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Fibromyalgia Action UK
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Annoying eyes-new problem

Hi everyone,

I’m having horrible, gritty, v tired eyes and wondering is this a common fibro thing?

My doctor has asked me to go to Optitions first which I have planned for next week.

In the meantime what do fellow eye sufferers do to help? I hate the fact that they feel too tired to read as it’s my way of relaxing!

22 Replies
oldestnewest

It's dry eyes that uv got. U can get eyedrops from any chemist or boots or Superdrug etc. Ive been using eye drops and clinitas eye gel for 27 years now for dry eyes.

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I use eye drops. Thought I'd got sjogrens but haven't.

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Might be Dry Eye. If Optician diagnoses this he/she will send you back to GP for prescription! I have Carbomer Eye Gel drops. Haven't needed it just lately though.

For now you could try bathing them with a little bicarbonate of soda in warm water. Quater of teaspoon in mug. Boil water and leave to cool. Gently bathe.

X🐥

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I get the same thing.Gp gave me a gel eye drops to use.

But also do get your eyes tested as the muscles in my right eye ain't working how they should,so now have to wear glasses.

opticians also said it's fibro related.

Have you tried a warm flannel on your eyes,it may help.

Xx

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Yes dry gritty Misty eyes.

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Thanks all, hubby has gone to get me some eye drops while I chill with warm flannel. Hope I can get back to my reading soon

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Hi Jaxxf, I have been having problems for around 18 months, worst discomfort for me has been opening my eyes after sleep (feel like the onside of my eyelids are ripping), anyhow tried numerous eye drops for dryness feom chemist but more recently my optitian has recommended Hycosan Extra eye drops can use as often as required through the day and Hycosan night ointment at bedtime, so far some relief. Hope this helps x

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Hi there Jaqs2017.

The weak bicarbonate of soda solution was what my Mum's specialist in St Paul's Eye Hospital told her to use for recurrent conjunctivitis. I also used it for Blepharitis once.

Don't know if you've ever tried it. Would imagine if eyelids ever stuck together again , then might be helpful?

Xxx🐥

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Will give it a try Mary-intussuception, my eye lids don't stick together,rather it feels like the inner of my upper eye lid sticks to my eye ball and then when I first open my eyes I get the ripping sensation, fortunately the ointment appears to be helping a little so fingers crossed, just another of those invisible fibro quirks we have to endure. Wishing you all a wonderful, peaceful and pain free (as possible) weekend xx

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Oh Jaqs ! That sounds painful. It's good to know your ointment is helping.

Peaceful weekend to you too xx

🐥

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Will look for them thanks

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Your optician can refer you to an eye clinic. Ask for that rather than the GP.

I was diagnosed with Blepharitis at an eye clinic in 2008, told it was related to the rosecea on my face.

Regular optician's appointment in 2014, he saw a problem, thought it was keratitis and referred me to hospital. 4 separate eye problems were diagnosed, none serious or sight threatening, but painful and annoying.

Took a while to get "comfortable eyes" again but got there.

Drs at the eye clinics are specialists, your GP will probably just prescribe artificial tears. Ask for a hospital referral.

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Thank you, we do have a very good eye clinic in Sunderland, I’ll discuss that with the Optitions x

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I have this problem but I have sjorgrens- dry eyes, no nose secretions, no ear wax and very dry flakey skin- I use a gel called DOUBLEBASE ( not diprobase or diprosone) its oily I use it on uper and lower eyes lids, on the tip of a cotton bud and whirl it inside my nose and ears, and after a shower all over,, it does moisturise again - no harm going to the optician eyes are precious.. I havnt been told it related to fibro by my rheumo doc.

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Hi,I too suffer with sjorgrens syndrome .it comes and goes on a daily basis.i use hyloforte eye drops when ever needed and as often as needed.it can be so bad I just have to close my eyes to get relief. My mouth gets rerribly dry,I drink gallons of water but get little relief.i tried false saliva spray,it was disqusting! I also sucks sugar free mints,which probably doesn't help the fibro but my mouth gets so dry I can't talk,horrible.

I would ask rheumatologist to test for sjorgrens ,or ophthalmologist.best of luck.

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Beakybird58 for your mouth- I buy sensodyn pronamel mouthwash-not the cheapest but it contains hydrogentated castor oil which is wonderful for keeping moist- Boots make their own brand too.. I also chew gum from M&S coz its got no laxative in and its very soft to chew.

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Sorry,I replies under Mdaisys post! Thanks for helpful advive

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I get tired/gritty painful eyes at night and use Gel Tears .... I haven't got Sjorgens but can be a common primary condition with Fibro secondary to it I believe.

So it might be worth keeping it in mind should other symptoms come up that are similar to the condition .... Hope you find something that works for you :)

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Thankyou, that's very useful to know.i shall head out to boots tomorrow and get some.drinking all this water may be good for kidneys but plays havoc with already disturbed sleep as getting up several times a night for a pee!

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Well drops are helping quite a bit, Optitions appointment Monday-now to sort out the IBS 🙈🙈🙈

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Thanks for all your comments-had a detailed eye check today and eyes are healthy, it’s just as you all said-dry 👀

Optitions said I also don’t blink enough & explained why this is problematic. He gave me some drops called Hypromellose (£2.00) and said slightly thicker drops are better for dry eyes. He also said increase fluid intake too

Thanks all for discussing your issues and guiding me x

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I have been diagnosed with three eye conditions and the doctors will disagree which are or are not due to fibromyalgia. I stick to a strict regime of eye drops and ointment as prescribed but I have learned to get optometrist to check and confirm each flare.

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