Sleepless nights

[Iron-warrior]

Does anyone else suffer from bouts of either insomnia or restlesness

[Miss68]

Yes I seem to be suffering every single night, it’s very frustrating and incredibly exhausting. How are you coping with it Hun? Xxxn

[Iron-warrior in reply to Miss68]

I'm not. Feel so tired but only doze for about an hour. After about 3-4 Days I just crash from complete exhaustion but even then wake up tired

[Miss68 in reply to Iron-warrior]

Same here with only dozing for about an hour. I’ve tried to sleep during the day when I’ve got to the point of complete exhaustion but as soon as I get comfortable enough to lie down I’m wide wide awake. It’s the same at night, as soon as I get comfortable then my eyes are wide open. It’s so incredibly frustrating. It’s the same with when I take sleeping tablets too 🤬🤬🤬xx

[angelikjan in reply to Iron-warrior]

I'm exactly the same it's very tiring and very annoying as my plans for the day tend to go out of the window!!

[Georgi13]

Hi I have been suffering for ages have tried different medication but just made it worst and I was getting nightmares, and then finding it hard trying to figure out reality to dreams! I am now taking citalopram 20mg and it seems to take the edge of things a little and I am gradually getting a better night sleep at times. It depends what I have done during the day and to the extend of how tired I am, but the more I stress about not getting to sleep the harder it is sometimes I just have to allow it and lay there which is hard x

[redmaple-5]

Hi Iron-warrior, I suffer quite frequently with both, there doesn't seem to be a pattern. On the occasion I sleep for a few hours I put that down to sheer exhaustion. RLS and jerky legs are also a problem. 😐

[DanielleGemma]

Yes; my sleep never use to be affected it’s been the last year or so that it’s been really bad. I am so unbelievably tired but cannot fall asleep; everything aches and I cannot get comfortable! Absolutely hate it 😣😣😥😥

[Ramjets]

Oh yes hun, I suffer with intermittent insomnia so there are days when I could well audition for the cast of "The Walking Dead"! I have resisted medication as I am striving not to depend on this (I know this is not always possible for lots of sufferers). So I have tried all the usual things, no blue light in bedroom, no eating late, warm bath before bed, lavender under my pillow, Ovaltine with a tot of Whisky or Amerretto (yum) etc...Doesn't always work so I have accepted that being an occasional zombie is probably one part of fibro I will just have to learn to live with. Hope you'e not feeling too bad today. x

[Hidden]

Both really hun- I think most of the members on here do, I dont work now-toook early retirement but I always feel like i want a nod around 2.30 each day and so I,ve taken to a short walk to stop me, I did sleep for a while last year and found it stopped my night time sleep, not sure if you would approve but I have a TV in my bedroom and I watch it until around 2.00am old programmes like The Bill and Londons Burning, news on 24/7 too, I suppose if you share thats not possible! Restless legs syndrome is a real problem, I have bought myself a gadget off ebay I,ll try to take a pic and show it, very cheap but I can use it anywhere, at night I take it to bed if I,m not sleeping and have a pedal for a while- it has stopped my legs being restless, I also have m y lower leg muscle in some tubigrip (good job I*,m not married I look like Nora Batty at night) Hope you know who Nora Batty was!

[tessaflo]

Deffinitely suffer from from restlessness for years before I realized its a common thing for fibro sufferers. Eventually it got so bad for my husband I went to my gp and asked for something to help me relax, He wasn't keen but for years now I take a low dose of clonazepan and this works a treat.

[grandmama16]

Yes, I do. I take Xanax or Ambien. It still takes awhile to get to sleep, trying to stick to 1/2 tab. . My husband with Parkinson's falls asleep quickly but then wakes often. He's beginning to make a lot of noise in his sleep and the dog does too. Funny. He's a white maltipoo. I sleep ok finally if I don't get restless leg or the dog decides he wants attention like going out at 3am. However, I do stay up that late at times in the summer. We're in our 70's And our sleep cycles change with age.

[Fra22-57]

All the time.pain keeps waking me and I look at the clock and think "oh no" as it's still early hours.try and re maneuver in bed and nod off for a while and the cycle goes on. give up in end and get up

[Pbyllis]

Yes about 3/4 a week

[Iron-warrior]

I'm using a sleep recording app. Over the past 3 nights I have averaged about 4 hours broken sleep (keep waking up for no readon)

[Colin057]

This is a big part of fibromyalgia my wife's had fibro 30 years and more she doesn't seem to sleep at all kills me to watch her go through this hell

[Iron-warrior]

I've spoken to my gp but he's reluctant to put me on more meds. Latest blood tests (have 1 every 6 months to check liver function etc) have shown low vitamin d. Now taking supplements but still not helping with sleep.