Pregablin coming off

[Fificat50]

Hi everyone

I have started to wean myself off of the above which is causing all types of pain everywhere but now thinking perhaps I should be overlapping it with amitripline so there is no gap as I have seen that some people have been on both but not sure if I want double the side effects ?

I would be grateful for your thoughts or shared experiences.

Thank you xx

[Hazel_Angelstar Administrator FMA UK Staff]

Are you weaning off under the guidance of your gp or on your own? Have you been prescribed amitriptyline to take - your gp should have explained if you were to come off one before starting there other, or if they could be overlapped

[Fificat50 in reply to Hazel_Angelstar]

Hi yes my GP knows and he suggested coming off PG and starting the other one but he warned I would be in pain as it can take up to 6 weeks to feel any benefits so i would need a painkiller but did not suggest which one so hence the question about overlapping. Thanks you x

[Fra22-57]

It is extremely hard to reduce.I seem to be extra sensitive to any change and even reducing by 25 mg sends me very sick. Has your doctor given you a reduction plan so less of a shock to your body

[Fificat50 in reply to Fra22-57]

He suggested going down to 25mg then every other day... although I was planning to reduce by 10% every week but I agree with you it’s really challenging to reduce as my body does not like the changes x

[Nannainpain]

Sorry to learn of your pain whilst on Pregablin. Do you think the tablets have made the fibro worse then? I have been on them for about 6 weeks now & at the start it was like a miracle drug! Free from any pain, then gradually it got worse. Dr increased the dose & im now experiencing stomach pains at night/early morning together with the back pain which started this all off! I experienced a few days of extreme dizziness when it was increased although that has settled down ( I’m not sure if that was the tablets of the vaccine that caused that!)

It’s all a balancing act isn’t it? I do hope you are able to get sorted with your pain & find some relief. I do know someone who has been a fibro sufferer for a while & she takes amitripline for sleeping & she find that works for her. However no one person is the same so best get it checked out with your Dr. Good luck!

[Fificat50 in reply to Nannainpain]

Hi yes it was good at first but I started getting weird side effects such as the dizziness and difficulty climbing the stairs and stomach issues. I know PG is used by many and there are lots of different thoughts on its use. It’s a challenge to find the right medication that suits. My dizziness got so bad that I ended up in A&E but had to put it down to PG. I hope it works for you xx

[Angel1961]

Hi I also tried to come off pregabalin this week because I felt sleepy all the time and I was still in pain, I have been on it for 3 years and made the mistake of just taking half of what I was taking, but I was really dizzy, had a lot more pain and looked on YouTube to see all the information on withdrawals, so I'm going to go to the GP now and do it properly 😊

[Fificat50 in reply to Angel1961]

You have to be careful in lowering/ weaning off PG as you can’t do it quickly as there are lots of withdrawal effects. I have been researching and there are support groups who can help if you wanted their details ? X