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Fibromyalgia Action UK
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Medication

I have been taking co-codamol for as long as I can remember. I hate taking them, they give dry mouth, my skin is dry and they give me constipation. I was just wondering what do all you other sufferers take for the pain.

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I tried co codamol but it made me sick. I’m taking Amitriptyline in the night and naproxen in the day 😀😀

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I also take amitriptyline at night but it does nothing but give me a little sleep.does naproxen help with your pain

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I take cbd oil the white oil from cbd brothers, for the first time in more years than I care to remember I sleep and feel rested when I wake up I have considerably reduced the co-codamol I take as well and hope to cut them out completely. I use cbd balm, I first bought it then I found recipes for it on the internet and make it myself. I rub it into my feet, legs and hands it helps with the pain it has numerous uses. The oil is not cheap but you need so little 2-3 drops a small bottle lasts 4-6 weeks. I couldn't face taking all the medications the consultant wanted to prescribe and wanted a non addictive natural alternative, he was very happy for me to take cbd oil as he knew all about its beneficial properties.

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I take co-codamol but they don't touch the pain anymore, also take Duloxetine, amongst lots of other meds for various things

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I think I tried Duloxetine years ago. That is an antidepressant isn't it.

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Yeah duloxetine is an antidepressant when prescribed at certain strengths... same as amitriptyline. But when prescribed at lower doses it’s a pain killer.

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Currently I take tramadol (50mg twice a day down from 100mg twice a day) and amitriptyline (20mg at night). In the past few months, my dr has given me naproxen (felt benefits from that straight away for a few wks then the effect tapered off and was doing nothing so I weaned off that), a course of steroids- presnidolone (I felt like I was getting my life back on these as the pain wasn’t overtaking my whole day) and duloxetine (I was taking this and amitriptyline at the same time and I felt sooooo strange - clenched jaw and awful shaking and exhausted so stopped taking duloxetine). Before I was given all these I was taking cocodamol like you, which used to help in the beginning then it was only taking the edge off and the side effects were nasty and the dr gave me tramadol instead. I wish you lots of luck in getting your pain under control. 💐🌹🌷🤗

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Are there any side effects with tramadol

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Makes me a bit sweaty sometimes 😲 The dr has told me to wean off them as they aren’t good for you. Don’t know how although I’m sure a quick google would soon tell me.

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How long have you had fibromyalgia. Also is this a UK site or US. Never know who I am talking to.

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I’m in the U.K. but there’s quite a few from both the U.K. and the U.S. on here. I’ve only had fibromyalgia for a year and been diagnosed recently. How long have you had it yourself?

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About 15 years. It started with problems with my neck. I had a slipped disc which wasn't diagnosed for 4 years. Then had surgery for it and when I woke up in Kings College hospital. I was in so much pain. They just didn't know what to do. They put my arms in slings. All my nerve ending in my hands were on fire. Then in 2006 I had a brain hemorrhage . and then it just got worse. It seems every time something happens it gets worse. It is full on now. Get pain all over. Can't even sit down for very long as it hurts the muscles in my bum. Hurts when in bed. I take 50mg amtriptolyline at 8pm to make me sleep but still awake at 1am. Go to bed and then up again at about 3am. Fall asleep in the chair. Wake up knackered. It is one big merry go round. Feel depressed but just try to carry on as normal cos you can't let it beat you. But sometimes I give in and have a little cry on my own. Well that's my story. How about you. By the way I am 71 how old are you

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Aw you poor thing. You really have had a bad run with your health. Chronic pain is worst! I’m 37 with 4 children at home. I totally understand what you mean about crying. I think I’m still grieving for my old healthy life so I definitely cry sometimes. It’s cleansing though. My partner says he can’t help me when he is tired from his days work. I would give anything to be healthy again and just be tired from a day’s work!! Do you have someone to help you when things get tough?

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Yes my husband is very good but I hate having to ask. Sometimes men don’t realise certain things need doing. I had 6 children but all grown up now. I don’t think they fully understand my condition and I am not the sort to moan about it. So Ithey think I am fine.

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I think your generation is a lot stronger than I am. I’ve had a bad run of things going wrong in my life, as I suppose everyone has, but I actually feel like I can’t cope anymore. My partner backs away from me when I’m feeling low... tells me I’m over reacting and he shouldn’t have to deal with all that. So not only am I feeling super sad. I’m super alone. I’ve no family apart from my children so it’s really hard to be as strong as you and as brave as you. I’ve even told him I’m suicidal and he say “well phone the dr” and he closes the door and leaves. I love him a little less every time he leaves me.

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I bet you do, sounds as if you would be better off without him. That is making you feel low with no self esteem. We all need a cuddle now and then and if he can't give that when you are feeling low he isn't worth you wasting your time on. I was in an abusive relationship for 19 years and had 6 children so I know how you feel. I felt as if a weight had been lifted when he buggered off. It is hard on your own but I felt much more relaxed.

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We’ve been together 20 years since we were 17. I have been wondering if we can have a future with this pattern. His mum says he not very demonstrative and that’s just the way he is and none of his family is good at emotions. She suggested we have a trial separation. I am tempted. But I know it will be hard to raise four kids on my own with fibro. Sorry about dumping al this on you I meant to tell you how strong and brave you are and I went down this road trailing you into it too. I admire your strength to leave an abusive relationship and raise 6 kids alone with fibro. You truly are a warrior!! Good on you.

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That's where you are wrong, I am not strong at all. I didn't leave the relationship he went off with my best friend. I couldn't leave, he was one of those that if I left he would find me and beat me up. I think there was an angel watching over me to make him leave me. I have grown a bit stronger being away from him.

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Oh no that sounds horrible Cakeygirl. I’m glad you got rid of him even though that must have been an awful time and to have been betrayed by your best friend too! You must’ve found it so hard to trust people after that. I know I would find trusting people very difficult if it happened to me. I’m glad you found someone who treats you good now. It makes a big difference to your life being able to share the good times and the difficult times.

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Funny enough I was ok I just felt so happy that he was gone. He knew where his butter was buttered and wanted to come back but I said no.

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Where do I find community only please

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What personal information do you mean?

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I’ve wrote twice on this forum about my mental health and I am a very private person and twice I’ve been caught out by this locked thing. Ooops. I better keep my mouth shut in future.

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Hi I'm just woundering how long you have been taking co codomal for....iv been on it for around 2 years and starting to worry about what it's doing to my liver.....I occasionally get pains in my uper right abdoman....struggling to get a doctors appointment at the moment gave you experienced these pains from taking co codamols

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I have been taking them for about 12 years. Could the pains be related to your stomach? I had a severe bleed in my stomach where I had severe pains and vomited about 3 litres of blood. Was taken by ambulance. I had a stomach ulcer. Very scary. See what your GP has to say.

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Co-codamol. Same symptoms. But only one that helps with the pain.

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Omg that sounds really scary....I hope your ok naw it's such a struggle with pain.....it's quite possible I suppose it could be my stomach I hate taking medication coz you read so much about how it can affect your organs....I finally have doctors today so hopefully they can reassure me........12 years is a long time maybe I'm just panicking xxxx

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Good luck

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