CoEnzyme Q-10

[Suzy46]

Hi, has anyone ever tried coenzyme q-10 for their fibro and if so what dose and did it help at all ? x

[M0AL61 Moderator Volunteer]

Hi Suzy,

I have just started taking it about 2 - 3 weeks ago. I think it's 30mg, but I haven't noticed any difference yet. I'm thinking I probably need a higher dose. x

[Hazel_Angelstar Administrator FMA UK Staff]

I've taken it in the past without much success.... However someone recently told me that there had been studies (in Spain I think it was) where using doses of 300mg daily had showed significant improvement in fibro symptoms.

[phlebo123]

I have been taking 100mg daily for the last 2 and a half months, but unfortunately I have not really seen any improvement in my fatigue levels, maybe the warm weather has not helped. I have enough capsules left for another couple of weeks, so will finish taking them, but I don't think it will be worth buying any more. However, what helps one person, may not be helpful to another. X

[rosewine]

I have taken 100h a day for years a d it has helped with muscle pain in my legs it took some time to start helping. I did stop it for a time but had more muscle aches so started it again

[Tenmackie]

I was told I had fibro but it turned out to be a mitochondrial disease and this is the treatment. If you see a benefit I would suggest talking to your neurologist about mito!

[Hidden in reply to Tenmackie]

I agree with you --- I am certain I have a mitochondrial problem, I think I had some of the symptoms as a child, but I need to see someone privately as GP refuses to refer me via NHS.

[Tenmackie in reply to Hidden]

Only neurologists can refer to the mitochondrial specialists and usually after a muscle biopsy. It’s not an easy road to a diagnosis and has no treatment so it’s just been a waste of time!

[Hidden in reply to Tenmackie]

Thanks, I thought that was the case. I'm pretty sure it's something to do with mitochondria being unable / prevented from transferring energy ( hence the appalling fatigue) but how you ever prove that.......maybe in the future.

[Hidden]

I'm taking 300mg daily, as part of the 4 recommended by Dr Myhill's Co Q10, Niacinamide (500mg) Carnitine ( 500mg) and Magnesium with potassium.

Into second month and I think it's helping. I don't feel quite as bad in the heat as I did last summer, though I spend most of my day inside with fans going.

[Bemoresquirrel]

Apparently, it’s harder for our bodies to use CQ10, as we get older (this might not be relevant to you) and I’ve read we should use Ubiquinol instead, but it’s expensive.

I’m taking CQ10 for migraine and it definitely helps, but sadly I’ve not noticed any difference fibro wise.

I did notice I was more upbeat again, after a big dip in mood coming off Pregabalin and Amitriptyline, but I might have adjusted naturally to the drop in serotonin levels.

[Roselil]

Dear Suzy, Yes I have tried CQ10 several times, but each time, seemed to be quite ill, and there was no apparent improvement, whereas I have found some improvement in my pain levels on CBD drops and Turmeric mouth spray, so am continuing with those just now. Been on Turmeric for a few weeks, definitely improvement in my movement, and less time on CBD.

[Sarahvit]

Hi Suzy, yes I have tried it but didn’t really notice a big change. I have some under the sink which I tried fairly recently but either it didn’t agree with one of my other meds or I just wanted to cut down on the number of pills I take in a day. 💊 I really don’t remember. 🤷🏼‍♀️ Back in the 90’s in the early years of having fibromyalgia, CFS and company I saw this practitioner who did muscle testing as to what your body needed more and my body got to the point it choose the prescription over the herbal supplements. 💕

[Suzy46]

Thank you for all your replies, it helps to know other people’s experience of these things, I’ve decided to give it a go, I feel I’ve got nothing to lose at this stage as I’m feeling so bad all of the time particularly the past few months, so fingers crossed 🤞 xx