Need a new Dr.?: I'm having Dr. patient... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Need a new Dr.?

emilie82 profile image
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I'm having Dr. patient relationship problems. I have been diagnoses with Small fiber polyneuropathy without Autonomic neuro. 2nd Fibromyalgia . I also have DDD in my lumbar. I'm 35 with 3 kids and have become unable to work. My last visit with my primary left me confused, anxieties, and mad. I had told him about my last LOCK UP, muscle contraction that leads to me not able to use what ever part of my body that is being effected that round. This time it was my left hip and whole leg. This happens off and on. He stared me down and repeatedly asked "why couldn't you move your leg" about 7 or 9 times, the whole time staring with a strange dare to his eyes. I explained I didn't understand what he was trying to get at and he said " I just feel this whole thing is psychosomatic, you don't become paralyzed and then with some Toradol and muscle relaxers have it go away" I explained it took almost a week of rest in bed with my husband having to help me to the bathroom, additional ketorolac and muscle relaxers, ice and hot bath to get it back down. I'm tiered of feeling like a nuisance to my GP, I'm tiered of him always trying to disprove me or belittling, downplaying what I battle every day. My neurologist is better at understanding my pain, difficulty and anxiety. Should I find a new primary, my current one is just a prescription refill for me. Does any one have a preference which a type of Dr. that understands our conditions better.

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emilie82
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2Harper7 profile image
2Harper7

Hi doll. A knowledable, supportive doctor is so crucial for the treatment of fibro, and other "invisible illnesses". I was having such a rough time with my previous surgery regarding treatment, including that one nurse who thought that fibro was contagious.

I have just changed surgeries and have my first appointment tomorrow, specifically because I have heard that the doctor I am going to see is very good at treating fibromyalgia and takes an interest in it, which you really need with this illness. I live in Scotland and there are no fibromyalgia specialists over here, so really it's down to doctors who take the time to learn more about it.

My previous GP didn't really know how to treat me. It took me ages to get an appointment with any doctor, just to go in there and have my symptoms dismissed, ending in me being given painkillers that I have already tried and don't work for me. They didn't understand how Naproxen wasn't working for me. The only thing that I've been given from them that sort of helps since then is 30/500 cocodamol, which I just reorder from boots when the time comes.

Have you seen other doctors in your practice? Your current doctor really doesn't sound very sympathetic to your symptoms. Have you tried making an appointment with another doctor to see if they are hopefully more understanding? If you have and they are no use either, maybe a change in surgery is in order. I tried every doctor in my practice and none of them knew anything about how to treat fibro. It took me suggesting it to them and waiting a year for a referall after they said that they had already sent it for me to finally be diagnosed (I know that's quite quick in terms of fibro, but still they shouldn't have said that they did).

I only met one person in the practice who actually sort of cared, which was a nurse. I know nurses put in a lot of time and effort to their job but for fibro I think it's best to have an equally supportive doctor.

All the best of luck honey and many apologies for rambling on it's been a long day haha and my pain pills are making me loopy. I hope that you finally find a good gp who understands your medical condition, or at the very least one who knows how to treat complex pain conditions. Massive hugs my sweet xx

Neonking profile image
Neonking

Consider going to a private gp?

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