Feeling 😢

Hi all, I'm new to wrighting in this forum how ever I Have spent months being a spectator on the side line. But have felt the need to write now, as I'm feeling very low lately. And cant seem to pull my self together. Everything is such hard work its like drudging through thick mud on a daily basis to get to the end of the day. My body aches, my joints specially my ankles feel swollen but aren't, my muscles are tired my hands and finger pain me. My grown up children understand me and this awful condition more than anyone else and can see when I'm having a bad day which at the moment feels like its gone on for weeks. I feel I can't tell people how I feel as you cant see this condition only feel it, and 9 times out of ten we look ok to the outside world. Sorry for ranting but feels so good to put this into words, to fellow sufferers. Thank you for taking the time to read my words

[Hidden]

Hi, Daffodil, I'm afraid I can only empathise, as I feel the same. I was looking at my hands and fingers the other day, wondering how can they feel swollen but look normal. I had to go out yesterday and amazingly my hair looked quite decent (!) a few smartish clothes and I looked fine from the outside, but inside was just focusing on putting one foot in front of the other. Had no interest in looking around the two shops I went to, just got what I'd gone for, home within an hour and utterly exhausted for the day.

And as you say, this goes on day in, day out.

I try to look for any brightness there is. A good TV programme ( not many of those) I've recently discovered the Moth Radio Hour on 4 Extra which is good. I light my log stove every day and have lights everywhere I can in the house. Anything to add a bit of brightness.

The long grey days certainly don't help with fibro.

Have you tried a few muscle relaxers such as heat pads, hot Epsom salts baths etc ?

[Hidden in reply to Hidden]

Hi hollyberry.... thank you for your ideas. I agree with the tv theres not much on worth watching. Spring is only round the corner you can see it coming, lighter mornings for work and lighter evenings to enjoy 😉

[Fra22-57]

I too just sit on the side lines and read others posts.Have you been offered any medication or help from your GP. I was diagnosed by a rheumatologist. I couldn't believe I had Fibromyalgia. .I thought doctor was crazy but I soon got much worse.He hospitalised me for a week and I was on a steroid drip.Then he told me I had RA too.but then I got more drugs.some helped n some never but my point is I got to see the rheumatologist who is more knowledgeable than a GP.

I tend to try do more on good days which then am floored for others.I could only dust a few windowsills but now can do more.I can't talk to family as they only understand for that day but my husband is super and looks after me and if he is ill I try to do the same.

We just plod on but to talk helps

[Hidden in reply to Fra22-57]

Hi Fra22-57

Thank for replying...boy are you going through it. Well done for trying what you.do do. 🙂

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya..., hi there sometimes we need to share it’s horrid for us when the Fibro flares seem to go on for ever, I take each day as it arrives as not too put any pressure on myself as home is a good place to be when we are struggling especially like yourself it feels never ending. I am glad your family are in tune and I hope they give you all the support you need, have you thought about checking in to see your doctor/practice nurse for a catch up , I know what you mean people say ohh you look well , but Fibro is not something they see unless you are laid up in bed. Glad you posted ,a good way to have a chat and sometimes a good rant can make us feel better. If you would like to lock your posts I’ve posted a link above , it then only be seen by our forum, take care xx

[Hidden in reply to YASMINTINA]

Hi thank you for replying. It does feel good to put it into words on here. I am back to see the doctor next Friday. I feel the tablets im on aren't helping. But then again are they? X

[skit]

Well done for putting fingers to keyboard! Flare ups can last a while annoyingly. Take time to do things. Please put yourself in the fresh air daily. Our houses can become prisons for us but only we have the key!

Self talk to improve your mood like' I am able' I will walk out today' etc.

Swelling is not my understanding of Fibro. Assume that other conditions could be an issue with the Fibro? Laugh a lot love a lot look at comedy corner !

[Hidden in reply to skit]

Hi thank you for the positive reply its very much appreciated 😉