Feeling alone😥

[MpJp]

First time using this sort of thing after suffering for years with fibromyalgia finally been officially diagnosed also suffering with depression/anxiety/panic attacks feel so alone at this time no one around me understands how much pain im in hard to explain☹

[Hidden]

My first husband took the word of a physio who believed women dont, get ankylosing spondilitis and he and his family mocked me for years, when our daughter and my younger sister were diagnosed he soon changed his tune,he never apologised I had divorced him by then for the cruelty and my mother told him it was real as she had been to hospital appt, with my sister...I would take someone with you who is in denial or doubt your illness at your next appt be it hospital or g.p and ask the doctor to explain how painful this invisible disease really is..

[SusieJo1948]

Please don't feel alone or lonely. We are here for you and as long as you have us we will be here for you. We won't let you feel alone or lonely.please if your feeling that way write one of us. I promise we won't that you feel that way. We care and you can talk to us. We will be here for you.Love susiejo1948

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[fibro1]

Hi im sorry to hear that you are feeling so down. I completely understand this my first support group too. A few months ago i was working full time and studying at uni now my days are spent trying to manage the pain its awful. you're right very few people know the extent of the symptoms or the devastating effect it has on your life. try to stay positive i hope this works for you.

[Dizzytwo]

Hi there let me wish you a very warm welcome to the group. You may want to lock your post to keep what you post private to this community only. If you wish to lock your post this link will show you how to lock it.

healthunlocked.com/fibromya...

Locked posts tend to generate more replies

I have suffered from fibro for over 30 years and am now a wheel chair user and none of my family understand.

So I can empathise with how you feel. It can be be hard and it can be lonely and it an be what you make it 🤗🤗

I no longer try to make anyone understand to be honest. But one thing I know the people here understand. Please pull up a chair and make your self at home your among friends xx

Momo

[iansumuk]

I can fully relate to the depression/anxiety/panic attacks, I spent a good 10-15 years with that! I didn't believe it at the time but there is a light at the end of the tunnel. People will tell you to just get over it, get outside, get exercise, go for walks, etc. etc. I know how annoying that is. They just don't get it unless they've been there. My CPN at the time explained to me about the comfort circle we all have and how mine had basically shrunk to the point of almost anything was outside of the comfort circle and so the "fight or flight" responses kicks in when it isn't needed and that leads to anxiety attacks. Little by little I expanded that comfort circle, until I was fully able to return to a normal life. You can do it, you won't think you can, but as someone that's been to hell and back many times with it, I can honestly say you can. Hypnotherapy helped me a lot...it was worth the money, it's not an instant cure but it can help you address little things..for me it was just being able to go into a shop without having an anxiety attack.

[Shana75]

Hi MpJp, sorry to hear that, I can relate to how your feeling, it does feel very lonely at times, I'm in the process of getting assessed for fibro but I'm sure it's something I've had for a long time. I feel like all I do is moan about the pain I'm in and due to the pain being on and off and it being in different places it makes me think that people think I turn it on and off to when it suits me which couldn't be further from the truth, that's why I have joined this group, so I can talk to people that understand. I really hope joining this group will give you comfort, support and some reassurance.

[MpJp in reply to Shana75]

Thankyou you describe exactly how it is for me glad to know im not going 'crazy'💕

[Shana75 in reply to MpJp]

Ive just joined the forum today and from what ive read people on here seem pretty supportive, thanks for replying and i hope your ok 🙂

[louemrog]

I too can so relate to your post.. it’s so hard when people just don’t understand.. but like others have said, everyone here understands and knows how it feels.. you are amongst people who get “it” ok

Xxx

[MpJp in reply to louemrog]

Thankyou means alot 💕

[vanillamiller]

Hi there well I get u and send some hugs

I have spondylitis in my neck it was incredibly painful I constantly think the nhs think middle aged women are just melodramatic I also have thyroid issues that make me feel crap.

Just be kind to yourself and take care there are people in this world that are nice xxx