Fibromyalgia Action UK
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Functioning - only just!

Hi and I hope everyone has had a good a weekend as possible. Mine’s been a bit of a struggle. I’ve managed to keep going but only just. The pain and fatigue is sooo debilitating. It’s sucks the enjoyment out of everything. I smile and act naturally then cry when I get home. I’m worried that the tramacet are making me feel bad but my pain doctor has told me I’m on a low dose and to keep taking them day and evenings. I feel dull all the time and look forward every day to getting my pjs on and resting during the evening.

Can fibro get any better ? I would love to hear from people who have been where I am and have managed to build up to a better life style. Thanks for reading this. I’m just having a bit of a downer this weekend.

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So sorry you are having such a hard time hun! For me I feel like I have learned to manage better and I can still go out and see my friends and family sometimes and do the things that I love! If you are concerned about your tablets you should ask about moving them; just because it's a low dose doesn't mean that it won't have a negative effect on you hun! Xxxx

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Thank you for your reply. I also try to go out with friends and see family. Keeping going all week seems to just make me so wiped and really in pain by weekend. I don’t do half what I used to do ( trying to pace ) . I just can’t so a lot any more and seem to be continually having to call off because I’m just too fatigued. Anyway, sure it will pass and I’ll feel a bit better soon. I think I will see go to discuss my meds. They could be making me worse. Glad you are back on forum and managing to make positive steps in your life. Xx

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Awwww I’m so sorry to hear how hard it is for you at the moment hun ♥️ always here if you need to chat! Xxx

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Thanks. You’re always so caring and kind. Xx

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I do try! You guys are always helping me and just want to return the favour xxx

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Hi it is a pattern.try keep mind occupied.its hard with fatuige etc.it should come and go if you can try work on it .Try get up same time every morning.say set alarm at 7.give yourself a couple hourS to function.then get up .have rest in day go to get same time you might improve sleep.if your no keen on medication .you can ask for something else see how it goes.you got the right pain killers.trying to find something to do

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Thanks fir your advice. Setting my alarm much earlier than I have to get up is a good idea. Will give it a try. Have plenty to do. It’s just finding the energy to do it especially with the constant pain. You’re right, I need to find time to rest. Not always easy. Then the crash comes! I appreciate you answering and hope you have a good day. X

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You to .we all over do it and suffer.its do di g the balance.i struggle to function in morning .that's how I have 2 hour rest .7 then up at 9 .everyone got things that work for them.there is courses usually through surgery .it helps you understand all the symptoms and vicious circle and how to deal with them.like pain.sleep.fatiuge.anxiety. stress mood.behaviour. eating. all those things .An idea for you .have a good cold day x

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Yes I really feel that I need a course or some advice on how to manage all the horrible symptoms that come with fibro. On a more positive note, I have had a better day. Spent it looking after my little granddaughter and wasn’t in too much pain or too fatigued. Another quite busy day tomorrow. Will dybto find a bit of rest time. It’s hard . When I write this down I understand why I crash. It just seems to be so frequent now. Anyway, thank you for your support and I really hope that you have had a good day. Xx

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I no bad day .im similar to you when ive grand daughter everything goes out window worth it.if there is courses through gp physiotherapy etc .think you would benefit .glad you had good day

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Thanks for all your positive advice. Glad you have a little ray of sunshine to give you pleasure too. X

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I it helps

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