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Fibromyalgia Action UK
41,416 members53,518 posts

I think I have fibromyalgia

Hi everyone,

So interesting to see all your posts. I have been to the doctors , they tested me for rheumatoid arthritis which thankfully I don't have. However I know I have something, a flare up day today and I'm floored, even the simplest tasks are so difficult. I'm on medication for arthritis and waiting for knee replacements. This pain in my body is terrible , I keep crying and that's not me.

So could you tell me how I get diagnosed. Thank you for listening and all the very best to you all😀x

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Your doctor should be givan you directions now,,go back and see your doctor ask ihim what do you do now he should be managing you and getting more refurrals for you good luck Suzey X

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Hi Linnie1960

Welcome to our lovely forum :)

If you would like to find out more information about Fibro have a look at our mother site fmauk.org

Unfortunately getting a definitive diagnosis of Fibromyalgia can take many years.

There are lots of other conditions that have the same symptoms, such as Lyme Disease, Lupus & MS. All of these conditions need to be ruled out before you can go any further.

You then need to ask your GP to refer you to see a Rheumatologist. They are the specialists in Fibro.

Good luck. I hope that you are able to get some answers.

Lu x

Administrator

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The rheumatologist will use tests and then everything else is excluded. Although the other rheumatologist thought I'd got sjogrens. Who knows?!

Good luck.

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Hi Linnie1960 I agree with BlueMermaid3 this can take time I do hope you get the support you need in the mean time.

Good luck my friend

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Thank you all so much. I will go back to the doctor, it's been the worst day. Struggled to get dress ed and couldn't hardly bear the clothes on me. Just awful. Hopefully better day tomorrow. I will let you know how I get on at the doctors😘x

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Hi Linnie, My name is Simon if it helps i have RA and have since gained fibro on top my advice for you is to get a second opinion on that as you may have something called palindromic RA which is random and not pain all the time. I have arm in brace because of RA having nerve problems and all sorts keep pushing if you get pain go to docs straight away and keep telling them your symptoms it took me over a year of pain till i did it i wish i did it sooner finally got a diagnoses of ra just waiting to confirm the Fibro

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Thank you Simon, these are things I've never heard of. I wont give up now, I've suffered in silence long enough. All the very best to you.

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Hi Linnie1960

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

It may help to ask your GP for a referral to Rheumatology as they diagnose most cases of Fibro.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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Your welcome x just keep pushing ok as it takes far to long anyway. Anything you can do do to speed up the process is a must ok. Best of luck to you another comfort is knowing your not alone in this try not to think its all in your head ! It is not it is real that was my mistake for many years x hope this helps you some what. X

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