Jan you there : Wow fantastic we got... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Jan you there

16 Replies

Wow fantastic we got there there I watched it today it went through I now prey all of you that are not diagnosed will be able to to the girl on the news described it perfectly last night Jan if you there I cried love you Andre xxx

16 Replies
Dizzytwo profile image
DizzytwoModerator

Hi, I see you are new to our group welcome :) May I ask are you looking for another member? If you know their username you could try sending them a private message through our pm system. I would think there are many members name Jan. Sorry I can't help you further.

in reply to Dizzytwo

Yea I’m ok you no me me well I’m so happy it went through parliament today x

in reply to

I don’t think i do know you, I am new here myself. But hi! I don’t think Fibro was classified as a disability though

in reply to

It did I watched it live it is now a disability Tonby Perkins MP got it through we100.000 signers helped it today go on you will see it But you got to diegnosed

in reply to Dizzytwo

I’m new but not new I’m old Missed you

Dizzytwo profile image
DizzytwoModerator in reply to

Is that you Erny 😎 if it is you forgot to lock your post 😋

in reply to Dizzytwo

Hello yea it’s me I’m going to be good promise We are now dissabled went through today I watched it on telly got passed through parliament Over wealminv vote How are you

Dizzytwo profile image
DizzytwoModerator in reply to

I'm ok thank you, do you want to leave your post open? You know it can be locked for privacy reasons. And you do tend to get more replies when it's locked. But it's up to you if you prefer it open.

Glad to hear your on your best behaviour I've got my eye on you juggzy 🤣🤣 where do you find your names from lol I hope you have been keeping well.

in reply to Dizzytwo

I have Dizzy but been pretty ill what with the tinnitus too and the pain been awful But you no me I do try to live a normal life stay out a wheel char I’m still using those wheeled walker things 🙏🏻

Hello Juggzy, who are you after? your message sounds particularly emotional are you ok?

Mark8 profile image
Mark8

Morning you can watch the hole thing on you tube and the bloke done a great job and I would say to you to watch it its about an hour and half long try and see what you think but so pleased there starting to understand what we are going through we're not blaging and we need help and understanding to get thru what we have to wish you all good luck x

Mdaisy profile image
Mdaisy in reply to Mark8

Did you watch the AFMCG link out of interest? :)

in reply to Mdaisy

I watched the full parlement debate and then printed it out And it ends in say This house has concierd that fibromyalgia as a disability We are mdaisy at last go Tony link on my post

Mdaisy profile image
Mdaisy in reply to

Sorry but as desquinn will confirm - there has been some confusion on this. FMAUK has explained on another post in reply to another member

Mark8 profile image
Mark8

Yes watched it on you tube and was really good and well worth watching the bloke that got it that far was great and done the case good lets hope that the start of more understanding x

Mdaisy profile image
Mdaisy in reply to Mark8

Ah good glad people can access here too - for anyone that missed it :)

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