Fibromyalgia is from emotional trauma, buried.

[Time1970]

Everyone suffering from fibromyalgia needs to super supplement vitamin d. Because most sufferets are usually agoraphobia or house ridden, lack of vitamin d propagates the pain. Second to that is usually a thyroid issue (eat seaweed) and eat your calcium. adrenal fatigue is the precursor to fibromyalgia. Detox your relationships, your body and focus on relaxation and nurturing uncomplicated relationships.

[Hidden]

Hi there. I disagree with your statement

'most sufferets are usually agoraphobia or house ridden' and I don't believe that fibromyalgia is caused by emotional trauma either. Have you sources to back these things up? Thanks for your advice though

[Mdaisy in reply to Hidden]

Trauma emotional or otherwise can be a trigger to develop Fibromyalgia. I believe you can lessen the symptoms but reducing stress or avoiding the trauma (ie leave abusive relationships) but also disagree with the OP if they mean that if you work through this that the pain will go away. This is sadly not the case unfortunately

[Hidden in reply to Mdaisy]

Yes agreed, any sort of trauma can be a trigger. It was the phrase 'From emotional trauma, buried' I had a problem with. According to an article I've recently read both repressed emotions and adrenal fatigue quoted by OP are 'sketchy' theories which can be largely dismissed. The article goes on to say '....the internet is overflowing with people promoting these theories (and the exploitative cures based on them)....' Paul Ingram Dec 2018 painscience.com/articles/fi...

[Mdaisy in reply to Hidden]

I understood what you meant and was querying and agree with you. Sweeping statements are not facts and although addressing trauma with coping mechanisms as you rightly say are helpful - it’s not a ‘cure’ as you agree. Addressing padst trauma is beneficial to everyone whatever they illness or mental health issue to some degree.

Snake oil and bogus treatments are rife on the internet as you say praying on vulnerable people who need relief - it is both deeply upsetting and makes me mad to think people are being duped. As we say here, always check research and your source if a site is providing one sided info to get you to buy a product then they are doing this you solely make a sale. Check reviews as also sometimes fake too but really you’re decision to buy shouldnt be based on reviews anyhow. It’s definitely a minefield of info our there, if in doubt always ask FMAUK or post on here etc would be my advice to the community

[Hidden in reply to Mdaisy]

Yes, I thought you were agreeing, it was just I wanted to add to the conversation (maybe in the wrong place?). Talking online is tough as it can lead to crossed wires! Xx

[does-the-NHS-work in reply to Hidden]

This evidence may help.

youtu.be/LcVglzuTH1A(Not working as expected?)

[Lou1054]

Fibromyalgia is a disorder of the central nervous system according to my neurologist.

[Mdaisy in reply to Lou1054]

Yes research is pointing to this to be the most likely conclusion and as we know a stress/traumatic episode can be a trigger Fibromyalgia. As above, I believe lessening the stress and trauma can make symptoms not as severe however I do not necessarily think that CBT or counselling will make Fibro go away unfortunately. If only it was that simple

[bantam12]

VitD and Calcium should always be tested before supplementing and seaweed (kelp) is usual best avoided with thyroid problems.

[desquinn Partner Volunteer FMAUK Trustee in reply to bantam12]

ideally as you say bantam12 all supplements should be tested to see if they are needed prior to taking anything. At best you are in danger of making expensive pee and at worst you could compromise your body in some way.

[bantam12 in reply to desquinn]

Many people don't understand the VitD, Calcium, Parathyroid connection and that taking large doses of VitD can alter the tightly controlled levels of all three, VitD can push Calcium over range and hypercalcemia is a serious possibility.

[desquinn Partner Volunteer FMAUK Trustee in reply to bantam12]

agree. We have this paradigm being espoused by some people that this is natural so it cannot be harmful and anything synthesised or chemical is automatically harmful. Those pesky bad electrons.....

We are getting more and more stories of people using all natural IV infusions made up like a smoothie that are really taking this to an extreme level of stupidity.

my goto example is always water and the most natural and safe thing we interact with every day. But water toxicity is a thing so too much of a good thing is bad.....

[Hazel_Angelstar Administrator FMA UK Staff in reply to bantam12]

I discovered this connection when my gp was prescribing me vit d & calcium ... Which led to me having too high calcium levels. Xxx

[Marz in reply to bantam12]

As we know if anyone suffers with Hashimotos or auto-immune thyroid - then adding kelp is only adding to the fire I have read ... Also as we know VitD increases/improves the uptake of calcium from foods so it is important to add VitK2-MK7 to the mix to ensure any excess calcium is encouraged to leave the arteries and soft tissues and head for the bones and teeth - where it is needed Atherosclerosis anyone ?

Testing Calcium prior to taking large doses of VitD is important ... and remember dosing is linked to the result so no willy nilly dosing. VitD is more than a vitamin - it is a steroidal pro-hormone as well as being anti-inflammatory

[bantam12 in reply to Marz]

Having had hypercalcemia myself (due to hyperparathyroidism not supplements) I find it quite scary how some people take huge doses of VitD without any thought to the possible consequences. My VitD is still very low and any attempt to take supplements results in side effects so I now leave well alone.

[Greenpeace]

Hi there, thank you for posting, and welcome to our forum.

I disagree with most of your post, and wonder where your information came from. To super dose on Vit D is downright dangerous, I am neither house bound or agoraphobic, happily married for the past 50 yrs, I could go on but I won’t.

Please stick around the forum, and you will read how people live with Fibro on a daily basis, and do have a look at our Website, www,fmauk.org where you can find some proven, evidence based facts of living with Fibro.

Cheers.

GP. 😊😊

[Time1970 in reply to Greenpeace]

I am a 30 year practioner GP double board certified as a naturopath as well as apsychologist.

Nobody and I mean nobody should aspire to live with fibromyalgia. ALL should consider that it isn't a birth defect, which is a born bred illness, that the imbalance is acquired through emotional relations and poor nutrition. Vitamin d in large doses, of course done with logic reference guidelines is only initially to be done to course correct. And then taper off according to lifestyle.

[desquinn Partner Volunteer FMAUK Trustee in reply to Time1970]

If you are a medical professional then can I suggest you contact Healthunlocked and go through their process for medical professionals. As you can understand anyone can come on here and claim to be anyone with any qualification.

healthunlocked.com/policies...

"5. Non-commercial use by users

The site is for the use of individuals for non-commercial purposes only. To use information gathered from HealthUnlocked commercially or to reach HealthUnlocked users with commercial interest unless expressly authorized by HealthUnlocked is against these terms.

If you wish to use the site for commercial purposes related to your role within healthcare provision you may be able to extend your account to include a role (e.g. Health Care Professional (HCP), Patient Organization, Researcher, Provider, etc). In doing so, you may have to comply with extra terms like Terms of Engagement for Affiliates."

[Drm532 in reply to Time1970]

Then you need to see a doctor 😂😂

[desquinn Partner Volunteer FMAUK Trustee]

"sufferets are usually agoraphobia or house ridden, " - wrong. Can be would be accurate

"Second to that is usually a thyroid issue (eat seaweed) and eat your calcium." without foundation

". Detox your relationships, your body and focus on relaxation and nurturing uncomplicated relationships." - stress doesn't help any chronic health sufferer but the leap your making is a bit far.

[Mdaisy in reply to desquinn]

Agree with all of this! Time1970

We know that they are many people with Fibromyalgia living lives that are similar to 'healthy' people in that they function quite well on the whole, as they've learning to manage Fibro apart from the odd flare. That's why it is considered an invisible illness as some people you wouldn't know they are in severe pain most of the time but as Des says people can be debilitated or even disabled by Fibro's symptoms.

We've also had the Thyroid connection debated so many times and there is no evidence that Fibro solely a Thyroid issue, many people have them both and yes if the Thyroid is not working well or have the right treatment this will make symptoms worsen. Here's a post we wrote about Fibro & Thyroid with a link to a statement made by Thyroid UK - healthunlocked.com/fibromya...

Lastly I think I have replied that if you think that removing or solving trauma will stop the pain I so not believe this to be true. Removing stressors can decrease symptoms but not 'cure' Fibromyalgia. But if you mean remove trauma from one's life I agree this can improve the experience of pain and symptoms to a degree alongside many other therapies, medication, lifestyles changes, gentle exercise etc - ie using a holistic approach.

Hope all this makes sense

Emma

[Marz in reply to Mdaisy]

Your link was very interesting and I am sure very helpful to many. However so much research done does not include the Testing of the T3 - which is the Active Thyroid Hormone - needed in every cell of the body ... so if low can be the cause of many symptoms. Still today it is not considered necessary as a test - WHY ? Due to the corruption way back it was decreed the TSH test was the Gold Standard and nothing else was required ... sadly Thyroid Stimulating Hormone - is as you know from the Pituitary and is not a Thyroid Hormone. And so thousands of poorly people are missed as having a thyroid problem ... I despair We must remember the Adrenals are the gear box and the Thyroid the Accelorater ! Of course we do take more care of our cars

The link you gave was from 4 years ago - much has changed in that time ... check out the posts/research papers by diogenes on Thyroid UK - just another point of view ...

[desquinn Partner Volunteer FMAUK Trustee in reply to Marz]

replied on the post but the headline post includes:

2.Do we support any campaigns to increase Thyroid testing in the UK?

YES. most definitely

5.Should you consider asking for your Thyroid blood test results if recently diagnosis with Fibro ?

I think it should be considered & if you've only had a TSH then maybe you should think asking for a full Thyroid profile to be taken as this might be helpful

6.Can Fibro be misdiagnosed?

Yes, unfortunately this can happen on occasion .......

[Mdaisy in reply to Marz]

I understand research moves on and have said research continues within the post when I wrote it at the time. I needed to provide this post at the time due to a few members stating Fibro was not real and merely Thyroid condition. However, we’ve discussed a possible connection numerous times on here previously.

I have logged your concerns about maybe needing to update the whole post and will ask FMAUK Chair whether he feels an updated version is necessary.

Emma

[MichelleButterfly]

I have low vitamin D but only take standard supplements. I personally for myself feel that my fibromyalgia was brought on by an emotional situation. They do say that fibromyalgia could be triggered by an emotional or physical situation or neither.

[desquinn Partner Volunteer FMAUK Trustee]

our general rule of thumb is that people may have a genetic predisposition to fibromyalgia but it takes a "trauma" event to provoke it. This could be emotional, virus, child birth, car crash etc. But they do not know for definite about causes.

[deborah27]

I am living with the consequences of chronic carbon monoxide poisoning culminating in an explosion in my home. There was a period of what appeared to be recovery, then progressively i began to become ill. Brain injury, chronic severe pain, parasthesias, and the rest... I am living with fibromyalgia post traumatic event. Can't change it, I do eat well and manage most of the time to hold down a teaching job. The pain is mindblowing, the weakness, stiffness and fatigue is life changing. I have no idea how the day is going to be. I don't take painkillers as a choice. I am not who i used to be, but I can make sense of how i came to be this way. Not emotional trauma alone but an actual cause and effect scenario. We are constantly battling to eliminate the 'it's all in your head' or it's 'anxiety' (a much overused diagnosis) if only it was as simple as a bit of therapy and a pill!

[bucklemunki]

Not ALL, but maybe SOME and i have to agree i have long suspected a significant link between unresolved trauma and fibro-like symptoms.

Interesting, it would be usefull to explore some correlations and statistics.

[Suze]

I strongly disagree with your statement that 'Fibro is emotional trauma buried'. I'd love to know where you get your evidence for that from? I personally have no emotional trauma. I was however born with physical trauma, needing surgery. I also spent most of my childhood ill with infections and viruses. So, in my case, I believe in some ways, I was born with it...it just wasn't triggered until later in my life. Yes, SOME people have had some sort of traumatic emotional event happen to them, and it COULD possibly be triggered by that. BUT....NOBODY knows for certain, what the actual cause of the illness is. Current scientific thinking (based on research) puts it down as a neurological condition, affecting the central nervous system. No amount of vitamin D or Calcium is going to cure Fibro, but it can help some, who test deficient in it. But I'm certainly not agoraphobic, or completely house-ridden yet! None of my many friends with Fibro are agoraphobic either! Neither do I have any toxic relationships.

[Time1970 in reply to Suze]

My statements were a bit broad, for this I apologize. It has just come to be rather frequently heard as a practioner, the common thread of trauma and the correlation to this diagnosis. I have seen a huge upswing in cases surrounding patients that were once a 3 times in a year as an interesting casestudy, to now what is 3 times a week visit by the desperately confused. I have seen this type of patient-person repeatedly in my 30 years of practice. More than not, the thread is a trauma. And I was merely speaking of what i see as connecting the dots. If not thinking that a childhood with illness, infections is a trauma in itself, then I question the meaning and definition of trauma, defined. Also, one doesn't need to be in a current toxic relationship to actually have known one in an entire lifetime and have it still leave its mark. I have seen 100 percent recovery and I have seen suicide, with those affected by this diagnosis. The leanings towards those whom recovered?....there is also a thread. A better understanding of self emotional care and ultimately making better food decisions and nutritional support with a conscious decision to cure themselves. I would never insult or question the possibility of a person's suffering, for what cannot be scientifically explained. I am merely stating this: there are not enough doctors whom can or are willing to see this disease as it's presented in whole. Emotional dis-ease can and will cause disease. And yes, the body can literally generate trauma onto itself, unconsciously.

[does-the-NHS-work]

I agree, after years of research I have finally gotten to the bottom of my hidden trauma. hope this helps the young poor soles who have their lives to live in freedom, this is a video with research that confirms the connection with trauma, pain that is seen in individuals diagnosed with fibromyalgia.

youtu.be/LcVglzuTH1A(Not working as expected?)