Pip

[Jenniferf49]

I have applied first time for pip. Obviously was turned down . It is now going to appeal citizens advice are accompanying me. Any advise would be appreciated. Thanks

[Jenniferf49]

Thanks I will Google that now

[Jenniferf49]

It says I am lol.

[Jenniferf49]

I hope it does to thank you

[Hidden in reply to Jenniferf49]

Hi

Hope you go on ok. I know it must be hard. Love and hugs Lynne xxxx

[Tabitha58]

Hi Jennifer - may not be relevant but PIP guidelines have recently been changed to also take into account 'significant psychological distress' when planning or carrying out a journey. Also remember that you have to answer the questions with details of your worst days and as if you were not receiving treatment, rather than how you actually might be on the day Good luck x

[Jenniferf49 in reply to Tabitha58]

Thank you. I don't hold up in winning to tell you the truth . I never got one point for anything which I was so shocked .

[Blossom23]

Hi

I had to apply for pip as my disability money was stopped . I was getting the high rate for mobility and middle for care . I had an adviser fill the forms out for me . I was turned down so I appealed but got turned down again . I got a copy of what the pip lady had wrote . It was a pack of lies . I had an operation on my hand two days before it was in bandages but she put I squeezed her hand tightly . Impossible as if I did I would have split all the stitches. I have taken it to a tribunal but have been told the is nearly a year waiting list .

[Jenniferf49 in reply to Blossom23]

That's awesome. Mine was full of lies as well. This was my first time applying as my doctor advised me to do so

[Jenniferf49 in reply to Jenniferf49]

I meant aweful lol

[WF2k in reply to Blossom23]

Oh yeah, they do like to tell lies, even though I was awarded PIP the assessor still told porkies. ESA is just as bad as well, deemed fit for work twice.

[Blossom23]

I have the ladies name I will not let it rest . I have been told they work on a scheme where every time someone is turned down they get £75 . There are a lot of people that don’t appeal. It’s disgusting this government is so corrupt.

[Blossom23 in reply to Blossom23]

I was told to contact my MP but I’ve heard nothing back yet .

[stargazer61 in reply to Blossom23]

I read somewhere online (typically can't find it now) after i also received zero points that the assessor gets £300 for every zero point report. That can't possibly be true...can it??

I replied to my assessor pointing out the blatant mistruths and have put in a complaint. Funnily enough i wanted to praise the receptionist who helped me a lot and surmise i am the first person trying to leave positive feedback as they seemed pretty unaware of their request on pip website to do so when i called (there is no way to do it to website online). The whole thing is nasty and i read over 80 per cent of people have health deterioration due to the process.i know i certainly have.

[Jenniferf49]

I have my appeal in three weeks time . Cab are coming with me

[Blossom23]

How long have you waited

[Jenniferf49]

It's just a nightmare

[Jenniferf49]

This has been going on since June 2018

[Scoo1961]

Hi

I would appeal you should get it with fibro . It’s the forms there are hard to fill in good luck with appeal and good idea to get help .

Good luck

[bobbybobb]

Good luck with your appeal.

[Zebra101]

Hi Jennifer, PIP is designed to be and was a nightmare, I was on DLA with a lifetime award. Then PIP comes along, the DWP didn’t pay me for eight months, then after a court battle they had to back date my money. Fortunately I had a WAV (Wheelchair Accessible Vehicle) so I didn’t loose my car within a couple of weeks, and luckily Motorbility stuck by me and allowed me to keep it till it was all resolved.

As well as Fibromyalgia, I also have Ehlers-Danlos/Joint Hypermobility Syndrome, Dysautonomia, Prolapsed C5-C6, C6-C7, Compression At C8, Rotated Spine, Scoliosis, Spondylitis, Osteoarthritis, Osteoperosis, Bi Lateral Labra Tears / Hip Joints , Temporomandibular joint Dysfunction, Asthmatic, Dysautonomia - Autonomic Hypothyroidism, 4CM Hiatus Hernia, incontinence Urinary/Bowl, Postural Orthostatic Tachycardia and Bronchiectasis.

The Ehlers Danlos messed up everything pretty much, the is a major part Dysautonomia of it, symptoms such as dysphagia being the most scary when my brain forgets to swallow, or breathe.

I have Prolapsed discs in my neck - C5-C6, C6-C7, Compression At C8 which isn’t a disk as such it’s the junction box where all your nerves come in, causing spams, convulsions, feeling of sticking ones thumb in a chip fat fryer, prolapsed lumbar spine L4-L5 compresses L1, Sciatica, Rotated Spine which means my rib cage on my left side is pressing on my heart and lung, Scoliosis, Spondylitis, Osteoarthritis, Osteoperosis, Bi Lateral Labra Tears / Hip Joints, Temporomandibular joint Dysfunction, Autonomic Hypothyroidism, 4CM Hiatus Hernia sticking into my diaphragm not helped by the rotation of my spine, eosinophilic colitis, Urinary/Bowl intermittent incontinence, Postural Orthostatic Tachycardia, Super Ventricular Tachycardia, Angina, Bronchiectasis and I’m a Chronic asthmatic.

Even with all that I lost my benefits and had to have the reconsideration telephone call, which I recorded as evidence, that was unbelievable. I insisted this couldn’t have been my assessment! And he skipped through it, dismissing additional evidence and basically telling me that I didn’t get up because I didn’t want to, I didn’t wash or dress because I didn’t want to and the list goes on 😱

They will say NO first time round, and probably even second. They want to push you to appeal because they are hoping that as with many before you that you won’t!

My friend with MS lost half of her allowance, took her disabled badge off of her too, she was too scared to appeal in case she lost it all.

Long story short, I sent everything to my MP, including a new assessment from my OT and within a few weeks it was sorted.