own chamber, (there are 60 odd centers around the country) and had 80 one hour sessions, to see what would happen, so the result was that it cured my brain fog in the morning and most of my fatigue (at 70 it’s not possible to know how much is age and how much is fibro) but it did not get rid of my pain. I still go once a week and it seems to improve my cognitive abilities and keep my head clear. So I started looking at supplements and diet. My take on this next bit is to cut out anything inflammatory and look for any deficiencies in the diet, and take supplements and eat things for energy.

So, I cut out sugar, caffeine, dairy (mostly), cut alcohol down to the odd glass of wine and was prepared to feel worse if I strayed, wheat based products, and started eating organic in order to cut out the toxic chemicals from the pesticides and fungicides that are sprayed on most fruit and veg. Carbohydrates need to be cut down as well as they turn into sugar in your system and I definitely feel better if I eat mainly organic vegetables and proteins with small amounts of carbs.

There is a woman doctor called Dr Terry Wahls who has written several books on how to cure autoimmune diseases using diet, and I recommend reading her stuff as she has managed to put her M.S. into remission using diet, and she recommends the same protocol for fibro.

Supplements.

I think each person has to experiment with these over a period of time as each of us is different, this has taken me 5 years to get to and I am still experimenting and learning, there is a wealth of knowledge out there on the internet, and I have been searching for a while.

I use:-all organic and have to take for at least 2-3 months to see if they work for you

Magnesium malate 1000-1500 mg in the morning

Magnesium bis glycinate 500-800 mg in the evening

This helps the muscles relax and aids sleep

Curcumin extract with piperine 200 mg twice a day for inflammation

Ginger 500 mg per day inflammation

Vitamin D3 3000-9000iu/day inflammation and energy in the evening

Vit K2 2500 mcg per day clearing arteries and should be taken with D3

Hyaluronic acid 300 mg per day

( this is for arthritis and needs to be taken for at least 3-4 months before it will have an effect, if it is going to work for you, it did for me and now I take it every day and have no pain or swelling)

Coenzyme Q10 for energy ( there are many different strengths on the market, I use basic Mitoq brand which is expensive but I like the science behind the product and I definitely noticed a difference in my energy levels after about 6 weeks)

PQQ pyrroloquinolinequinone 20 mg per day again for energy ( both of these last two products act at a cellular mitochondrial level to help give energy and as antioxidants)

Quercetin up to 500 mg per day anti-inflammatory

Zinc piccolinate 15mg per day anti inflammatory like magnesium most diets are short of zinc.

Astragalus 700 mg per day

Rhodiola 500 mg per day these are adaptogenic herbs that both are anti inflammatory and give energy.

Cordyceps sinensis 500 mg per day, this is a chinese mushroon powder that boosts the immune system, which I have been using for 10 years and as a result very seldom get colds or viruses.

Omega 3 oil Anti inflammatory. this can be fish oil or flax seed oil , you need to read up about which one would suit you as there are many differing opinions,

I take scandinavian rainbow trout oil as it has no heavy metals

Vitamin B complex . generally helpfull for fibro. I use high strength 5000 mcg patches as they are supposed to assimilate more into your bloodstream than taking it orally, I notice an immediate effect on my mental clarity.

Selenium 200 mcg antioxidant that increases blood floe and reduces pain

Probiotics high strength 50 billion organisms per capsule enteric coating a must. There is a school of thought that suggests that all auto immune system problems come from the gut. Which can be disrupted by chemicals in food, so to combat this eating organically where possible and using probiotics to help heal the gut can help the symptoms of leaky gut etc, so I take a high strength probiotic every morning on an empty stomach and in my morning nutribullit mix of fruit and veg I add l Glutamine and Macca root, both of which help to heal the gut, and I no longer suffer from irritable bowel.

Most of these products can be found online at Amazon or from individual producers, of which there are many, and as I go along I tend to try different ones to see if there is any change in my reaction to them, they tend to be cheaper on line, but I only buy from reliable sources, and it is necessary to do a bit of research.

Also one should check the contraindications of all these supplements before trying them, to see if there are any interactions or negative effects with any drugs you may be taking, I do not take any drugs so I do not know what the interactions may be.

I should add that the quantities of each supplement has to be determined by the individual by research and trial, the quantities I have given work for me.

That’s about it for the time being, hope this is helpful.

[Rossy123 in reply to Chrisbel]

Send me lost please

[Rossy123 in reply to Rossy123]

List

[Chrisbel in reply to Rossy123]

Hi

Here is my reply to a fellow fibro sufferer who asked what I did to stay active and upright. I went through the whole process, it does mention L glutamine, you can buy from amazon and I take one heaped teaspoonfull per day in the morning in my nutribullit mix but you can take it on cereal or whatever.

Excercise. I go to a gym every 2 days and do aerobic excercise for 30 mins and slow stretching for 30 - 60 mins, based on pilates stretches and strengthening, as these are more gentle than yoga or anything else, I cannot do weights as it causes flare ups. Obviously I did not start at this level, but built up to it. At first it was agony and I did not want to carry on, but the more I stretched the more mobile I became, and i had to start from the beginning again quite a few times. I also found a good physiotherapist who teaches pilates and go for an hour a week to work on the muscle stiffness and knots, and mobility.

I go to see a chinese herbal doctor who gives me accupuncture, and herbs to help, in particular some detox herbs that I take at night and definitely help me sleep better.

I read a study from an israeli university about treating fibro using a hyperbaric chamber breathing pure oxygen under twice normal atmospheric pressure, for one and a half hours a day for 2 months and doing this cured 75% of the participants, so I joined the local M.S. charity which has it’s own chamber, (there are 60 odd centers around the country) and had 80 one hour sessions, to see what would happen, so the result was that it cured my brain fog in the morning and most of my fatigue (at 70 it’s not possible to know how much is age and how much is fibro) but it did not get rid of my pain. I still go once a week and it seems to improve my cognitive abilities and keep my head clear. So I started looking at supplements and diet. My take on this next bit is to cut out anything inflammatory and look for any deficiencies in the diet, and take supplements and eat things for energy.

So, I cut out sugar, caffeine, dairy (mostly), cut alcohol down to the odd glass of wine and was prepared to feel worse if I strayed, wheat based products, and started eating organic in order to cut out the toxic chemicals from the pesticides and fungicides that are sprayed on most fruit and veg. Carbohydrates need to be cut down as well as they turn into sugar in your system and I definitely feel better if I eat mainly organic vegetables and proteins with small amounts of carbs.

There is a woman doctor called Dr Terry Wahls who has written several books on how to cure autoimmune diseases using diet, and I recommend reading her stuff as she has managed to put her M.S. into remission using diet, and she recommends the same protocol for fibro.

Supplements.

I think each person has to experiment with these over a period of time as each of us is different, this has taken me 5 years to get to and I am still experimenting and learning, there is a wealth of knowledge out there on the internet, and I have been searching for a while.

I use:-all organic and have to take for at least 2-3 months to see if they work for you

Magnesium malate 1000-1500 mg in the morning

Magnesium bis glycinate 500-800 mg in the evening

This helps the muscles relax and aids sleep

Curcumin extract with piperine 200 mg twice a day for inflammation

Ginger 500 mg per day inflammation

Vitamin D3 3000-9000iu/day inflammation and energy in the evening

Vit K2 2500 mcg per day clearing arteries and should be taken with D3

Hyaluronic acid 300 mg per day

( this is for arthritis and needs to be taken for at least 3-4 months before it will have an effect, if it is going to work for you, it did for me and now I take it every day and have no pain or swelling)

Coenzyme Q10 for energy ( there are many different strengths on the market, I use basic Mitoq brand which is expensive but I like the science behind the product and I definitely noticed a difference in my energy levels after about 6 weeks)

PQQ pyrroloquinolinequinone 20 mg per day again for energy ( both of these last two products act at a cellular mitochondrial level to help give energy and as antioxidants)

Quercetin up to 500 mg per day anti-inflammatory

Zinc piccolinate 15mg per day anti inflammatory like magnesium most diets are short of zinc.

Astragalus 700 mg per day

Rhodiola 500 mg per day these are adaptogenic herbs that both are anti inflammatory and give energy.

Cordyceps sinensis 500 mg per day, this is a chinese mushroon powder that boosts the immune system, which I have been using for 10 years and as a result very seldom get colds or viruses.

Omega 3 oil Anti inflammatory. this can be fish oil or flax seed oil , you need to read up about which one would suit you as there are many differing opinions,

I take scandinavian rainbow trout oil as it has no heavy metals

Vitamin B complex . generally helpfull for fibro. I use high strength 5000 mcg patches as they are supposed to assimilate more into your bloodstream than taking it orally, I notice an immediate effect on my mental clarity.

Selenium 200 mcg antioxidant that increases blood floe and reduces pain

Probiotics high strength 50 billion organisms per capsule enteric coating a must. There is a school of thought that suggests that all auto immune system problems come from the gut. Which can be disrupted by chemicals in food, so to combat this eating organically where possible and using probiotics to help heal the gut can help the symptoms of leaky gut etc, so I take a high strength probiotic every morning on an empty stomach and in my morning nutribullit mix of fruit and veg I add l Glutamine and Macca root, both of which help to heal the gut, and I no longer suffer from irritable bowel.

Most of these products can be found online at Amazon or from individual producers, of which there are many, and as I go along I tend to try different ones to see if there is any change in my reaction to them, they tend to be cheaper on line, but I only buy from reliable sources, and it is necessary to do a bit of research.

Also one should check the contraindications of all these supplements before trying them, to see if there are any interactions or negative effects with any drugs you may be taking, I do not take any drugs so I do not know what the interactions may be.

I should add that the quantities of each supplement has to be determined by the individual by research and trial, the quantities I have given work for me.

That’s about it for the time being, hope this is helpful.

[Chrisbel in reply to Rossy123]

Hi

Here is my reply to a fellow fibro sufferer who asked what I did to stay active and upright. I went through the whole process, it does mention L glutamine, you can buy from amazon and I take one heaped teaspoonfull per day in the morning in my nutribullit mix but you can take it on cereal or whatever.

Excercise. I go to a gym every 2 days and do aerobic excercise for 30 mins and slow stretching for 30 - 60 mins, based on pilates stretches and strengthening, as these are more gentle than yoga or anything else, I cannot do weights as it causes flare ups. Obviously I did not start at this level, but built up to it. At first it was agony and I did not want to carry on, but the more I stretched the more mobile I became, and i had to start from the beginning again quite a few times. I also found a good physiotherapist who teaches pilates and go for an hour a week to work on the muscle stiffness and knots, and mobility.

I go to see a chinese herbal doctor who gives me accupuncture, and herbs to help, in particular some detox herbs that I take at night and definitely help me sleep better.

I read a study from an israeli university about treating fibro using a hyperbaric chamber breathing pure oxygen under twice normal atmospheric pressure, for one and a half hours a day for 2 months and doing this cured 75% of the participants, so I joined the local M.S. charity which has it’s own chamber, (there are 60 odd centers around the country) and had 80 one hour sessions, to see what would happen, so the result was that it cured my brain fog in the morning and most of my fatigue (at 70 it’s not possible to know how much is age and how much is fibro) but it did not get rid of my pain. I still go once a week and it seems to improve my cognitive abilities and keep my head clear. So I started looking at supplements and diet. My take on this next bit is to cut out anything inflammatory and look for any deficiencies in the diet, and take supplements and eat things for energy.

So, I cut out sugar, caffeine, dairy (mostly), cut alcohol down to the odd glass of wine and was prepared to feel worse if I strayed, wheat based products, and started eating organic in order to cut out the toxic chemicals from the pesticides and fungicides that are sprayed on most fruit and veg. Carbohydrates need to be cut down as well as they turn into sugar in your system and I definitely feel better if I eat mainly organic vegetables and proteins with small amounts of carbs.

There is a woman doctor called Dr Terry Wahls who has written several books on how to cure autoimmune diseases using diet, and I recommend reading her stuff as she has managed to put her M.S. into remission using diet, and she recommends the same protocol for fibro.

Supplements.

I think each person has to experiment with these over a period of time as each of us is different, this has taken me 5 years to get to and I am still experimenting and learning, there is a wealth of knowledge out there on the internet, and I have been searching for a while.

I use:-all organic and have to take for at least 2-3 months to see if they work for you

Magnesium malate 1000-1500 mg in the morning

Magnesium bis glycinate 500-800 mg in the evening

This helps the muscles relax and aids sleep

Curcumin extract with piperine 200 mg twice a day for inflammation

Ginger 500 mg per day inflammation

Vitamin D3 3000-9000iu/day inflammation and energy in the evening

Vit K2 2500 mcg per day clearing arteries and should be taken with D3

Hyaluronic acid 300 mg per day

( this is for arthritis and needs to be taken for at least 3-4 months before it will have an effect, if it is going to work for you, it did for me and now I take it every day and have no pain or swelling)

Coenzyme Q10 for energy ( there are many different strengths on the market, I use basic Mitoq brand which is expensive but I like the science behind the product and I definitely noticed a difference in my energy levels after about 6 weeks)

PQQ pyrroloquinolinequinone 20 mg per day again for energy ( both of these last two products act at a cellular mitochondrial level to help give energy and as antioxidants)

Quercetin up to 500 mg per day anti-inflammatory

Zinc piccolinate 15mg per day anti inflammatory like magnesium most diets are short of zinc.

Astragalus 700 mg per day

Rhodiola 500 mg per day these are adaptogenic herbs that both are anti inflammatory and give energy.

Cordyceps sinensis 500 mg per day, this is a chinese mushroon powder that boosts the immune system, which I have been using for 10 years and as a result very seldom get colds or viruses.

Omega 3 oil Anti inflammatory. this can be fish oil or flax seed oil , you need to read up about which one would suit you as there are many differing opinions,

I take scandinavian rainbow trout oil as it has no heavy metals

Vitamin B complex . generally helpfull for fibro. I use high strength 5000 mcg patches as they are supposed to assimilate more into your bloodstream than taking it orally, I notice an immediate effect on my mental clarity.

Selenium 200 mcg antioxidant that increases blood floe and reduces pain

Probiotics high strength 50 billion organisms per capsule enteric coating a must. There is a school of thought that suggests that all auto immune system problems come from the gut. Which can be disrupted by chemicals in food, so to combat this eating organically where possible and using probiotics to help heal the gut can help the symptoms of leaky gut etc, so I take a high strength probiotic every morning on an empty stomach and in my morning nutribullit mix of fruit and veg I add l Glutamine and Macca root, both of which help to heal the gut, and I no longer suffer from irritable bowel.

Most of these products can be found online at Amazon or from individual producers, of which there are many, and as I go along I tend to try different ones to see if there is any change in my reaction to them, they tend to be cheaper on line, but I only buy from reliable sources, and it is necessary to do a bit of research.

Also one should check the contraindications of all these supplements before trying them, to see if there are any interactions or negative effects with any drugs you may be taking, I do not take any drugs so I do not know what the interactions may be.

I should add that the quantities of each supplement has to be determined by the individual by research and trial, the quantities I have given work for me.

That’s about it for the time being, hope this is helpful.

[Steve101 in reply to Chrisbel]

Could I have list as well pleae?

Many thanks

Steve

[Chrisbel in reply to Steve101]

Hi

Here is my reply to a fellow fibro sufferer who asked what I did to stay active and upright. I went through the whole process, it does mention L glutamine, you can buy from amazon and I take one heaped teaspoonfull per day in the morning in my nutribullit mix but you can take it on cereal or whatever.

Excercise. I go to a gym every 2 days and do aerobic excercise for 30 mins and slow stretching for 30 - 60 mins, based on pilates stretches and strengthening, as these are more gentle than yoga or anything else, I cannot do weights as it causes flare ups. Obviously I did not start at this level, but built up to it. At first it was agony and I did not want to carry on, but the more I stretched the more mobile I became, and i had to start from the beginning again quite a few times. I also found a good physiotherapist who teaches pilates and go for an hour a week to work on the muscle stiffness and knots, and mobility.

I go to see a chinese herbal doctor who gives me accupuncture, and herbs to help, in particular some detox herbs that I take at night and definitely help me sleep better.

I read a study from an israeli university about treating fibro using a hyperbaric chamber breathing pure oxygen under twice normal atmospheric pressure, for one and a half hours a day for 2 months and doing this cured 75% of the participants, so I joined the local M.S. charity which has it’s own chamber, (there are 60 odd centers around the country) and had 80 one hour sessions, to see what would happen, so the result was that it cured my brain fog in the morning and most of my fatigue (at 70 it’s not possible to know how much is age and how much is fibro) but it did not get rid of my pain. I still go once a week and it seems to improve my cognitive abilities and keep my head clear. So I started looking at supplements and diet. My take on this next bit is to cut out anything inflammatory and look for any deficiencies in the diet, and take supplements and eat things for energy.

So, I cut out sugar, caffeine, dairy (mostly), cut alcohol down to the odd glass of wine and was prepared to feel worse if I strayed, wheat based products, and started eating organic in order to cut out the toxic chemicals from the pesticides and fungicides that are sprayed on most fruit and veg. Carbohydrates need to be cut down as well as they turn into sugar in your system and I definitely feel better if I eat mainly organic vegetables and proteins with small amounts of carbs.

There is a woman doctor called Dr Terry Wahls who has written several books on how to cure autoimmune diseases using diet, and I recommend reading her stuff as she has managed to put her M.S. into remission using diet, and she recommends the same protocol for fibro.

Supplements.

I think each person has to experiment with these over a period of time as each of us is different, this has taken me 5 years to get to and I am still experimenting and learning, there is a wealth of knowledge out there on the internet, and I have been searching for a while.

I use:-all organic and have to take for at least 2-3 months to see if they work for you

Magnesium malate 1000-1500 mg in the morning

Magnesium bis glycinate 500-800 mg in the evening

This helps the muscles relax and aids sleep

Curcumin extract with piperine 200 mg twice a day for inflammation

Ginger 500 mg per day inflammation

Vitamin D3 3000-9000iu/day inflammation and energy in the evening

Vit K2 2500 mcg per day clearing arteries and should be taken with D3

Hyaluronic acid 300 mg per day

( this is for arthritis and needs to be taken for at least 3-4 months before it will have an effect, if it is going to work for you, it did for me and now I take it every day and have no pain or swelling)

Coenzyme Q10 for energy ( there are many different strengths on the market, I use basic Mitoq brand which is expensive but I like the science behind the product and I definitely noticed a difference in my energy levels after about 6 weeks)

PQQ pyrroloquinolinequinone 20 mg per day again for energy ( both of these last two products act at a cellular mitochondrial level to help give energy and as antioxidants)

Quercetin up to 500 mg per day anti-inflammatory

Zinc piccolinate 15mg per day anti inflammatory like magnesium most diets are short of zinc.

Astragalus 700 mg per day

Rhodiola 500 mg per day these are adaptogenic herbs that both are anti inflammatory and give energy.

Cordyceps sinensis 500 mg per day, this is a chinese mushroon powder that boosts the immune system, which I have been using for 10 years and as a result very seldom get colds or viruses.

Omega 3 oil Anti inflammatory. this can be fish oil or flax seed oil , you need to read up about which one would suit you as there are many differing opinions,

I take scandinavian rainbow trout oil as it has no heavy metals

Vitamin B complex . generally helpfull for fibro. I use high strength 5000 mcg patches as they are supposed to assimilate more into your bloodstream than taking it orally, I notice an immediate effect on my mental clarity.

Selenium 200 mcg antioxidant that increases blood floe and reduces pain

Probiotics high strength 50 billion organisms per capsule enteric coating a must. There is a school of thought that suggests that all auto immune system problems come from the gut. Which can be disrupted by chemicals in food, so to combat this eating organically where possible and using probiotics to help heal the gut can help the symptoms of leaky gut etc, so I take a high strength probiotic every morning on an empty stomach and in my morning nutribullit mix of fruit and veg I add l Glutamine and Macca root, both of which help to heal the gut, and I no longer suffer from irritable bowel.

Most of these products can be found online at Amazon or from individual producers, of which there are many, and as I go along I tend to try different ones to see if there is any change in my reaction to them, they tend to be cheaper on line, but I only buy from reliable sources, and it is necessary to do a bit of research.

Also one should check the contraindications of all these supplements before trying them, to see if there are any interactions or negative effects with any drugs you may be taking, I do not take any drugs so I do not know what the interactions may be.

I should add that the quantities of each supplement has to be determined by the individual by research and trial, the quantities I have given work for me.

That’s about it for the time being, hope this is helpful.

[Steve101 in reply to Chrisbel]

Thank you so much for your very helpful response. I already take a nimbler of those supplements, so it is good to know I am on the right tracks. On a train home willl respond more tomorrow. Thanks again.

Steve

[Raboo]

In addition to everything listed, you have to learn to read your body. By that I mean you have a great day. You can do anything you feel so good. Learning to read your body, how do you feel after an hour or two. Take breaks. There are good books out there to read for general info. This site is one of the best. I love to see the differences in treatments between the UK and US.

Body massage. Yes it can be painful at times. Communicate with your massage tech. They are a great source for finding those knots and working them out. I won't lie, I take something for pain before my appointment. Once all is done, I actually feel somewhat normal for a day or two. Good luck. Gentle hugs

[moo196]

Best thing I have ever done wrt pain is to give up diet coke and anything else with artificial sweeteners in. Pain disappeared within days. Check all products eg fizzy drinks, yoghurts, puddings. It's pretty well known how bad it is for the body. Much more difficult to avoid since the sugar tax..... But we'll worth it for me.

[Hidden in reply to moo196]

I believe it’s it’s food that my body is sensitive to . Especially the ones you have named. Tbh my appetite is poor and I only feel a bit better on just water!!! But it’s wrong because then this triggers a need for a sugar fix! Your so right x

[Rossy123]

Anyone tried amitriptyline for fibro if just started it and feel pretty spaced out and sleepy at min

[Hidden in reply to Rossy123]

I tried it for 6 nights and that was enough ! Never would I want to feel like that on top of my fibromyalgia. My head felt like I walking round with a very large soppy wet sponge up it. 😰

[Rossy123 in reply to Hidden]

Oh Iv heard good and bad of it apparently it's suppose to eas off after week or so I can only true I suppose is there any other meds your taking

[Hidden in reply to Rossy123]

Yes I take 200mg of Zoloft 2mg Diazepam if I can’t cope and dhydrocodeine and regular plain killers . I am also on meds for Diabetes type 2

[Midori in reply to Rossy123]

Amitriptyline and Nortriptyline act as muscle relaxants, If they make you feel strange in the day, try taking them earlier in the evening. It works for me.

[Hidden in reply to Rossy123]

Hi there, I’ve been on Amitriptyline for last 15 years. I only take 10 ml one night I tried two , was really drowsy and at a company I was visiting I fell down 8 concrete steps , my case of little teddies were everywhere lol needless to say I’ve stuck to one a day , they do help with my pain and great for my anxiety. If I forget to take it I’m awake every minute of the night. See your go to reduce your dose x

[Hidden in reply to Hidden]

I may have no other option to try again but I felt terrible in them x

[Rossy123 in reply to Hidden]

Hi do they take a while to work for the pain ect

[Hidden in reply to Rossy123]

Hi there took about 3 weeks for me

[Rossy123]

I'm only on 10mg lol prob gotta get used to it first I'm hoping it helps me

[Hidden]

I take mine at 10.30 every night,

I hope you do give them a bit of time,

I struggle to take medication, it makes me feel sick and dizzy , but I’m ok with

10 ml . Take Care X