Brightnbreezy: I have had fibromyalgia... - Fibromyalgia Acti...

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Brightnbreezy

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I have had fibromyalgia for about 25 years, but in the last year my head has got so much worse. It doesn't exactly spin but that is what it feels like, or it is as if the brain just fold inward, or my head feels as if it is going to fall off my shoulders. This is the worst thing - anyone else experience this? Help!

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brightnbreezy
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Dizzytwo profile image
Dizzytwo

Good morning, I have just replied to your first post you did a year ago by mistake. But you maybe interested in reading the link I put up for you about privacy and locked posts. You can read my reply here :)

healthunlocked.com/fibromya...

Have you considered been checked for virtigo? Just a thought has I do suffer with it myself and it does cause me problems with my head :(

Momo

Have you been checked for any inner ear problems ? I’m not sure if that’s the same as vertigo but I’d get dr to check all they can. My head is probably the worst of my fibro. I can keep going with pain in limbs, back etc but the headaches just stop me doing anything else. A sign it’s going to be a bad one is a sort of head throbbing without pain, whooshing in my ears. I’ve got a goitre although I’m told my thyroid is “ normal” ( looking like this ???) and I’ve read that the whooshing feeling can be something to do with thyroid problems. You could ask your dr to check that too.

Dizzytwo profile image
Dizzytwo in reply to

Hi there, yes I think there are many things that can effect the inner ear. Virtigo been one of them and it seems to effect a lot of people. Really make your head spin and then you lose your balance it's horrible :(

brightnbreezy profile image
brightnbreezy in reply toDizzytwo

You are right, and I have been diagnosed with meniere's disease for which I took medication, but this is different - it's almost as if the brain just decides it done enough for now and just, what I call, prickles away, just closes down. And if I persist in physical or mental effort my head feels as if it will fall off my shoulders, or as if I am going to fall down. Most peculiar. Good excuse to sleep. I just really feel for those who go to work or have small children etc. It is difficult (but not insurmountable). Mine started a year after my daughter was born (AGES ago). Keep well.

Dizzytwo profile image
Dizzytwo in reply tobrightnbreezy

I really would advise you to call your surgery in the morning and make an appointment. This does not sound like fibro Imo.

But what I think is irrelevant. This is obviously new to you, troublesome and been going on for a while. Your GP should be updated 🤗🤗🤗

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