hi am new here

[felix31]

hi i have had fibro dignose for about 4 years , after having symptoms since my daughter was born in october 2005, in the last 3 months had a different sort of pain in the back that spasmed round to my stomach and i couldnt breathe had blood tests mri scans xrays, seen specialist, nothing just down classic fibro symptoms today doc started me on amitriptyline full dose paracetamol and codine suggested i join a site for support so here i am ,pain is so i bad i feel physically sick but i also feel a fake as i have nothing physical to show for it i have great diiffuculty walking as pain so bad. i claimed pip 1 half years ago which i got full amount but on the last assement in november it was cut to just daily living even though my doctor fully supported me, i feel this chronic pan condition is not taken very serously by those who dont have it. even though it is not life threatening it is life changing x

[Peanut585]

Hi, I’m new on here too - joined up Saturday and I’m still waiting for someone to confirm what i have as they all say its all part of Fibro but no one is confirming it. I think my doctor on Monday now listening as i have a meltdown on the phone to him! Being on here has helped past few days so welcome and hopefully the support of others will help and if need to rant - rant away as i have done that myself! Rest up and hope your pains eases up sending gentle hugs x

[YASMINTINA FMA UK Volunteer]

Hi there you will be made very welcome , I’ve found this a fantastic forum that is very well run and made lots of friends sharing tips and stories along the way I will send a couple of links also healthunlocked.com/fibromya..., also if you would like to lock your future posts this might be helpful. healthunlocked.com/fibromya... Yes you are right life changing and still not fully understood by many , but there are thousands on our forum and wetruly relate xxx

[Mdaisy]

Welcome to the FMAUK Community!

I agree the condition isn't understood in regards to how life changing the symptoms can be and how daily activities, social aspects and quality of life can be severely affected in some cases. I see YASMINTINA has provided you with helpful links about locking posts and the FMAUK benefits advisor contact information, also do check out the website at fmauk.org.

I wondered were the spasms feeling like a tight chest and that's what made breathing difficult? If so, it could possibly be a common thing you can get with Fibro (although I'm not a DR) including myself called Costochondritis.

nhs.uk/conditions/costochon...

I've posted the link purely for information purposes and of course if it happens again do consult your healthcare professional.

I'm sure I'll bump into you around the community

All the best

Emma

[dannyxox]

Hi Felix welcome to the group not a group we want to be in but everyone is friendly and very helpful x

[glo100]

Hya duc glad you hv found this site people are lovely and will always be here to help give you advice and different things when you want a rant go ahead we all bn there. We all got different problems in our lives which none of us want to hv fibro is a very bad illness affecting all parts of yr body and when you get flair ups yr ready scream duc my legs and knees are giving me he'll at the moment can't walk much at all still we get thro it duc you take care luv glor x