Hi all

[Fudge2018]

Yesterday I was diagnosed with fb have been reading things on the internet but it’s dont tell you must how to cope with it on a daily base has anyone can tell me I would be grateful

[Hidden]

Hi there everything & everyone is different perhaps you should be referred to the pain clinic they'll help just your needs as much as they can to learn you how to cope better and help prevent illness from getting worse if its possible 😺,but a lot of ppl get helpful support or suggesting s on here so you're in the right place.🙊👩

[Fudge2018 in reply to Hidden]

Thanks I will look out for the information

[Hidden]

Hello my love, so sorry to hear of your diagnosis. You will learn to cope with it. Initially you have a hospital appointment, they diagnose you, give you some pain clinic sessions, then discharge you. Your GP will be of little or no use, and possibly treat you as a mental patient. The good news is you have found us already😊 Do not worry, we are here for you, day, and many of us all night😂 It’s nice to meet you and God Bless You, Emee x

[Fudge2018 in reply to Hidden]

Aww thank you glad I have some one to talk to on these bad days all you have said has been done just trying to get my head around it all and to know the best way to lead my life again x

[Sue1955 in reply to Fudge2018]

Take one day at a time, and pace yourself, everybody is different and experiences are also. Listen to your body and rest when you can, in the beginning you think you’ll never cope but you will life just changes. It’s about 25 yrs since I was diagnosed but not all days are bad I worked p/t till 58 so don’t despair. Gather all the info you can some will help because you’ll think that’s me and some won’t or I should say won’t connect with you. And if your gp is not helpful as sadly they are not all helpful with fibromyalgia try all the ones in your practice till you find the help you need. Good luck for the future x

[robpw]

How do you cope ... you just learn too I guess : it’s not easy some days will be awful and some days you’ll feel great but you have to learn where your limits are and know when to say no that’s enough. You learn to juggle between the old you and the new you and friends and family as well as work and illness.

You learn very quickly that people don’t understand ... how getting something as simple as a cold can wipe you out.

But it’s not all doom and gloom - you learn that your not alone , there are many of us all willing and ready to support. You learn to enjoy the good days , find ways to conserve your energy whilst doing what you need/want to do.

I think you will surprise yourself at how amazingly well you will cope.

[Fudge2018 in reply to robpw]

Thanks I think at the moment it’s getting the balance right at the right time getting use to the condition too .

[robpw in reply to Fudge2018]

Lol had this for almost a decade though been diagnosed for 4 and I still don’t think I have the balance right .. there are a lot of outside pressures .. take time to digest the news and don’t be afraid to ask questions etc

[Bemoresquirrel]

I think pacing yourself is the key, along with adapting your life, to make things easier.

Learn to stop before you get too tired. Spread jobs out over several days, or do them sitting down or let go of things that demand too much energy (hard I know). Sometimes, we have to say "no."

Listen to your body, but don't ignore it and do things anyway. Battling on isn't heroic with fibro, you just risk sending yourself into a flare up (something that took me a very long time to understand).

Accept that you have it and vow to make the most of life, even if that life ends up being very different to the life you had before.

When we can accept it, we let go of all the angst and feelings of "why me?" and can find joy in the little things in life. Expressing gratitude for 3 things in your life each night before you go to sleep, can bring about an amazing change in the way you feel. When we feel positive, we feel less pain!!

Take control of your fibro, don't let it control you!

[phlebo123]

Hello and welcome

May I suggest that you look at a website called paintoolkit.org which helps with suggestions about living with chronic pain. If you go to the menu, click on the section entitled "tools", you will find a series of videos that deal with topics such as pacing, acceptance, etc and how to incorporate these into your everyday life. It is a big learning process, finding out how to manage your day-to-day life, in order to minimise your symptoms. I find that making lists and planning ahead is important for me, avoiding stressful situations, and learning to say NO (in a nice way!) when other people expect too much from me. Take care xxx

[Hidden]

Hi Fudge2018 have you been seen by a hospital consultant yet? I oersonally made myself a word documetn on my pc and saved it in files so that i can go back to it and adjust it.. I have said with no stones unturned how fibro cfs m.e and now sjorgens affect me daily, I have said about not being able to climb stairs etc etc, please PM me if you want a full list of things to say and things not to say I will be more than happy to help you.

[Fudge2018 in reply to Hidden]

Thanks yes I’ve been to specialist was told Wednesday. I had fb just getting my head around it and how am going to go bk to work and when with me being in pain

[Usandthem]

Hi there is a boggling amount of info on the net but try not to stress too much😊you should listen to your body and chill when you need to. I take Pregablin 225mg and duloxetine 120mg in the morning, codine when required through the day then 225my pregablin at night with lidocane patches. Talk to your GP about meds you can take as we are all different. 😊I work full time but do have flares when I just can't move!! My employer is really supportive when I am really sore and have to be off work 😔hope you find some relief! This forum is brilliant for advice, and everyone is here to listen and support you! It's good to talk to fellow Fibro Fighters who understand what you're going through. Sending you peace and love 💕✌