ive just lost 4 days of my life!!!!!!!!! - Fibromyalgia Acti...

Fibromyalgia Action UK

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ive just lost 4 days of my life!!!!!!!!!

elsiegirl profile image
11 Replies

hi all,

just wondered if any of you lovely people have lost days?

its like a switch flicked inside me on monday evening send pain everywhere, headache, backache with pains shooting down my arms & legs, i have just slept off & on since monday

bit zombiefied really! this does happen to me often its like my body has decided to shut down! but usually only for a day or 2, but im still in bed in pain, but do feel better

does this happen to anyone else out there please???

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elsiegirl profile image
elsiegirl
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11 Replies

Yes this is quite common, certainly for me. I can have a migraine over the weekend, this makes my Fibro symptoms go through the roof and before I know it, it's Thursday! Two days walking around in a fog in and out of bed afterwards, then a day pottering about and bingo the week is over!

I am sure this is very common with other Fibro sufferers. We have so many conflicting symptoms and other conditions, it all gets a bit mind boggling sometimes doesn't it.

I am pleased you feel a bit better, make sure you get enough rest and I hope you feel much better really soon, take care. :)

elsiegirl profile image
elsiegirl in reply to

aww thank you libby xx <3

Bless you Elsiegirl! There aren't many symptoms that can't be related to in our forum! I have lost so many days over the last four years, I am sure if I added them all up it would be months lol! Take care! :)

Hilly profile image
Hilly

I did exactly the same last wk, I lost 2 days, I was in and out of a 'coma' like state in bed. Hugs. Hilly xx

Oh poor you Hilly, I can so relate to that too! I hope you manage to have a comfortable weekend, take care. :)

elsiegirl profile image
elsiegirl

thanks for adding a comment hilly & you libbyde

yes ive lost 2 days quite alot but this time it was 4.5 days!!

the thing is i havent been diagnosed with fb ive been diagnosed with chronic pain syndrome

which seems to be the same thing, do you both agree? xx

motzie profile image
motzie

It also happens to me, with having fibro, me & cfs i think they get together & decide to hit the " switch" and i end up 3-4 days later wondering where the days went.

I will need to get a timmer built into my body...don't like power cuts lol..

Hope you are feeling better, take care, Mary x.

netta62 profile image
netta62

Yes Ioose days, sometime weeks especially in the winter.....it is very frustrating.....it's like wasted time and life for me, and life is to short to waste, so I make the most of ok days...as I haven't had a good day for years now....I lost 2 days this week, which is about average for me. I hope you are feeling better soon

aura2 profile image
aura2

I find your replys to Elsiegirl so comforting I thought I was the only one who lost days .. I often wondered if I overreacted to how I was feeling .. Now I know it is ok .. Thanks folks

DEstiletto profile image
DEstiletto

Hi I'm Barbara, a sufferer for 18 years. Although I'm 8 years past the menopause, I still get pms and my fibro and CFS is always worse at the end of the month when I would be coming up to a period. Therefore I wonder if our hormones affect the FM. Yes I've lost several days at a time, when the normal meds dont seem as effective and the brain fog wont go away and the pain is worse.

sal08page profile image
sal08page

hi im new to the site, but ive had fibro and M.E for ten years. I too have lost many days, i get so excited when i get a better day, as i don't get them very often.

Here i am writing at 4am, yet another one of my fibro symptoms, insomnia. I'll be like a zombie when its daylight.. But yes, back to the subject, i lose many days to fibro pain and fog, there aint a time i can remember seeing out a full week without the fibro kicking in..

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