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Fibromyalgia Action UK
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Pip

Finally got my pip letter the other day. They have decided the I am eligible for it. It's a massive weight of my mind. Have any off finally got your decision yet and how did you get on.

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Well done so nice to here that people get what they deserve xx

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So pleased you were awarded PIP.

Was yours a new claim or were you previously on DLA?Did you have an assessment?I am still waiting a year on after an assessment where the HP lied throughout the whole report -this was despite being told that I would not have to attend any more assessments,was on DLA for 19 years and indefinite and I was awarded ESA based on my claim form without an assessment .My conditions and disabilities were accepted for ESA,and have not suddenly cured themselves -infact got much worse ,

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Hi Rainbow 58. I was previously on dla indefinitely they told me. Yeah I had a face to face assessment the lady that did mine was a nurse she was really nice. She was really surprised that I wasn't getting the care side on the dla and that I was only getting mobility. It was just a few things that she noted in her report that wasn't right that being she said I had strength in my left arm after doing some exercises but never did any, and said that my memory was ok as I'd answered the questions she had asked me, but mutt memory is terrible., when my son read the report he started laughing and said mam your memory is shocking you can never remember anything. Lol. I too am on esa and the assessment I had for that was disgusting the assessor was vile, he like your lied on everything, they stopped my money long story short I appealed and won and got it all back dated. Sorry for the long winded answer. 😃

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Hi Debbs73

thats the same crap I got.For over 20 years I have had arthritis and raynauds (plus Fibro which was only diagnosed in 2005)and many other symptoms since then which remain undiagnosed,The assessor who claimed he was a paramedic said I had no deformity in my hands and full power.I cant hold a pen or cutlery for more than a couple of minutes and dont have the strength to open jars/bottles/cans .

He also said I had good memory and attention span as I answered all questions which was a lie in itself as I needed prompting to answer and had to ask him several times to repeat himself.He twisted everything around to the opposite of what he was told.

In the descriptors he put the same for every activity-even when things did not apply to an activity.

The best lie was that he claimed to observe me "lay papers on the floor and sort through them from a seated position!"

I was sat at a table with my legs under the table facing him so at no time could i have done that-nor was I physically able to.According to him "i walked miles across fields with my dogs" when I live in a town and only walk them to a nearby playing field .I cant walk now without the aid of a stick and have a carer in twice a week to prepare food for meals and wash my hair.

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It's terrible isn't it. This happened a few yrs ago when esa first came about when the assessors were demin people fit for work, when clearly they are not, if I remember correctly I'm sure a few people committed suicide. I'm think they stopped using them assessors. They were also the ones that I had dealings with. I don't get how they are allowed to lie about our conditions. I have had all the symptoms of fibro for about 15/20 yrs but only diagnosed a few yrs ago. I also found out a few yrs ago that I have genetic haematomchrosis and one of the symptoms was it effects my joints, so not sure how long I've had this as it flagged up on a blood tests them further tests. Hope your not in too much pain today. Xx😃

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hi Debbs

not too bad-knees are stiff and painful as always.

I am certain I have Pagets disease-my gp said in 2012 he thought "it was more than fibro" and referred me to rheumatology-did not acknowledge my symptoms-did not even let me tell him-but went on about weight and needing to diet but not accepting weight gain was due to my abdominal problems not diet related.One GP said he would research Pagets and then investigate-he didnt.Two years ago a GP referred me to an endocrinologist who confirmed changes to my facial structure -bone deformities and bone pain-and ruled out a condition called Acromegaly but since then no-one has considered other conditions/Pagets disease of the bone.

my MP has taken my case to ICE-who investigate complaints made against assessors/DWP ,They have that many complaints they are only addressing those received in february/march of last year!

Most of my bloods they say are normal but not all conditions show up on bloods,Pagets can be one -My Fibro was diagnosed by my symptoms not by bloods.

In 2005 when they did the same with my IB-i came close to committing suicide-i was that depressed .

I dont think people should be put through the stress of tribunals.

plus it is costing the DWP millions as well as compensation being paid.

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So very pleased for you it's been nearly 12 months now since l had my pip reduced. I am still waiting for a appeal date it's have a strain on my mental health and why do they keep us waiting so long my husband is having to help me more this is getting me down as he is not to good his self and we cannot afford some one to do the garden etc l know there are some of you out there in the same situation. I'm,63 so unable to claim my pension due to the government changes every day l think of what I can say at the tribunal to convince them of the daily battle l have l been unable to have a holiday for over, 5 years it seems pointless when l need to go to bed at 6 o'clock as I have had enough sorry for the rant x

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Hi Birds. My god that's terrible that your still waiting 12months for an appeal date. How come they're taking so long? So have they stopped or just reduced your money whilst your waiting. I'm not surprised it's taken it's till on your mental state. Can you not put a complaint in? I know there are people out there worse than us, but that doesn't make us feel any better as our illnesses are nice either. I feel for you and husband with him not being in good health either. I hope you get your appeal date soon. Xx😃

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Thanks for your reply l don't know why they take so long l had my money reduced. I am so worried they will take even more from me at the tribunal l have always worked until l was found to have a hole in my heart five years ago and the fibro followed as well as other health issues it would be so much easier to be able to work than go through all this with pip and they make you feel like you are making it all up all the best to you and thanks for your reply xx

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You are so right it would be so much easier, I worked up till about 15plus years ago as after each knee operation little did I know that it was making my knees worse after each one. We believe these the Surgeons, Consultants when they tell us that this operation will help and make it better. So after god knows how many ops, procedures, more nerve damage I am now here being diagnosed with chronic pain and fibro and popping so many pills I'm sure I'd rattle if you shoke and patches to knees and bk.

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PIP has nothing to do with whether you work or not.

x

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Not sure if you got the gist of what l was saying l just wish l was well enough to work and not feeling like l was begging for help,.

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Understand completely but you can still claim PIP if you could work!!

x

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I am gutted, I’ve been on it for a while and recently had to do my review; after reading several posts about the subject I requested a copy of my Atos report. Every single word in it is a lie, I am so stressed about the effect it will have on my renewal. I called the pip office to inform them and their advice was to simply wait for the decision and then appeal with a mandatory reconsideration but of course that could stop my payments in the interim. How are Atos getting away with the blatant rubbish they are sending to the dwp I will never know. I’m so glad you have yours sorted without too much hassle it’s good to hear stories of success with this. I’ve found certain people just don’t believe in “hidden disabilities” Including some gps it’s not fair or right that so many of us have to fight for things we need to be able to get through life to any normality.

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Hi kazhc. I totally agree with you it's disgusting how they're getting away it. I too requested my report when I was going threw my esa claim and like you they lied about what I'd said. It's about time things changed. Do these people think we like being how we are. It's the genuine people like us who get penalized and others get away with there lies. Really angers me. Xx😃

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If I could be “me” again I really would who in their right mind would want to be in so much pain constantly for the sake of a few extra pounds a week these claims are not choice their necessity :( thing is many of us just don’t have the fight in us to go through all the appeal process (obviously we have to) but they pick on the most vulnerable in my mind.

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You are so right. Like you said we don't choose to be in constant pain, waking up on a morning to another part of our bodies hurting. What really angers me and I've had quite a few run ins with people about this, an that's, i have a blue disabled badge for those of us that don't live in the UK it means we can park in designated park spaces closer to shops etc. You can see people looking at me and many people giving me verbal abuse saying " why are you parking there your not disabled how dare you park in these bays". What makes you disabled". Why do people think just because our disabilities are not visable that we were not suffering. It really p****s me off. 🤬When I'm with my son, it really angers him also. Like you said it's not a choice it's a necessity. Xx

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hi Debs they failed my better half , they have again assessed her on her broken hip and not her fibro , divertucolosis C O PD ,tumour in her neck that is putting calcium into her blood stream instead of her bones osteo arthritis/perosis and ibs coupled with urinary problems and constipation i'm So glad they turned yours over sweet it proves that there are some honest people working for the pips set up ,

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My god, can they not see that your partner has not choose to have her health issues. It does make me wonder where they get some of these" health professionals" from as they clearly don't know much. I'm sure I read or heard somewhere that the assessors were told to fail a certain amount of people. I'm sure it's taking its toll out of you both physically and mentally. Like someone said to me earlier people just don't have the energy or the fight sometimes to go through the appeal, and I'm guessing the assessors know this. 🤔.xx

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thank you for your reply sweet, our next job is an appeal , fingers crossed they see sense

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I'll keep my fingers crossed for you and you get the decision you deserve. Xx

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Congratulations hope the award makes life easier for you. X

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Well done debbs you can relax a bit more now

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I got mine and the assessor has literally just made up a story and submitted it! I’m so annoyed because now I’ve had the whole thing cancelled and have to go through a mandatory reconsideration, I’m hoping that I can get it back but reading the report she submitted it’s not the dwp at fault it’s the assessor I have never seen a more fabricated document in my life and I’m so upset because now I have to prove she lied and I don’t know if I’ll be able to ;(

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Hiya. I don't understand why these assessors are lying and fabricating the truth. Do they not get that it's our lives they are playing with. I'm guessing you have managed to get a copy of what the assessors have written. Have you asked for your claim to goto appeal? Try the c.a.b they should be able to help with your appeal. I'm sure I read somewhere that the assessors are told to fail x amount off people. It's the fakers that should be failed. Not the genuine people like ourselves. Don't give up, I think that's what they are hoping that we can't be bothered to appeal. Here's hoping you win your appeal. 🤞

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I’ve requested the mandatory reconsideration and I’ve been trying to get my medical records from my gp to forward to support that but they are also being less than helpful; I’m just hoping I can sort it all out because if I don’t it changes my entire financial makeup and I’ll be forced into work. (I also have 9 children) so my life will be impossible if it goes that far ;(

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I know a few yrs ago I requested my medical notes for when esa was first introduced, it was about 5yrs ago. It cost me £15 , but they are your medical notes and I'm sure by law you can request them at any time. Blimey 9 children I bet they keep you busy all the time. 🙂

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