Hi everyone

[Davewilliams]

Hi everyone, joined here in February but never introduced myself.....I'm Dave I used to be a mental health nurse,I have battled with fibromyalgia for 8 years now and all I seem to find is here's some pill and come back in a few months and tell me if they've worked is that me or what??

[Hidden]

Hi Dave,well the pain is first thing I think most would agree ?that we all want rid of as much as they can,I was told about the pain management class and referred to the pain clinic and a cpn ,nice of you to introduce yourself thanks,how's your pain the now,when were you diagnosed and how do you feel your coping with it all?.

[Hidden]

Just noticed you've had this at least 8months

[Mandypandy1969]

Same here. My g.p. Just keeps increasing the dose with gabapentin and it does nothing to help. I am going to ask for a complete medication review as never had one. I will be telling him I want to get off gabapentin and to give me another alternative.

[Marz]

Hopefully low nutrient levels have been ruled out. Maybe a good time to check VitD levels before the sun disappears for the winter 😊 From my reading a level of 100 is good in the UK. VitD is anti-inflammatory and a pro-hormone so more than a vitamin. Mine tested insufficient even after 4 years of living in the sun !

vitamindcouncil.org

[honeybug]

Hi DaveWilliams 😊🌸🌿🦋

Welcome to our group.

I’ve had FM since my twenties. I wasn’t diagnosed until nearly 30 years later. I was given ,Celebrex and it worked wonders for me. Then the USA 🇺🇸 medical specialists deemed it a meds of last resort due to the numerous dangerous side effects and now it is a tier 3 drug. As soon it was out of my system I went downhill. If I could get it approved for me again it is cost prohibitive now.

I’ve always told my doctors I want quality of life over quantity but that falls on deaf ears.

I hope and pray you can get it sorted soon.

Take care and best wishes.

😊🌸🌿😊🙏🤗💗🙏

[Dizzytwo]

Hi there Davewilliams here's wishing you a very warm welcome to our friendly fibro group. I am guessing your GP as offered you other than pills. maybe a pain clinic appointment or CBT I was offered a mindfulness course. My GP has now got me into a counselling one to one program. I am just wondering if it would be worth talking to your doctor if or what alternative help is out there for you.

I see you have left your post unlocked. You may be happy to leave it like that and that would be fine. But for privacy reason you may like to lock it. So only this community will read your posts. Also it does tend to generate more replies when members see a locked post. this link will show you how to lock this and future posts

healthunlocked.com/fibromya...

We take your privacy very seriously I see that you may be using your own name again for your privacy if it is your name you may wish to think about changing it. You don't have to that's up to you I hope you have a very pleasant evening .

Momo

[woodycacti]

I have found my neurologist is the most understanding and helpful.

[humdeedumb]

Learning to cope with it is your best bet ,since most pills that might help alittle have side effects and not worth taking if your still in pain ,I mean that's how it's been for me anyway and I've been suffering my whole life from early 20s and I'm now 60 I do cupping therapy on myself and sometimes a tens unit but there a pain in the butt ,but they do help somewhat. I just take 2 over the counter sleep aids so that I can cope on a day to day basis alittle bit better when I get decent sleep.