My son

[seren1970]

I was diagnosed about 3/4 years ago it’s been hell and about a year ago my 24 year old son was diagnosed with fibromyalgia has anyone else’s children been diagnosed xxx

[SheilaA]

I have it, so does my cousin and her mum. We are all affected differently by it.

[seren1970 in reply to SheilaA]

That’s true my main worry is ending up with a wheel chair the docs say it’s no progressive but I’m not so sure xx

[Mistee71 in reply to seren1970]

I am in a wheelchair coz of it. The council has recently finished my ramps. I have a stair lift hand rails toilet and bath adaptions. All done by the OT. What do doctors know about it. I also have sleep apnea so use a CPAP machine. It is progressive, but not for all it isn't.

[Dizzytwo]

Hi seren1970 I am very sorry to hear your son as been diagnosed with this terrible illness. I have read many members who have children or family members diagnosed with it too. Fortunately for me my two adult kids do not seem to have it. I myself have had it for over 30 years. I can't imagine my child going through what I have. I feel for you as a mum xx

Momo

[sweetpea21 in reply to Dizzytwo]

Hi dizzytwo

Sorry to hear you have had fibro for 30 years, mind my asking you how you cope with it? I I am having a very bad day today, sorry to be so miserable! xxx

[Nipper11 in reply to sweetpea21]

Sorry to hear you been having a bad day . Start thinking you will relax and watch a film or listen to a story to take your mind of pain. One of the things I had to teach myself is to be firm with myself and not let the pain get to me. I will look at any options which will take over the way my body is feeling . By using my Ten Machine will help with pain or take a hot bath to take the stress away. Pat yourself on your back for being so brave today. Stay strong . Big hug . Kick back at feeling low and look in the mirror and smile your worth it.

Big hug.

[seren1970]

Its horrible to watch one thing I can say to him is that I know what he’s going through xx

[Hidden]

Strangely enough my eldest son has fibro ,diagnosed 20 years ago and my diagnosis came 4 years ago. Go figure

Xx

[seren1970 in reply to Hidden]

It’s a weird illness I hope your both keeping as well as can be xx

[Bobby3]

No one in my family but was told as I had ME/CFS Fibromyalgia is 99% likely to go hand in hand so double wammy😫but ME got rid 😃

[Mistee71 in reply to Bobby3]

You got rid of your ME.? How???

[Bobby3 in reply to Mistee71]

Allergies specialist in USA used Albermun IV drips two days every three months and IV Antibiotics one day. It worked for us and 5000 other parents but he retired and it was his thing do not know anywhere else that does it and over here forget it as not tested but found ways round that but only if got friends !!

[M0AL61 Moderator Volunteer]

2 of my cousins have it, I believe my mum has it, I have had it for 30 plus years, and my daughter has it. x

[seren1970 in reply to M0AL61]

Oh my goodness that’s sad xxx

[Horsesgalore]

There does seem to be a family link & I'm sorry you & your son have it. My sister has it as well as me.

[seren1970]

They need to do more research xx

[Hazel_Angelstar Administrator FMA UK Staff]

Hi my 24 year old daughter has had fibro since a car crash aged 14 but she was 18 before she got diagnosed.

Several of my dad's cousins have fibro .. so it seems that the genetic predisposition came from his side of the family

I know I personally find it more difficult to see my daughter struggling than coping with my own symptoms xxx

[seren1970 in reply to Hazel_Angelstar]

That’s what hard watching them in pain he now has a nine month old baby and his wife is going back to work next week so he will now work part time which will be 3 nights a week I’m not sure if he will cope I will help out as much as I can xx

[gothicmum]

Hi Seren, my daughter was diagnosed first about 4 years ago, then I was diagnosed last February, it has been a hard time for the family and now it looks like two of my granddaughters may have it too as they are complaining about soreness.

[seren1970 in reply to gothicmum]

It’s dreadful there has to be something they can do xx

[gothicmum]

I'm hoping now its been raised in the news and by celebs, the medical profession will start to take this illness seriously that something is found xx

[Char_Malibu93]

Hi, I don’t have children but I am 24 years old and am currently being investigated for fibromyalgia.

I can only imagine how my mother is feeling/coping with my current situation, I know she finds it rather difficult seeing me in continuous pain.

I think the fact you can relate to the way your son is feeling will help, I know that’s one of the difficult parts for me, people not quite understanding how I’m feeling, although they do try it’s not quite the same

[seren1970 in reply to Char_Malibu93]

That’s what I found and still do people don’t understand just how bad this illness is it’s so unpredictable we just don’t know how we are going to feel xxx

[Midori]

I'm pretty sure my 28 year old son and carer has it; his symptoms are very similar to mine, but getting him to see tha GP is another thing!

[Gurtie]

I have fibro and my 21yr old daughter just got diagnosed