Pain

[Lyns43]

Once again I’m laying in bed my legs arms and neck are throbbing it’s terrible the pain is getting me so fed up my partner can’t understand and shouts because of my sleep pattern it’s affecting everything at the min totally fed up 😞😞

[JulieLiddard1966]

Hi Lyns43, I have just joined this group, i am in the lounge as i can't sleep but i am so tired, my partner and dogs are snoring their heads off ( so jealous!!) i was taking Amitroptyline but i couldn't wake up on them and felt drunk the next day so I stopped. I am 51 but feel 90 I ache all over everything hurts, just really fed up with it> I was diagnosed 3 ears ago

[Lyns43 in reply to JulieLiddard1966]

Hi I can relate I take several meds but I can’t sleep properly even the quilt hurts my body sometimes xx feel for u it’s such a horrible condition I’m trying to push myself to day to swim but I’m shattered already take care your not alone x

[JulieLiddard1966]

I wake up tired, and have no energy, everything is an effort!!

[grandmama16 in reply to JulieLiddard1966]

I know exactly what you mean. I want to get things done but just can't. Hard to get out of bed. Depression gets me down too. Totally useless. Just turned 74 and I remember my mom at this age...so independant and full of life. My dad was different...lived with my bro and family for 20 yrs....then with others....then with us..then another where he died.He had problems due to encephelitis when I was little. After their divorce, lived alone but that didn't last long. My bro's wife felt he had to be taken care of so that became his attitude. It may become mine too. I wish I was like my mom but after her stroke at 87 she lived with us. It affected her mind and I was so afraid that she'd all of a sudden realize all the mistakes I made and not understand Fibro and Dep. at all. Even my husband is doing better and he has Parkinson's. I'm angry at myself. Used to be a busy mom raising our 5 and 2 Viet. refugee sons, then grandkids most days. Can't do so with Grt. Grandsons. I feel like life is crushing me but I shouldn't. Kids are great. Lost oldest to breast cancer in 2006 at 41. I think that pulled the rug right out from under me. I truly didn't think she'd succumb. What a fighter. You try to be one too...ok. M.A.

[KateAL in reply to JulieLiddard1966]

Hi if you’re waking up tired have you had your VIT D tested?

[Hidden]

Lyn listen to me there lots of us on this forum who have been exactly in the position your in now Fibromyalgia is not curable so the best option is to combat it with medications and sleep which is so important for you Now I don’t no if you have tried this gel from the doctors it’s called fenbid forty 5% It’s ibuprofen based and it works for me Iv had fibromyalgia diagnosed for 15 years so I’m a veteran of pain I don’t wear shoes only flip flops I self massage we’re the pain hits Iv learnt to relax my mind and body All of these things you may be able to try And I’m sure other members will help you with advice too Another thing I do I use those cheap elasticated stockings from the Chemist on my legs and feet Another good cream is Avenio cream you can get that prescribed from the doctor Also rub loads of that on your affected area it helps I feel for you Best of luck

[Lyns43 in reply to Hidden]

Thank u yes I’ve had gel it hasn’t helped I will definitely try and follow ur advice thank u I’m trying my best not giving up yet xxx

[Hidden in reply to Lyns43]

Ok be strong fight your Illness don’t give in XX

[Lyns43 in reply to Hidden]

I won’t I’m currently getting ready to swim x thank u so much for help and advice

[Lyns43]

I have a wet room I really loved my bath but was struggling to get in and out but I miss long soaks I will try spray thank u 🤗 I won’t give up

[Shazzzy]

Hi Lyns, you can still absorb the magnesium by putting Epsom salts in a bowl and soaking your feet in it. Have you had vit d levels checked ?

[Lyns43 in reply to Shazzzy]

No I haven’t had them checked x will definitely do that just miss my bath I used to find the warm water so helpful then I got moved to adapt property because of my mobility so no bath but I’m lucky I got help so not complaining will mention that to doctor when I go again thank u x

[Shazzzy]

I don't think I could live without a bath, i feel for you.

[Lyns43 in reply to Shazzzy]

I know I was disappointed but they put chair in my wet room I hate it xx not the same as when u lay in the hot water 😞😞x

[Shazzzy]

I lived in a house in the 1980's that had an outside loo and no bathroom. I improvised with a hose pipe and a paddling pool in the kitchen !

[Lyns43 in reply to Shazzzy]

My god think I will stick to chair and shower hose xx

[Maccs]

Keep your chin up , if they had half the pain they would be crying .I know how you feel as they get really frustrated , At minute I'm having really bad nightmares like they are real aand I'm in the middle of it all ,then I must be tensing my body so bad my legs feel paralysed and I panic waking up about 3 am it's horrible.Try not to let it get you down although it's hard .💝

[permanentgrowingpain]

hi lyn

i had a day from hell yesterday

fibro and arthritic pain went from 75 percent to 100 percent .

had done to much over a few days re my birthday and visitors . and other stuff

ended up in bed all day took one of the dreaded oxicodone given by doc but i reserve it for the worst days . ended up with blissful sleep with nice dreams ---totally zoned . woke up this morning feel better but my face is numb lol thats how it affects me . cant take all the time as its addictive but useful for worst days when pain is so out of control i want to jump of a cliff . this is how i manage these conditions i put up with it for so long then lose control one of these sorts me out for 24 hrs then it will all creep back but good to feel normalish for 24 hrs . im usually feel like im walking on broken glass re pain in hips and fibro all over with muscle spasms and stiff . like my hinges need oiled .

[Lyns43 in reply to permanentgrowingpain]

I know how you feel it’s awful I’m in oxynorm and longtec for pain because of my bi polar meds there waiting to see if I’m allowed anything else as certain medication can set my hyper in attending pain clinic on the 1st may I’m hoping they can my legs and arms and so sore at the minute it’s hard x I feel for u I really do I’m hoping to show my family the support I’ve received on here and they might think as all I get is pull ur socks up and it can’t be that bad I could scream x hope u get some calm and pain free time It’s just hard work 😓

[permanentgrowingpain]

yes we need a pain dial on our foerheads . red dwarf like lol

i need to get like the girl in a series of unfortunat events by lemony snicket and tie my hair with a string and get inventing lol

cant remeber her name as im tired and brain dead if youve watch the series on netflx you will get it lol ok i know im nuts lol