Fibromyalgia Action UK

I HAVE FIBROMYALGIA

Hi guys. Ime a newby. Just joined this morning and have fibro.. not very funny at all is it, although my husband is very supportive, take a lot of medication for it as well. Mine was diagnosed in late 2011 so have had to live with it since then. I have fought pip for it cos couldn’t work, didn’t get anywhere so left me feeling very angry and upset. I now claim universal credits which helps. Please feel free to contact me.

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Welcome to the FMAUK Community Manda1973

I am sorry to hear you've been through so much, it is all so overwhelming and the stress can impact on any conditions we have, so I completely understand how you may be feeling at the moment. You should find the community a support network and for advice this should help you to deal with the ups and downs of living with Fibro. :)

As a newbie I have noticed your post is unlocked, you may wish to lock it so it is kept between this community only. Members often are reluctant to reply to unlocked posts and therefore locking it will generate more replies too. Here's the link which explains how to do this;

healthunlocked.com/fibromya...

I look forward to speaking with you around the community :)

All the best for 2018

Emma :)

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Hi Emma I have just changed my post so it is locked to the community of this group only.

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Thank You - Members usually prefer this and your post will likely generate more replies not it is locked. :)

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P.S Forgot to mention, do check out the FMAUK website fmauk.org which has a wealth of information about Fibromyalgia

:)

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Thanks for this web page @mdaisy! I’m going to check it out tonight

Also hello @manda1973 in-line this app everyone is friendly and helpful. I usually just have weird little rants but at least everyone has the understanding here and it means my husband doesn’t get it in the neck all the time 😂

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Your 'tagging' of members hasn't worked as they must go blue ...here's a link to help :)

support.healthunlocked.com/...

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PIP is proving very hard to get these days, are you going to appeal? There is help under "Topics" Work & benefits will give a question and answer senario to help if you do.. You got U.C credit then- well done there are so many who dont, remember the word"Credit" though.

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Welcome to the forum. It is horrible when you can't work as I was forced to give up a job I loved and it is as though a part of me was cut off. So sorry you were unsuccessful getting PIP it is a minefield n who gets it and who doesn't.x

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Evening welcome to the forum , I hope you find this a helpful place , sometimes just to share and read other people's experiences makes you feel better , I've found it so helpful and I've learnt so much , glad your husband is supportive I think that can make all the difference on a day to day basis ,best wishes look forward to your future posts x

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