Pregablin

[Forgetfulnana]

I have recently been put up on my pregablin to 300mg twice a day it’s been about 6 weeks now and I’m not sure I like this dose. As much as I was always tired and in pain before I feel worse now than I did before !! I’m weighing 14.7 and very unhappy about life. I do suffer from anxiety and depression too thank you for your feedback and comments xx

[Amy65]

I was at pain clinic and they wanted me to take 1600 gabapentin daily .couldn't tolerate that dose saw my rheaumtoglist he told me to go back on 300mg twice a day it helps .if u feel it dose is to high ask ur gp to reduce them amy

[Forgetfulnana in reply to Amy65]

Thank you xx

[Forgetfulnana]

I am seeing rheumatologist in 3 weeks so will give it till then anyway and then decide thank you for the info it’s been really helpful x

[Amy65]

Yea I was ment to be on 600mg three times a day of gabapentin .bearing in mind I have cronic kidney disease to ckd stage 3 rheaumtoglist wasn't surprised when I told him I was in bed for 3days very sick .far to toxic a dose for me I struggle to take 2 300mg daily lol amy

[Panchapooch]

I was put on this and felt so ill and dizzy like walking like a crab and hanging on to door frames. I still had the pain so the tablets were not working for me and I gained loads of weight. My blood doctor as I call her for my Aps and lupus anticoagulant said they are not working for you so she weaned me off of them, best thing I ever done.

Marilyn

[rosewine]

Unfortunately, they don't suit everyone. The first few weeks I took them I honestly felt I was on another planet neither awake nor asleep, I felt slightly nauseous all the time and couldn't think straight and just wanted to sit around. I did realise that after a couple of weeks my horrendous pain was having the edge taken off it so I carried on taking them. At about two months most of the horrendous side effects subsided as long as I didn't increase the dose higher than 50mg in the morning and 75mg at night. If I am having a flare I increase by 50mg but get that woozy feeling. I was started on a very low disemof just 50mg a day as I often react quite badly to certain drugs eg I can't take antidepressants.

It has helped me with the neuropathic pain and muscle aches, not taken them away but briught them down a free notches and as it is the only thing that has helped I am sticking with it. I did find that from having no interest in sweet things (I was more a savoury kind of girl) I suddenly developed a sweet tooth so have had to really ration myself. Many people have reported putting on weight within a very short time of starting the tablets. Sometimes people get on with Gabapentin better than Pregablin.

I hope the rheumi can help you. Do let us know how you get on.x

[Forgetfulnana in reply to rosewine]

Thank you I will xx

[hound67]

I was taken off pregabalin after seeing my GP. The reason why? My husband insisted I went because he thought I was getting dementure! Found out that pregabalin can cause memory loss!! Watch out for this Forgetfulnana

[Forgetfulnana in reply to hound67]

I have been joking for a while about dementia and yes it’s got worse since dose change. I struggle to remember names of things, speaking worlds that’s don’t make sense and even have forgotten I’ve done things or said things or been told things. I thought it was age as I’m 48 now but it makes sense that it’s the medication

[hound67 in reply to Forgetfulnana]

I can only say that coming off the pregabalin my memory has much improved. Glad I proved the husband wrong lol

[Punkypurple]

I am also coming off pregablin. I was on 200mg. With doctor's help I have reduced to 100mg and in a few weeks I will be on 50mg then off them. It is dangerous to just stop them. You will need your doctor's help to reduce mgs. I found I had more side effects. And pregablin did nothing for my pain. I have also had rapid weight gain.You say you suffer with anxiety and depression. Are you getting help with this? Having fibromyalgia is bad enough without suffering with other illnesses on top. I am the same and have eventually got help. I know it is a difficult illness to understand and getting help can be a uphill struggle. I hope you have good friends to talk to/with. And you can reduce the pregablin if it's not working for you. Xxxx

[Forgetfulnana in reply to Punkypurple]

Yes I am managing my anxiety and depression and have people to talk to. This place is that to talk to people about their experiences etc thank you

[Watch1e]

I have been on pregabalin for a good few years now. Felt a bit rough initially but that wore off and although I’m a bit forgetful I’m much worse when pain is bad 😅 I have played with the dose with GP and Rheumatologist support over time - I am now prescribed 600mg a day but vary it depending on whether I’m going into flare up - 200mg a day maintenance, increase to 400mg a day if I can feel flare up starting to try and catch it and 600mg a day when in fuyflare up. I’m one of the lucky ones where it definitely works- it’s made a huge difference to the point where I’m now able to work again. Might be worth persevering a bit longer to check whether it works for you? Good luck 🤞x

[mel_c1980]

I was on Gapapentin before Pregabalin and felt like I was living in a cloud. When I changed to pregabalin it was far better for me. But doctor said everyone is different, some find it the other way round, some can’t tolerate either, but the key is to talk to your doctor. They should help you find that magic dose so to speak. Perhaps the lower dose pill in a morning and the higher one at night? If you have old ones left maybe try this combination out for a few days and see if it improves any?

[Jamiestarr72]

Hi there.

I suffer from chronic back pain and found that the only drug that helped ease my pain was pregabalin. The down side is the side effects were horrendous. Feeling spaced out, groggy and severe depression.

I made a conscious decision to stop this even though it meant living in severe pain constantly. (I guess my mind being clear means more to me than my decrepit body.)

I know it's hard to do but please try to look for alternatives to drug relief. I had 3 cardiac arrests, have lung and kidney ailments because of drugs and the final nail in my coffin is being too drugged up to notice my family break apart and now I'm reduced to living in someone's spare room and bathing in hotels every couple of weeks but the worst is not seeing my children on a regular basis.

I wish you the best going forward and hope you find relief for your pain.

[Mikemorgan62]

I couldn't use pregabalin but gabapentin works fine.