Ouch

[Lorsxxx]

Awfull day today I'm So tired and everything hurts so much! I had an active day on wens an find its not the day after I pay for it but the day after the day after if that makes sense does anyone else find that with fibro ?

[Lorsxxx]

Thnx it helps to know others feel the same x

[Lou1054]

You are absolutely spot on with the kind of delayed reaction, sums it up for me today, hope you recover well xxx

[Lorsxxx in reply to Lou1054]

All I did was a ten milk walk to Tesco get some shopping a cook a roast fr my son,how can that make me ache and feel knackers and drained !! Iv hardly done anything since then that was wens I hate this blidy illnessillness but TY for message hope ur feeling OK today :0) xx

[Lorsxxx]

That's good I like your fighting spirit :0) x

[Lorsxxx]

I'll keep plodding on I guess x

[Lorsxxx]

Thnx I may take you up on that @some point,although I don't know how to private pm ha ha x

[pinkgin64]

Sounds so familiar, it's the usual pattern for me too. I have also found that I tend to be a bit of a human barometer and get a flare before the weather changes. The most recent storm was felt a number of hours before it hit.

I have had to reduce the level and duration of activity in order to minimise the risk of a flare. It's so tempting to get lots of things done on a good day as good days are not a regular occurrence. The danger of this is the backlash of the flare two days later which can last for up to a week. I know it's difficult to pace appropriately, I used to be busy all the time and enjoyed being active but I have had to change my behaviour or my quality of life would be dire. I do miss going out as I used to but am happier with fewer flares. I can't remember the last time I went out at the weekend for drinks with friends, it must have been over a year ago and resulted in me being knocked off my feet with pain.

I hope your flare settles soon and that you have a peaceful nights sleep.

Gentle hugs,

Gin

[Lorsxxx in reply to pinkgin64]

Ah thnx yes I was always a doer before this I was a really active person mentally I find it So frustrating not being able to do so much I gets me down an I'm not very good at pacing myself ,as you say you do things on your good days it wipes you out,I will have to try harder to pace myself,tho I don't think I'll ever come to terms with how limited this illness makes me :0/ xx

[MariLiz]

Yes, I'm finding it very difficult to even move today, having been on my feet a lot on Thursday. It seems as though we get a delayed pain response. My back is going into spasm too. So sorry to hear you are having the same problems. Sending a gentle hug 🤗.

[Lorsxxx in reply to MariLiz]

Thank you sending you one right back x

[Hidden]

Hi lorsxxx, I'm sorry to hear you're not too well at the moment.

I find that its the fatigue that fĺoors me most. I can be working and playing with my grandchildren or meeting a friend for coffee over a few days then. When I wake up in the morning I feel my whole body ache and I can hardly move and the fatigue is so bad. I have my shower very slowly and go to my work. But when I get home I just sleep and do nothing. I have found that I have had to change how I live and slow down, but I now think positively about it. I have a different life but a good life with my family and few friends who understand my condition.

You take care

Angela x