Confused to say the least

[vonni17]

Hi all I'm not sure if this is the rite place to be posting this but I'm hoping to get some opinions

I have asthma, loin pain hematura syndrome, degenerative spine disease with five bulging disc no compromising to nerves was told will get worse! Carpel tunnel and dequenervains tenotivitis and TMJ

I have recently been diagnosed with fibromyalgia

The muskoloteal doc has advised surgery on hands physio and neuropathic pain relievers

Also states I have v b I symptoms

Vertebrobasilar insufficiency (VBI) or vertebral-basilar ischemia, also called beauty parlour syndrome (BPS), is a temporary set of symptoms due to decreased blood flow (ischemia) in the posterior circulation of the brain.

Vertebrobasilar insufficiency - ...

I am 37 years old I have to wear hand splints throughout the day and hearing aids

Mouth guard and right hand splint through the night I hurt everywhere most days yet still push myself to work now a lot of health professionals are saying my job is exacerbating my symptoms too

I don't no what to do

Any opinions would be appreciated

🙄 and I missed out migraines and I b s symptoms

[notmebutme]

Hi Vonnie, oh my goodness you do have a lot going on! And you still work?! Wowsers!

I would agree with your health professionals and say yes, working probably is exacerbating your symptoms. But I'm guessing it's not as simple as saying oh well I'll just quit my job then.

I imagine you enjoy your job otherwise you wouldn't be pushing yourself to do it - could you maybe reduce your hours? Or is it a physical job, in which case could you have adaptions in your workplace or reduce the physicality of it? If finances aren't an issue how would you feel not working? Would you possibly end up isolated and/or lonely and/or bored?

There's probably lots of questions you need to ask yourself but my addled brain can't come up with any more. Besides I think is a decision only you can make. Good luck

[vonni17 in reply to notmebutme]

Thank you it is more a case of finances why I do the job it is very physical and there is not much adaptation in my environment

If I wasn't to work I would further my qualifications in my previous employment to get back there with lots of breaks and holidays plus I love working with and supporting people not stood at a machine for hrs 7 20 minutes a day with two measy 20 minutes breaks in 8 hours 😩 X

[notmebutme in reply to vonni17]

Sounds very much like you would prefer to be doing the other job and it sounds as though it would be better for your health. So the only issue really is finance I guess.

As I have no idea what qualifications you need ... would you need to stop your current job to train/study? Could you do it alongside with distance learning like the OU for example?

[vonni17 in reply to notmebutme]

Hi notmebutme it would have to evolve 16 hrs a week placement work and also the study 📖 time etc I work 2-10 Monday to Friday I'm exhausted all the time doing this so think I would completely burn out if I was to try and do both

My kidney pain is flaring up at present so if carries on il be taking lots of strong pain relief to get me through the day tomorrow

Thank you for your time it's great to be able to speak to others x

[vonni17 in reply to notmebutme]

I could try and see about reduced hours at work once I have a complete final picture on what would benefit my health

[notmebutme in reply to vonni17]

I think that would be a good idea - at least you won't be running yourself ragged with less hours.

[Jan101]

Hi sweetie you really have a lot going on my heart ❤️ truly goes out to you. It's sad 😭 to hear that you are not able to continue with the work that you much prefer doing. Sounds really tuff doing the job you are doing at the moment but unfortunately we have to do what is put our way. I really feel for you please try and take things as easy as you possibly can as you really have a lot going on with your health. Sending you lots off {{{{{ warm hugs}}}}}🤗🤗🤗🌹🌹🌹xxxx

[vonni17 in reply to Jan101]

Hi thank you so much I'm taking each day by day in with my g p end of month to discuss everything I am worried if I stop it will get a grip of me and win I told a physiological assessor that I won't let this control me (her assessment said sno phsycological cause ) put my mind at ease to hear it's not in my head 😂 She said I'm strong just to be getting through each day

I am considering anotjob after Christmas 🎄 just need to make sure the boy has a good Christmas

Lots of gentle hugs 🤗 too you too

[Jan101 in reply to vonni17]

You sound like a strong lady and I am sure that you won't let it win. Just carry on taking a day at a time and after Christmas see what suits you and go for that. In the mean time take good care of yourself hun. 🤗🤗🤗🌹🌹🌹xxx

[vonni17 in reply to Jan101]

Hi Jan 101

I'm at my doctors this morning was more of a debate appointment about my health and plans for going forward but unfortunately my kidney pain decided to rear its ugly head im thinking this will take priority it gets that bad it takes my breath 😩 I can't carry on like this except no one seems to no how to help just passing me around from one consultant to another hopefully il get some where today but then again pigs 🐷 might fly too

Thank you x

[Jan101 in reply to vonni17]

Morning sweetie no you definitely can’t carry on like that. When you speak to your gp be strong and stand up for yourself and tell them you need answers and not another prescription put in your hand without answers. Got my fingers crossed 🤞 for you sweetie. Let us know how you get on. 🤗🤗🤗🌹🌹🌹xxx

[vonni17 in reply to Jan101]

Hi thank you Jan 101 I will do I'm fed up of going to see health care professionals now as I don't seem to get any were but this one I went once with neck and back and I was referred and seen pretty quickly and know have results to MRI scan which shows multilevel degenerative spine disease and five bulging disc neck and back associated also recommendedhand surgery but as nerve testing normal is it the rite route to push for ????? I don't no xx

[Jan101 in reply to vonni17]

Hi sweetie I am not really sure either. You really need too speak with someone who understands more about your condition. My heart truly goes out to you. Take good care sweetie got my fingers crossed 🤞 for you. 🤗🤗🤗🌹🌹🌹xxx

[vonni17 in reply to Jan101]

Hi Jan 101 biggest waste of my time and energy ever until every thing else is or isn't diagnosed he will be leaving the care in my multi consultant hands no time empathyor s**t excuse the languagebut I'm pretty fed up of it all know feel like I'm going insane 😩 X

[vonni17 in reply to vonni17]

And to add to it all the fatigue has hit me like a bus recently

[Jan101 in reply to vonni17]

Hi sweetie I truly simplifie with you. It seems to me that you could do with a really good doctor 👨‍⚕️ to listen to you and give you some really good care. You can actually speak to different doctors and see what one you think that will be good for you.

However sweetie don’t give up I didn’t and I truly have some good doctors around me. Go back and start by saying I want a good doctor that will listen to me and understand what I need to try and get well again. I am here for you and I truly know how you are feeling sweetie. Sending you lots off warm hugs 🤗🤗🤗🤗🌹🌹🌹xxx

[vonni17]

Hi all I'm back again another health problem I've had in and off is vomiting it gets really bad also chest pain it's the vomiting that is the bigger problem as I feel like I can't breathe and reduce my food intake it's gone on for months before with. I known cause found and I'm starting to feel like it's back again 😩 But know they are as bad as each other!!!! I' was rushed to hospital by ambulance recently with chest pains but even after two abnormalities found on ambulances ecg one more in hospital (pain gone again at this point tho) I'm presuming was normal I was transferred to another part of hospital then discharged with no follow up so you can kind of understand why I'm not running to the doc all the time

I've previously had cameras up and down all of which was normal x