Support: Hi I,m Sue I have suffered... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,444 members66,490 posts

Support

Suetiff profile image
6 Replies

Hi I,m Sue I have suffered with Fybromyalgia for a number of years, Just wish there was more help out there to ease the pain and give myself and others a better quality of life.

Written by
Suetiff profile image
Suetiff
To view profiles and participate in discussions please or .
6 Replies

I know what you mean. It's the loss of quality of life that hurts me most. The pain I can treat and at least lessen it. The fatigue I can go to bed, have TV, radio, audiobooks. I'm lucky in that I'm retired and don't have anyone to look after ( except my two dogs) . But there is no quality of life. I can do two, three things a day at most. Walk the dogs, Hoover a room and I'm fading fast. Then have a choice between cooking a meal or something like changing the bedding. Going out to anything seems to take days of planning.

Mdaisy profile image
Mdaisy

Welcome to the FMAUK Community Suetiff ! :)

I am sure you'll find this community a helpful and supportive place to be ! :) There's lots of posts to read and many lovely members to talk to as you learn to live with Fibro 24/7.

Please can I provide you with the FMAUK website which has a wealth of information about Fibromyalgia which may be of help to you

fmauk.org

As a newbie, please can I mention that members prefer to answer posts that are locked to this community only. If you wish to do this, here's a link that explains how to do it;

healthunlocked.com/fibromya...

I understand all that Fibro can be challenging (to say the least!) to learn how to deal with it's myriad of symptoms. I hope you'll find this community a online support network where you can get tips and advice from other members based on their experiences of Fibro.

All the best

Emma :)

Dizzytwo profile image
DizzytwoModerator in reply to Mdaisy

Oops we must have overlapped Mdaisy 😋

Mdaisy profile image
Mdaisy in reply to Dizzytwo

No to worry Momo :)

Dizzytwo profile image
DizzytwoModerator

HI Suetiff it's nice to meet you and wish you a a warm welcome to the group :)

I agree it would be wonderful if their was a specific medication made to treat fibro. I am sure that one day they may be. But for now we're left with what's available. 30 years I've had this illness and can not take any of the medication that's available at the moment. So like you I too wish there was more help for our pain.

You may find our sister website helpful it has load of information that may be useful to you. This is the link if you would like to take a look. fmauk.org

I have noticed you have not locked your post you may wish to do so to keep your posts private to this community only. You don't have to but members tend to answer more post if they see them locked. This link will show you how to do it.

healthunlocked.com/fibromya...

If we can help you with anything further please just ask. I hope you have a very pleasant day xx

Momo

Treewade profile image
Treewade

Hi sue the guys on here or ace and will guide you towards finding support getting professional help from the right specialist as well as being a hub of caring understanding empathetic wonderful human beings who know what your going through and how you feel it's nice to have a place full of people who all can relate so welcome home xxxxxx

You may also like...

no support

hear/read more stories of people with cancer and ovarian cysts that don't show on scans.i am having...

Support

very unsure of what to expect or ask for. Or any other suggestions of professional support?..

No support 😥

they want more evidence then they can ask me for it themselves, ( not helpful at all ) I have been...

Support

Does anyone else’s family just say just get on with it (in a nice way) or go for a walk it will do...

Income support to support group

for three years with no medical !!! Still shaking if it wasn't for all the medication I'd have a...