Hi all: Hello everyone. I was... - Fibromyalgia Acti...

Fibromyalgia Action UK

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ian1966 profile image
8 Replies

Hello everyone. I was diagnosed with fm a year ago. I am a 49yr old grandad who is fed up with this horrible disease. I still haven't got my medication right. Apart from that, how is everyone?

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ian1966 profile image
ian1966
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8 Replies
Betty67 profile image
Betty67

Hi

Doing OK but have had workmen outside all day and the noise was getting to me so glad they are gone, unfortunately not finished so may need to go out tomorrow to get some peace.

All the best

Hi Ian, pleased to meet you and welcome.

Im not too good at the moment, but it will pass.

Bed time so nite nite see you tomorrow.

Sue x

clare_hart profile image
clare_hart

Hi from me too Ian. Pleas know that you are not alone. I am finally getting the right meds to help, but my GP ios cutting me off my pain med, Vicodin (hydrochodone) despite that the Neurontin is not easing it all. Well, he won't know that till my appointment next week. But he was adamant about it and I don't know how to convince him otherwise. I have never abused it and use less than the amount he gives me monthly.

SO, yeah, it is hard to get a truly empathetic doctor who understands this desease. If you have any choice with with picking doctors - far as getting one who cares - move on if you have to. Get as many consultations as you can, so they can support your needs and maybe order meds you need.

I know there are pain clinics in the UK which might be able to help. I went to a pain management specialist here, but since I was on Vicodin already and not willing to take Neurontin (pregablin) at the time - considered it risky with my particular mental health disorder - had no other recommendations for anything I wasn't already doing.

If I am not getting the care I need, I will go back to him and see if he will prescribe pain meds, or at least tell my GP I need them.

So anyway, I am rambling on, all about me, but maybe my story will answer a question or two about now or what may happen in the future. Keep coming back to this foprum. Members are knowledgable and supportive, and they care a lot for everyone in the community.

There is lots of humor too. If we don't laugh at ourselves, who will? (other than those who laugh derisively and there are too many of them, ignorant as they are of pain, disability, and "invisible" deseases)

TheAuthor profile image
TheAuthor

Hi ian1966

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hoe that you find the forum useful, informative and loads of fun! I have pasted you a link below to our mother site, FibroAction which is loaded with useful Fibro information:

FibroAction Website:

fibroaction.org

I genuinely look forward to seeing you around the forum.

All my hopes and dreams for you

Ken

Angelseven profile image
Angelseven

Hi Ian

Welcome!

This is a brilliant forum for information and empathy.

You will get lots of laughs (humour is a great healer) and help and support when you need it.

You are not alone. I wish you all the best.

Kind regards

Hi Ian and welcome :)

Good place to be to distract yourself from the woes of being a fibromite :)

mimiwen profile image
mimiwen

Hi Ian, welcome, it's good to meet you.

I hope you're not feeling too bad today.

I'm going through a very bad few months, been getting worse. The time of year doesn't help - short days, very cold. I can't cope with cold at all.

But spring will come in the end! And at least it's beautifully sunny today.

Wishing you all the best,

Mim

chatterbox-69 profile image
chatterbox-69

Hi Ian love nice to meet you I love this site so friendly as well I know with illness you can feel alone and it's awful but you never feel like that here look fforward to chatting to you love jillxx

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