Hello.im a newbie on here xx - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hello.im a newbie on here xx

jayey profile image
8 Replies

hi everyone ihave just joined.i have fibromyalgia/M.E,anxiety/depression/O.C.D diabetes,social phobia...i hardly leave the house. And feel isolated/alone wuth these illnesses...luckily i hav a wonderful supportive husband.he has to work. Though long hours so im on my own. Mist if the time.it will b nice just to chat with people like myself,as no one really understands what it's like everyday with these illnesses.i suffer with bad pains,fatigue,weakness in eye muscles,pains jyst about everyehere all of the time.sensitive to light,sound,smell touch.you name it ive got it...very fatigued mist if the time,but don't sleep well.cant go out much..hav little hobbies when i am able to do them.i keep smiling.but i do have bad anxiety and depression.looking forward to chatting with you xx

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jayey profile image
jayey
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8 Replies
Twinkle0411 profile image
Twinkle0411

Welcome jayey and you are truly not alone. It is hard dealing with our illness’s but please chat night or day there will always be someone to help or listen. I too am like yourself but I’m not letting this beat me I’ve been unwell for many years now and am 40 this year but I think support help understanding from those who also have similar experiences is a key in helping with the conditions we have. So welcome and nice to meet you and you are no longer needing to feel alone. Gentle hugs 🤗 xx

Matrix profile image
Matrix

Hi sweetie no you are not alone , most of us on here have multiple illnesses to cope with . My hub works long hours my friends work so I spend a lot of time alone so I know how you feel. It’s worst when things are really bad and you feel really ill. I think anxiety must be horrible and depression is still so misunderstood you will be ok on here we are all loving supportive people . I forgot to say welcome welcome xx🤗🤗😇

Jan101 profile image
Jan101

Hi Jayey welcome to our lovely forum. We all understand how you are feeling. As the others have said there is always someone here to speak to day or night to help you even if you are not feeling so ill we are still here for you. Sometimes we just have a chat about what we are doing or where we have been. You are always welcome to join in with us. So please never feel alone as we are always here for you and everyone. Have a lovely restful day sweetie and take good care of yourself. Love and hugs 🤗🤗🌹🌹😘😘

Morning Jayey,

You’ll find plenty of people to chat to on this website. It has been a saviour to me in many ways and provided me with an outlet for the thoughts I struggle with when I get low or have a bad day.

Everybody here is so supportive and you will always have someone reply to you who understands and wants to be there for you.

We’re all in this crappy journey together.

If you ever want to have a chat, I’m only a message away 💕

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Hi jayey

A warm welcome to the FMA UK community 😀 .... There's always someone around to chat with, so hopefully that will help you to feel less alone and isolated while your husband is at work. Xxx

grandmama16 profile image
grandmama16

I have things very similar to you besides Fibro, like chronic fatigue which could be due to Epstein Barr, a virus that can be dormant but mine is active. Being 74 I tend to blame everything on age but have had social anxiety and depression since age 12 but marrying my wonderful hubby at 18, and having our babies gave me joy, along with pain but when that tended to stick around in my 40's I got suspicious and foundt out about Fibro. Chiropractor wasn't much help but massages were great plus the ultrasound therapy. It just doesn't last tho. My Dr. dx me with depression..we tried several meds., .then Fibro so I've been on Cymbalta for years and Norco for pain. I take Dexilant for Gerd and one of them caused raising of blood sugar so I take another med for that. Xanax helps for anxiety but I only take it at night, or Ambien for sleep. Then there's carpal tunnel that causes intense tingling, numbness and itching in hands and feet. maybe caused by small nerve irritation. I get blood spots under the skin on hands and wrists from scratching. Going out isn't easy anymore either. I Just don't feel I fit in anymore. It's just one thing ir another, isn't it. Also my hubby has Parkinsons so we go to his support group once a mo. I used to be so busy with kids and grandkids. Welcome here and I hope it helps.

glo100 profile image
glo100

Hya there duc I no its hard how your feeling so down and feel alone I feel the same some times when the pains get really bad you can't do anything go anywhere you want to come on this site the people on here are lovely and will are always here to talk to like me duc I'm mostly stuck in my home to its so lonely I'm glad you hv a lovely husband it's hard when he's got work away or long hours my son who is my carer he's a lovely and caring person he's my best friend he's makes me laugh I want know wat do without him duc anytime you want to chat you can private message me then we can talk together you take care glor xx

Plenty of members to help you here that’s what this forum is for Have you been diagnosed with Fibromyalgia?

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