Ahh!!: Hi I believe I'm suffering from... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Ahh!!

Kevington88 profile image
7 Replies

Hi I believe I'm suffering from fibromyalgia and have seen several doctors but all I get from them is you don't want to be diagnosed with that or the pain and fog that I'm getting is normal! I just want one doctor to actually be helpful!

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Kevington88 profile image
Kevington88
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7 Replies
DanielleGemma profile image
DanielleGemma

Hey,

I completely know that feeling, it took me three years, two exploratory operations, 5 MRI, loads of X-rays, blood tests and physicals before they diagnosed me with fibro! I understand that you just want answers and it is so frustrating!! Have you tried seeing another doctor at the practice or moving surgeries? Xxxx

Kevington88 profile image
Kevington88 in reply to DanielleGemma

Hi I've spoken to three of the four doctors in the surgery.i have gotten to the point that I am thinking of changing practices now. My sister in law has fibrosis and she goes to this other practice.

DanielleGemma profile image
DanielleGemma in reply to Kevington88

I think that's going to be the best bet. I know it's really frustrating but sometimes a different point of view can help! Xxx

Hello Kevington88 Nurse Gladys Emanuel (still open all hours) can I ask you how old you are and if you have any other forms of arthritis?? Could you tell us some symptoms you are getting it will help many of us to tell you if its possible you have fibro.. How do you cope- are you still working? Thats enough for now, come back and stay with us lots of help on here..

Kevington88 profile image
Kevington88 in reply to

He!lo, I have dull pains in my knuckles. Shoulders, neck .armpits and the pain goes down my arms. Pain in both knees plus legs. I also get sharp pains which can happen anytime and it hurts! I'm not sleeping well and I feel drained absolutely knackered. I talk to my partner believing I've said something and she says I said something different yet I swear I said what I said! Some days I get up and feel fine yet I soon go down hill! Job wise I've just handed my notice in at work as I can't manage full time. Due to getting chest pain with this my doctor has treated me for angina.

LayLayM profile image
LayLayM

Hi there I know the feeling as I think a lot (if not most) have gone through this with dismissive doctors. I ended up completely changing surgeries and now I have a fantastic gp who actually spent so much time and put in so much effort to diagnose me and was sympathetic to my symptoms. My previous gp was sitting on top of my rheumatology referall for months without even sending it. They kept saying that it had been done but it hadn't. When I asked when it would be sent, their response was that the gp was busy and that he'll 'get to it'.

Before that I saw a neurologist to rule out a more serious illness. Had a CT scan near the start of the year, so he said that there was 'No need' for an MRI, which made me furious. They are different. An MRI is much more detailed. He then mentioned fibro, but was quite unsympathetic about it and didn't try to diagnose it either, saying that it was a shame, but nothing you can do about it. Makes me angry even just typing this lol.

Anyway, sorry for rambling, but I would advise switching surgeries. You really need a good gp on your side if it is fibro, because a lot of them either don't know enough about it to treat it, or they don't believe that it needs treatment. Which is nonsense! GL and I hope it all goes well for you - x

Kevington88 profile image
Kevington88 in reply to LayLayM

Thank you so much for listening and for your replies I will let everyone know how I get on

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