Hi, newbie here!

Keeping this short as the worst pain is my hands.  Just kind of got the FB diagnosis I think.  All tentative and non committal.  Have suffered Depression, PTSD etc for 20 years, and now they can't give me amitriptylene (spelling) as it clashes with other meds.

Was referred to the Pain Therapy Clinic at hospital in October and just got the appointment through for 20th June.  Co-codamol and ibuprofen just don't touch it.

Get really bad headaches almost constantly and always feel like I've just done 2 hours in a boxing ring.  

Also get waves of a fluey type feeling which usually takes me to bed, not sure if that is FB related.  Anyhow, agony now so nice to meet you all :)

13 Replies

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  • Hi. I no how you feel. I haven't been diagnosed yet but I do have depression which do seem to be getting worse. My pains are also in my hands legs hips and face arms well everywhere really. Hope you feel a little better. Xx

  • Hi I'm new to this too, I was wondering if you've had your inflammatory levels checked as one of my first symptoms was severe pain and weakness in my hands...it turns out I was reacting to one of the deadly kniteshades. ..I've cut peppers out totally and no longer suffer with this problem in my hands, I still have pain but it's the tendons not my joints now 😊.

    My doc says fm can create an over sensitivity to everything, as I've found out, from foods to meds ☺.

  • Hi Charlydot1 

    Fibromyalgia does not cause inflamation, so any anti inflamatory meds would not help.

    There are no blood tests that can diagnose Fibro and the only real way of knowing for sure is to see a Rheumatologist.

    Many people with Fibro are deficient in Vit D but, lots of people in the UK have low levels due to the lack of sunlight!

    Fibro can increase people's sensitivity to their environment, but not everyone with Fibro automatically suffer from every symptom.

    I hope this helps :)

    Lu xx

    Admin

  • Hi :) No I haven't. But maybe the pain therapy clinic will do stuff like that xx

  • Hi jackymax 

    Welcome to our lovely forum :)  I have made some wonderful lifelong friendships since I joined the forum 4 years ago.

    Being a part of this lovely community has been amazing.  I have suffered with Fibro plus other chronic conditions for over 30 years.

    You might like to take a look at our website for more information on Fibro fmauk.org

    In order get a definitive diagnosis of Fibromyalgia it is best to ask your GP to refer you to see a Rheumatologist.  They are the Consultants who specialise in Fibro.

    That way you will know where you stand and everything wont be such a guessing game.

    You may like to lock your post.  At present absolutely any stranger on the whole open Internet could stumble across your post and all your replies.

    Simple Instructions on How to Lock your Posts is permanently on the forum on the top right corner of your screen.

    If you need any help navigating the forum please don't hesitate to give anyone in Admin a shout and we'll be happy to help.

    Wishing you less pain and more peace

    Lu xx

    Admin Volunteer

  • When I started sufferering the high rhumertiods was somthing that came up on one of the many tests I had done. My doc said that auto immune disease which is what the fm, cf and cmf that im suffering with come under can also cause hyper sensitivity which is why I've become lactose intolerant, wheat glutin intolerant nd highly sensitive to meds. Obviously not everyone has the same syptoms, But I was just wondering for the other person if they'd had that checked cause I wouldn't of thought about it if it hadn't of been brought to my attention and it made a massive difference for me. I didn't take any meds, I stopped eating potatoes, tomatoes,  onions and peppers and after reintroducing them I find peppers raise my rhumertiods nd cause me pain.

    Now I'm just left with all the other pain lol.

    I will ask my doc about being referred cause he's said there's no way of getting an actual diognosis other than crossing everything else off.

    Thankyou ☺

  • You are best off seeing a rheumatologist for your aches and pains, as there could be a variety of causes including Fibro. 

    I hope the pain team can help you manage your symptoms too.

  • Hi and welcome to our forum.We are a helpful and friendly bunch here. Feel free to jump in with us.Peck☺

  • Hi jackymax

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read of how you are suffering and struggling and I want to sincerely wish you all the best of luck.

    I also genuinely wish you all the best of luck with your Pain Therapy Clinic appointment, fingers crossed that you get some answers, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi there, glad you found us. The flu thing is one of the many Fibro delights I'm afraid. I tend to write myself out of the equation when it happens to me, just like I would with flu. I tend to feel sorry for myself on those days, but nod off too often so time goes by faster than I expect. 🐸

  • Thanks to everyone for the warm welcome!  Will take all your tips on board and check them out.  Shame the pain is mostly in my hands as I'm a real chatterbox with my mouth lol xx

  • Hi jackymax 

    Have you been tested for carpal tunnel syndrome?  Just wondering as you were saying your pain is mostly in your hands. 

    Just a thought? 

    Lu xx

  • yep that was an early consideration but nothing came of it lol xx

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