Finding life frustrating

[Nutsy]

Hi everyone, I’m new here!

Recently I’ve been diagnosed with fibromyalgia (July 2018) it’s been ongoing since last October after my gal bladder op and possibly even before that!

In the last month everything seems to have intensified quite dramatically 😓 I’ve been on a few different meds which some helped the pain but made me feel miserable and others just made me feel miserable altogether.. I have my cbd oil which if I’m honest has been my life saver but as a single mum of young kidlets this is an expensive luxury . I have been trying so hard to get some recently gained excess weight off but I always hit a roadblock with exercise! ( one-two days of light to moderate exercise leaves me imobile for several days !) diet is not so much an issue now as I use my slimming world books and have almost altogether cut out the reasons I gained in the first place ( chocolate and alcohol & far too many take out meals).

I’m feeling very sad at the moment with all of this as it affects my time with the children and also my partner as when we met I was almost a completely different person, I was slim, I had endless energy and I was happy in myself .

I guess I’m just at a loss as to what to do now . I do have appointments coming up at the hospital although while waiting for that I’ve tried so many meds and self help things I’ve lost track .

I think I’m just missing a key part that ties things together and really would appreciate any advice going .

Thanks for reading ☺️

[Misty05]

Hiya Nutsy! My mum suffers from fibromyalgia and she sticks to an alkaline diet, all plant based and she’s a vegetarian anyway, has things like ghee, fresh coconut, chia seeds etc very healthy. And she loves her yoga and Pilates classes at the local leisure centre. Try and relax, do some positive thinking and you will be fine. I guess the pain is the worst and you have to boost your immune system with lots of good probiotics. It works for her 🤗 wish you all the best xx

[Stevejj]

Good morning Hun. Two things that I have thought helped me was acupuncture and acupressure from a genuine Chinese chap. The effects were more energy and a little less pain though it was £35.00 a session and private CBT which really helped my mental state xx

[TeeDee63]

Hi Nutsy, I have also invested in private CBT which although very expensive has changed my way of thinking and alleviated a lot of stress ( still a work in progress) no processed foods, so as natural as possible and plenty of Greek natural yoghurt for its prebiotic benefits, plus its creamy and filling. Gentle walking and fresh air. I use CBD oil and amitriptyline

Altogether it’s taken many months to get this altogether but it’s makibg life a lot more manageable. I had to give up work, and I don’t have dependent children so resting is also easier for me, which helps, but I know a lot of fibromyalgia sufferers don’t have that luxury.

Stay positive and I wish you all the best.

[Marz]

Gall bladder issues can be linked to lowered metabolism within the liver caused by Low thyroid. Perhaps you have been tested and told your results are normal - however it is important to know what was tested and to obtain the results. They are legally yours. Testing only the TSH is not the whole story and 1,000's are missed. Some surgeries have records on-line so worth checking.

It just could be the missing link and at the very least worth eliminating. ☺

[Nutsy in reply to Marz]

Actually that is worth looking into ! I didn’t know that .. thank you for the advice ☺️

[Marz in reply to Nutsy]

The NHS rarely do all the correct testing - they say it is not needed ! These are the tests needed for a diagnosis - TSH - FT4 - FT3 & Thyroid anti-bodies TPO & Tg. You could ask for any bloodtest results to see if the TSH has been tested - that's mostly all they test sadly.

thyroiduk.org

If you can - take a look around the above link to learn more ...

[Nutsy in reply to Marz]

Thank you ☺️

[Hidden in reply to Marz]

I suspect I have low Thyroid issues but my doctor's only did the basic tests even though both my mother and older sister have been diagnosed. Hope other's get a better service!

[Marz in reply to Hidden]

TSH is around 2 in healthy people and the FT4 & FT3 is good in the upper part of the range. Anti-bodies - TPO & Tg - rarely tested in the NHS in spite of Hashimotos being the most common thyroid issue globally. Home Testing kits are available through the link posted above - click onto About Testing on the Menu. Thousands on Thyroid UK use these companies in order to have a diagnosis initially and then for the correct treatment with the correct testing.

Thyroid hormones are needed in every cell of the body so levels need to be optimal for us to feel good 😴

[YASMINTINA FMA UK Volunteer]

Hi there nutsy, welcome I hope you find the forum a good place to have a chat with others , I am seeing already you have had some helpful replies, yes it is hard going especially with family and fibro etc changes us , you sound like your symtoms have gone up a notch which does happen , hopefully there will be days or weeks when things simmer down for you. I think watching what you eat is very good, I think I’m going to take a leaf out of your book and concentrate more on what I eat , my flares are coming off and on at the moment and yes lack of energy gets to you. I hope the appointments go well, meds seem to be trial and error for most of us .il post a link to you if you would like to lock your posts healthunlocked.com/fibromya... take care x

[Hidden]

Hi nutsy

I have fibromyalgia too - and it was tough coming to terms with the impact on my life.

I'm on pregabalin, and although it solves some of the issues, it was contributed to more weight gain.

However, I recently went low carb (first 100g a day, now 85g) and this is really getting the weight off even though I don't exercise.

I do have 1 or 2 squares of dark chocolate in the evenings, but no more ordinary cakes, only 'lower carb'/high protein bread occasionally, no potatoes and no rice.

I've learnt to love a chia seeed/oatbran porridge and eggy coconut flour pancakes.