Tired

[Bowi]

Hi I'm new to this site, last September I was diagnosed with fibromyalgia

I feel like I have no suport from the doctors they gave me lyra to he taken twice a day. When I went back they told me to double the dose which I haven't because I feel as it's getting worse I don't want to be taking so many drugs. This passed week I've had terrible craps and plans and needles in my hands and feet it's hard to sleep, is this normal and does it go on for long periods?

[Echoblue]

Sorry to hear how much you are struggling Bowi.

There is a huge amount of support in this group and someone has always experienced similar symptoms, whatever they are!!

I get cramps (if that was what you were referencing) in my fingers, toes and shins. Digits lock rock solid straight and are agony until it passes. Sleep issues are sadly classic with Fibromyalgia. It will take time to get it under some sort of control so trial and error in the meantime. Keep going back to your doc until you have. Sadly there will be flare ups, but try and listen to your body to pick up early warning signs and rest as soon as you sense you have done too much.

A Fibromyalgia flare up is not something you can push through!

All the best in finding what works for you and bear in mind that may change over time so is a constant learn and adjustment. X

[Bowi in reply to Echoblue]

Hi Echoblue Thanks for the advice it helps to know there’s some one to speak to about my ailments. I hate the way it stops me doing things , I’ve got a lot to learn about fibromyalgia, the doctors always said it was arthritis I’m actually waiting for a shoulder replacement . Again thanks for the advice

[M0AL61 Moderator Volunteer]

Hi Bowi , and a very warm welcome to this lovely, friendly forum.

If you feel you are not being supported by your GP is there another GP in the surgery who you could see? It's so important to have a supportive GP when you have fibro.

Unfortunately it's impossible to know how long each symptom will last, or if we will always have it etc. It's a case of trial and error to find what works best, and there may be another medication which would suit you better. It took me a wee while to get the medication which works best for me.

As echoblue has said, sleep issues are a big problem for most of us with fibro. Either we can't sleep or we want to sleep all the time. There never seems to be any happy medium for us. There are some meditation videos online which you can use to help you to sleep at night. Just Google meditation videos and they will come up for you.

[Bowi in reply to M0AL61]

Hi M0AL61 thanks for the warm welcome it’s most appreciated, that’s sounds like good advice I’ll look on line for the meditation videos, like you said it’s trail and error

[Dizzytwo Moderator]

Hi there, here's wishing you a very warm welcome to our group You may like to think about locking your posts to this community only for privacy reasons.

The link below will show you how. Also locked posts tend to get more replies xx

healthunlocked.com/fibromya...

Momo

[Nanapoteet]

Yes it can last for awhile. When it acts up it can last a week. Month but i do meditation and swim at the YMCA. I hanve narco that doesn't work. I want tramadol. Muscle relaxer that worked for me i dont know why they took it away and gave me tramdol.

[Nanapoteet]

Gave me narco