2nd opinion

[KimSawyer]

So, I’ve just got my appt for my 2nd opinion next week. Now I’m panicking that I’ll have a good morning and nothing will be picked up..... how can it be, that you actually want to hurt on a specific day, it’s a pity they cant monitor you for a week, they’d soon see what we mean???

[Pilipala18]

Hi Kim, I know exactly what you mean. It’s strange that when you are need to be at your worst your body kind of says not today. Can I ask why you are having a second opinion? Did the first one day you had fibro? 😀😀

[KimSawyer in reply to Pilipala18]

Hi Pilipala18,

At my appt with the rheumatologist , she said I’m not going to say you have fibromyalgia but I’m not going to say you haven’t, she then preceded to make a “plan” with all the known procedures for

fibromyalgia, she also wrote in my report that “I live with my daughter”who has fibromyalgia , that’s how much notice she took of me, I certainly do not live with my daughter with fibromyalgia, where she got that from I don’t know, I was in her office for all of ten minutes, and after waiting for seven weeks for the appt, I didn’t think it was enough , my doctor recommended the second opinion

[Pilipala18 in reply to KimSawyer]

That sounds like a nightmare appointment to be honest. I think you are right going for a second opinion cause the first one sounds pointless. You might as well have asked a person in the street to diagnose you. Hope your appointment next week is a much better one and you get a diagnosis 😀😀

[KimSawyer in reply to Pilipala18]

Thank you. I’m so nervous though, how can it be so hard to get a diagnosis of something you really don’t want. I just feel I need a name to acknowledge the amount of pain, and sheer agony that I feel...... I’ll let you know how it goes x

[EvilAsh]

I cut the grass the day before and went to bed late. That ruined me enough for the Rheumatologist to have a fairly good idea of what I was going on about!

[Nanabrodie]

I was originally seen at the pain clinic where it was suggested that I probably had fybro and was given gabapentin to ease the pains my GP then decided to send me to rheumatologist who gave me all of 10 mins (I was having a good day at the time) and told my GP that I might have mild fybro and to take me if the medication- which my GP either never read the letter properly or chose to ignore. This all happened about 5 years ago and I have in the last month been diagnosed with Rheumatoid Arthritis so not sure whether I ever had fybro or whether it was RA all along .

[KimSawyer]

Nanabrodie, it’s awful isn’t it, the treatment we get with this , I must admit, sometimes I wonder if mine is RA too, although it didn’t show on a blood test, I know it does t always show. Can I ask, do you have pain everywhere though with RA?

[Nanabrodie in reply to KimSawyer]

I’m not completely sure as I have only just been diagnosed. I certainly have it in some of my fingers, wrists, feet, ankles become so tender I can barely touch them and my chest bone sometimes gets very tender . I get quite a bit of stiffness and pain in my pelvis but I don’t know if that is part of RA or not and in my lowrr back. I’m hoping to find out more at my follow up appointment, which should be within 6 to 8 weeks of the original one but have been told will probably be over three months as they are so busy.