Functioning - only just!

[mcglada0]

Hi and I hope everyone has had a good a weekend as possible. Mine’s been a bit of a struggle. I’ve managed to keep going but only just. The pain and fatigue is sooo debilitating. It’s sucks the enjoyment out of everything. I smile and act naturally then cry when I get home. I’m worried that the tramacet are making me feel bad but my pain doctor has told me I’m on a low dose and to keep taking them day and evenings. I feel dull all the time and look forward every day to getting my pjs on and resting during the evening.

Can fibro get any better ? I would love to hear from people who have been where I am and have managed to build up to a better life style. Thanks for reading this. I’m just having a bit of a downer this weekend.

[DanielleGemma]

So sorry you are having such a hard time hun! For me I feel like I have learned to manage better and I can still go out and see my friends and family sometimes and do the things that I love! If you are concerned about your tablets you should ask about moving them; just because it's a low dose doesn't mean that it won't have a negative effect on you hun! Xxxx

[mcglada0 in reply to DanielleGemma]

Thank you for your reply. I also try to go out with friends and see family. Keeping going all week seems to just make me so wiped and really in pain by weekend. I don’t do half what I used to do ( trying to pace ) . I just can’t so a lot any more and seem to be continually having to call off because I’m just too fatigued. Anyway, sure it will pass and I’ll feel a bit better soon. I think I will see go to discuss my meds. They could be making me worse. Glad you are back on forum and managing to make positive steps in your life. Xx

[DanielleGemma in reply to mcglada0]

Awwww I’m so sorry to hear how hard it is for you at the moment hun ♥️ always here if you need to chat! Xxx

[mcglada0 in reply to DanielleGemma]

Thanks. You’re always so caring and kind. Xx

[DanielleGemma in reply to mcglada0]

I do try! You guys are always helping me and just want to return the favour xxx

[mcglada0]

Thanks fir your advice. Setting my alarm much earlier than I have to get up is a good idea. Will give it a try. Have plenty to do. It’s just finding the energy to do it especially with the constant pain. You’re right, I need to find time to rest. Not always easy. Then the crash comes! I appreciate you answering and hope you have a good day. X

[mcglada0]

Yes I really feel that I need a course or some advice on how to manage all the horrible symptoms that come with fibro. On a more positive note, I have had a better day. Spent it looking after my little granddaughter and wasn’t in too much pain or too fatigued. Another quite busy day tomorrow. Will dybto find a bit of rest time. It’s hard . When I write this down I understand why I crash. It just seems to be so frequent now. Anyway, thank you for your support and I really hope that you have had a good day. Xx

[mcglada0]

Thanks for all your positive advice. Glad you have a little ray of sunshine to give you pleasure too. X