Swelling / oedema : So I went back to... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Swelling / oedema

6 Replies

So I went back to see my GP last week as my pain was worse and she has decided to second guess my fibromyalgia as she believes you do not get swelling with fibromyalgia

Now I have done my research but I would be very keen to have your in put. Do you get swelling??

6 Replies

Hi

Thanks for your reply but why will it be a nightmare??

Oh phew I thought you meant it was going to be a nightmare with a rheumatologist. I was about to go into panic mode.

I get swelling around my painful joints but some days I have generalised oedema. Even my face is puffy. It’s dreadful 😩

Mandypandy1969 profile image
Mandypandy1969

my immflamation rate is 73. my g.p. told me fibro doesn't cause immflamation. he mentioned polymialgia then said I was too young. I have been put on a course of steroids for 2 months to see if they help at all as had a lip biopsy which came back inconclusive for sjogrens disease. they have helped a bit as not so stiff first thing in the morning and also managed to do a couple of little jobs in the bungalow muscle aches, fatigue no different. as soon as I do something though my body suffers afterwards but been nice wanting to do a little something as not felt like doing anything but sleep. sorry, I do go on. xx

Rose54 profile image
Rose54 in reply to Mandypandy1969

HI

If its PMR you still need to rest and pace

Your Muscles will not be able to handle to much exercise

Steroids deal with inflammation

Fatigue is caused by underlying illness

Normally need 2 to 3 months on starting dose before feeling any better

in reply to Rose54

Morning rose sorry for the late reply

What is PMR?

Rose54 profile image
Rose54 in reply to

Polymyalgia Rheumatica

Symptom's can be similar to Fibro but its Autoimmune and can be treated also will burn itself out after a few years

Normally people aged over 50 years get it .

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