New on here

[mokka65]

Hi all I am new on here thought I would see what others are saying.I find with fybro I get exhausted on a daily basis just get wiped out ache all over no energy find it very hard to move on days. I find some doctors do not know enough or else not interested.

[M0AL61 Moderator Volunteer]

Hi mokka65, and a very warm welcome to this lovely community where you will find good support and friendship xx

[Hidden]

I find the exhaustion worse than any of the pain. I've woken today with headache, awful neck pain and minor shoulder pain. Soluble paracetamol is helping the head pain and I've a warmed rice bag on my neck which is improving already, but I've found nothing that helps the fatigue. When it hits it's like dragging my legs through treacle and just gets worse and worse. Costochondritis seems to develop from the fatigue, as does rib and back pain. You could look at Dr Myhill's site for her recommendations for fighting fatigue. I found her combination of supplements helped a little.

[Fra22-57]

You have had some really good replies so I can only add to don't be so hard on yourself..take lots of rests.I tend to do more when I think I am ok then can't move next day.I agree the exhaustion is awful.One minute your feel fine then snap..a pressure blanket zooms across and feel like collapsing.I am lucky I got diagnosed by rheumatologist but my GP kept trying all sorts medication til think he didn't know any more.You really need a good rheumatologist. Not that mine is but he did diagnose me.

[Al10]

Sounds about right! Younger doctors are more likely to have Fibro understanding as they will have had fibro training. The oldies may still be operating as though Fibro is solely a mental condition. Regardless, fibro is a lifelong condition with no effective treatment or cure. It is a matter of trying stuff that may or may not help some. Many Fibros are intolerant of meds and gain no benefit. That makes us hard to help. For others, meds work for a while and then it is adding more and more until they realise, meds are not helping and even hindering.

We are the typical 'Heartsink' Patient. The doctor sees us and groans, as his heart sinks into his boots. We are hard or impossible to help, yet we still need support to cope.

You will need to start listening to your body more. Resting before you tire? Sounds like you boom and bust. You need to find a more even keel. Then, when you do, share it all here. We all struggle with this. Good luck!

[mokka65 in reply to Al10]

Thank You very well put.

[Ladybex]

Hi there

It’s awful and I’m still wAiting to see a Rheumatologist as my GP first thought I had under-active thyroid but now thinks it may be fibromyalgia ... I have been poorly for 9 months and seems to have got worse... the symptoms of fibromyalgia do seem to be the same as what I’m having.. do wish you well and this site is brilliant so welcome 😊

[mokka65 in reply to Ladybex]

I find you just fight and fight it but nothing works. Hope you get some help.

[Dizzytwo Moderator]

Hi there, and a very warm welcome to the group. You may get more replies if you lock your post. You don't have to but for privacy reasons you may like to think about it. You have put up a lot of information and unlocked posts can and will be picked up by the big search engines. You may find what you have posted may end up on Google, FB etc. If you wish to lock this and any other post this link will show you how

healthunlocked.com/fibromya...

I hope you have a good day xx

Momo

[mokka65]

Just like to Thank You all.

[Ladybex]

Thank you but still not sure how to do this

[Dizzytwo Moderator in reply to Ladybex]

Hi there, you only need to lock a post when your the one posting a question etc not when you reply and it only needs to be locked once at the start of a post. But it does need to be done for each new post you do. I hope that makes sense.

When you start a new post after you finished writing scroll down and tick the circle next to Only Community members. Then press the post button.

Here's a link to show you what I mean

healthunlocked.com/fibromya...

[Ladybex in reply to Dizzytwo]

Thank you ... 👍