Considering applying for PIP - Fibromyalgia Acti...

Fibromyalgia Action UK

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Considering applying for PIP

helbayl profile image
7 Replies

Hi everyone. I ,like everyone on here have fibro. I work full time in a school and try my best not to have time off,but I can not control my condition and therefore have to stay home when I have a major flare up. This triggers the HR meetings and i am worried that one day they will say im not fit to do my job.

This past year my pain has become a lot worse .I'm waiting for mri s on my hips ,knees and back,again. I was wondering because I work and can walk,albeit I'm in a lot of pain when I do, would it be worth me applying for PIP?. After reading a lot of people's posts , it seems u have to be virtually house bound to get it. It s not that I want to get extra money but it may have helped me possibly going part time .

Any ideas wiĺ be much appreciated xx

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helbayl profile image
helbayl
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7 Replies
Bananas5 profile image
Bananas5

There are 2 components to PIP...care and mobility.

In both you need 8 points to get standard rate and 12 + to get enhanced rate.

It is nothing to do with your conditions but how you manage day to day tasks.

The follow in may clarify a little further when you come to fill in your forms. I say apply

What are the ‘reliability’ criteria that are used during the PIP Assessment?

Personal Independence Payment (PIP) is a benefit aimed at helping people to live an independent life. PIP assesses your ability to perform 12 daily living and mobility activities, such as preparing food, communicating verbally, and planning and following journeys. It is not sufficient to be able to complete these activities once, or occasionally; PIP assesses your ability to undertake tasks “reliably”.

Reliability has four components each of which must be satisfied in order for an activity to be undertaken ‘reliably’. The four components are:

Safely

To an acceptable standard

Repeatedly

In a reasonable time

Activities must be performed safely. This means you must be able to undertake them in a way that is unlikely to cause harm to you or anyone else. This could be either during or after you have done the activity. For the purpose of PIP, something is unsafe only if harm is likely to occur; it is not sufficient for you to feel harm may occur.

They must be performed to an acceptable standard. This means that the task must be done to a standard that would reasonably be acceptable to most people.

It should be possible to undertake the activity repeatedly. This means as often as reasonably required. For example if you are able to prepare a meal once without help, but the exhaustion from doing this means that you could not prepare another meal that day,

you would be treated as being unable to prepare a meal

unaided. This is because it is reasonable to expect someone to be able to prepare more than one meal a day.

The activities can be completed in a reasonable time. This means not more than twice as long as the maximum amount of time that a person without your health condition or impairment would normally take to complete that activity.

The ‘reliability’ criteria must be considered for each activity and will be considered as an integral part of the information-gathering process whether at a face-to-face consultation or during a paper-based review.

helbayl profile image
helbayl in reply to Bananas5

I worry that they will not see me in the pain I am in and because I work that I will be refused before I start .thank you for your answer tho.it is def food for thought

Bananas5 profile image
Bananas5 in reply to helbayl

PIP has nothing to do whether you work or not.

Many people work full time but need that extra help...for all sorts of reasons.

Being in pain means you can not do cooking or bathing without assistance or taking a long time. That's where 'in a timely' manner slots in.

Don't be put off by stories. You only ever hear the bad experiences...I got mine recently without any bother!

x

val1960 profile image
val1960

Hi, I work as a nurse and I was awarded PIP last year. They aren't looking at what condition you have, but how it affects you. Make sure your gp writes a good report ! Best of luck :-)

helbayl profile image
helbayl

Oh right I didn't realise this. Thank you all

releasethemagic profile image
releasethemagic

You will need medical evidence to submit with your application form. You have been given lots of good advice by others about PIP, but I would advise you to use the Subject Access provisions of the Data Protection Legislation to get a copy of your medical records - it costs £10. If you get your Hospital records, there should be a lot of evidence that you can use. You are also entitled to a copy of your GP records - so between the two, you will get the letters from Consultants etc, that hopefully include your diagnosis and prognosis.

When you get your face to face PIp assessment, remember the assessor is looking to give you the lowest score that covers your situation, not the highest. If you say you have 4 good days and 3 bad days, you get no points. Variable conditions have to apply for the majority of the time. I told my assessor no day was good. There were bad days and worse days and I explained why.

Also if there is an aid that would help you, even if you do not have it, they will say that you could use the aid and score you on that basis. So if you cannot use a particular aid, explain why. For example they might say you could shower sitting down. But you might say that you need a bath, because the warm water relieves the pain, and you need help to get in and out.

helbayl profile image
helbayl

Gosh there is so much involved.genuine people who have illnesses shouldn't have to go through all this. It really puts you off applying .its as if you are going to prove you are actually ill .its ridiculous .

Thank you all for your comments.it is def food for thought

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