Disbelief.

[Littlemole43]

I'm so angry with my gp , I have suspected fibromyalgia for some time now and so has 3 different pain consultants . So finally getting an official diagnosis from my rheumatologist was a relief, only to then find out that my gp dosnt believe it exists. So I asked him "why has he been treating me then, if I supposinly have nothing" of course he couldn't answer. I'm so confused. He has now ordered a full body bone scan . I think he has only done this because my cancer consultant has arranged a brain scan because he thinks I have multiple sclerosis.

[phlebo123]

Hello littlemole,

Sorry to hear about your diagnosis and the reaction of your doctor. May I suggest that you get an information pack about fibromyalgia sent to him so that he can better understand the condition. If you look on the website fmauk.org and go towards the bottom of the homepage, you will find a section where you can request an information pack be sent to your doctor (it can be anonymous if you prefer) And hopefully it will help his " continuing education" ,take care xxx

[Littlemole43 in reply to phlebo123]

Done and sent , so thank you xx

[BekaAnne]

What the ever-loving hell? How can he not believe it exists? It's in medical text books.

*gentle Jedi hugs* I'm sorry that you are going through this, hon. The last thing we fibro-peeps need is to fight another battle with the medical profession.

[Hidden]

Just a wait & see senario really Littlemole43 we get many other illnesses besides fibro, I have cocyxdenia, arthralgia, Fibro with M.E I see various consultants teams for this. none of them refer it to fibro, I,m encouraged to do leg excercises in the hydro pool to pump up upper leg muscles so that they take over my knees where there is little cartiledge, thats OA but my physio sees this excercise as helping 2 problems. As for gp,s and doctors who deny fibro exists they need to refer to their code of practice, they should NEVER dismiss anything!

[Dizzytwo Moderator]

Sorry you have a GP who wears blinkers !! But I may have had a worse one. some years ago I spent 2 weeks in a Sheffield hospital with an head bleed. Fortunately there was no aneurysum and self healed no op needed long story. Anyway when I get back to seeing my own GP he told me he did not believe I had even had a brain Haemorrhage !! This was after I had been looked after by some top brain specialists and on medication. He also refused to put it on my medical records I kid you not.

Sometimes It leaves you wondering what planet some of these doctors come from {{{HUGS}}}

[Lorsxxx in reply to Dizzytwo]

Oh my god mo,that's awfull😮😮😮hope your having a good WK end xx

[Dizzytwo Moderator in reply to Lorsxxx]

Thanks Lors my little sweet cheeks apart from been woke in the night with so much pain in my right arm I couldn't lift it and thought i was seriously having a stroke every things great at my end. Arm feels better just now. Going to have Sunday dinner now Roast beef I hope your Ok today. xx

Oops sorry for hi jacking your post Littlemole43 xx

[Lorsxxx in reply to Dizzytwo]

Aw no,that's not nice(((hugs))))enjoy your dinner XXX an tc

[Littlemole43 in reply to Dizzytwo]

No probs dizzytwo x

[Hidden]

Don't worry this is the general consensus of nearly all Drs. The reason being is fibromyalgia just describes a symptom (pain in the muscles) . It doesn't explain why, therefore no diagnosis. Your Dr will still try and treat the pain despite this.

The same with M.E/CFS. It describes mainly fatigue however, conventional Drs don't know why. Hence why they speculate about stress etc.

However, Functional Drs realise that chronic fatigue/fibro cases generally have mitochondria dysfunction. Mito dysfunction is common in serious illnesses. Therefore, they do not question a root physical cause. Unlike, a lot of conventional Drs. I hope that the links below explain more.

Please bare in mind that the testing system for b12, magnesium and autoimmune diseases etc is far from perfect. No doubt that's why labels like fibro and M.E/CFS have emerged....

EDIT by admin: links removed contact by pm if interested.

Ps if you're interested please see the Scottish thyroid petition on YouTube as well by Lorraine cleaver.

[desquinn Partner Volunteer FMAUK Trustee in reply to Hidden]

I would have tp disagree with your appraisal of doctors currently. There are plenty requiring education but the standard of care and education has increased and continues to.

I have removed the links to Dr myhill bt people can pm you for them. However, it concerns me the linking to a dr that has been censured by the GMC.

[Hidden in reply to desquinn]

I think you may have misunderstood. Some Drs do believe that people with these conditions are suffering (physically not just mentally). However, many specialists and Drs don't regard symptoms as a diagnosis. I just discussed this in 2015 with two specialists and more recently with one in hospital. No change. I have friends and family in the medical profession too.

Of course you are within your rights to remove Dr myhills links. However, this is the only Dr that has helped me and actually in my opinion saved my life. Functional Drs are always discredited because they prefer vitamins and minerals to drugs. Dr myhill doesn't give these likely.

I'm personally wary of the GMC: theguardian.com/society/200...

desquinn

[desquinn Partner Volunteer FMAUK Trustee in reply to Hidden]

I am just commenting that if the GMC has censured her twice then there is something wrong there. I am not trying to discredit functional doctors but I would also not discredit the medical profession so easily either.

In my position with the charity I see clinical trials, interact with medical professionals and can only attest to the improvement in the general state of affairs but much work is still to be done.

You can be wary of the GMC but they are their to protect people.

Ignoring recommended good practice is not good. Doing things without clinical good practice or trials evidence is irresponsible.

[Hidden in reply to desquinn]

I understand. I just have posted my own experience and info to help others. It does genuinely hurt to see her discredited by the GMC. However, the GMCs reputation has been called into question.....

theguardian.com/society/200....

Hence, why I personally disregarded what they did in the past to Dr myhill. They reinstated her anyway. She was giving patients improvement.

[desquinn Partner Volunteer FMAUK Trustee in reply to Hidden]

sorry Hidden but your defence is to attack the regulator. They have made many good judgements during their tenure that have helped protect people.

[Hidden in reply to desquinn]

Attacking? Hardly! I posted an article that raises concerns on the regulator. Is this a problem? Im defending my dr. I am happy to leave as freedom of speech should be allowed. Even if the regulator doesn't agree. You are telling me my Dr is basically dangerous because a body thats has been accused of being untrustworthy used to have restrictions on her....

[desquinn Partner Volunteer FMAUK Trustee in reply to Hidden]

I have snot stopped you from speaking but you have attacked the GMC's impartiality and ability to do their job. I have not said she is dangerous but I will be guided by the GMC's findings so will have concerns and will share these with the rest of the forum.

[Hidden in reply to desquinn]

I understand if you want to follow them. Its up to the individual.

I raised concerns thats all. It's out in the public arena anyway. Thats why i posted the article. Its nothing new.

I'm glad that your not suggesting that. She has never been accused of harming a patient. However, she has treated patients based on symptoms not bloods. For this she was criticised.

However,if I had been treated on the symptoms of pernicious anaemia sooner (not just going by bloods)and not given the M.E and fibro label I wouldn't be in a wheelchair...

[desquinn Partner Volunteer FMAUK Trustee in reply to Hidden]

Its not my opinion as an individual that I am expressing but as a representative of FMA UK. And as a charity we account for the 90% of people for example and this means the clinical studies and evidence based approach.

People can decide their own treatment and have to accept the positive or negative effects of that choice.

But I will always advocate for people to follow the science backed approaches.

[Hidden in reply to desquinn]

That's fine. I agree. Absolutely.

I'm certainly not telling anyone that they must do what I did. Its their decision. Just sharing my experience because I wish someone had educated me about this yrs ago. The outcome would have been very different.

[Hidden in reply to desquinn]

I understand people will be wary of Drs that treat on symptoms not bloods. However, no blood test is 100% accurate and if you pass then you will be left to suffer. The b12 guidelines have actually been changed in her favour.

As I said though. She doesn't prescribe drugs likely.

[Midori]

Sounds to me as if he's covering his backside! What he believes doesn't matter. My childhood GP didn't believe in allergies until I had an Anapylactic reaction during an investigation in hospital.

[robpw]

Ask to change doctor - and when they ask why you don’t believe he exists

[Littlemole43 in reply to robpw]

Love it. Xx

[Yvonne42]

What a twerp - it's in his books. I had an issue where some bone in my jaw had osteomyelitis but reason couldn't be found. Eventually I paid to get a second opinion and he ordered a ct scan to check the rest of my jaw and he kindly did whole body which confirm OA in 10 joints.

I showed the results letter to my surgeon and he wasn't interested, I'll decide where and whether you have arthritis! One can but try.

Sending virtual choc cake - no Vals or carbs so help yourself xxx

[JacquiRo]

Oh what is the matter with some drs!!!

Go see another dr in your practice... I did and I tell you they are S**t hot now sorting things out right.

Don't stay with a gp that doesn't believe in consultants that are specialised and a gp is only general! Pfft

Healing thoughts x

[Littlemole43 in reply to JacquiRo]

Very true and you are so right . I changed doctors when I moved in January only because my previous doctor was retiring. I could have stayed with the same surgery I wish I had . X

[JacquiRo]

Change back! I would x