Fibromyalgia Action UK

The beginning wishing it was the end

My name is Angela I am 50 years old I have had fibromyalgia for a year now but over the year it has worsened.i was just walking and broken my ankle.my fingers would not go up .and the pain is unbearable.i have see the specialist .and now he is saying that I have fibromyalgia and something else is going on with my joints.so I have just had a nuclear medicine test now I am waiting for the results.i also have LV stolic disfunction in my heart .they found two years ago . because no one was helping me GP ect I tried to take my own life twice because I am not living with this till I die .

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Angela222priest

Hello and welcome to our lovely forum.

There are lots of friendly lovely supportive people.

Please do take a look at our mother site

www.

fmauk.org

There is also some pinned posts on the home page.

It is good idea to lock your posts for Internet safety

It will stop social media and world wide web accessing your information.

Love and best wishes

Lesley

FMAUK

Admin volunteer

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Hui Angela222priest

Welcome to the forum and it is wonderful to make your acquaintance. I have read your post with so much pain and sorrow for what you have endured and how it is making you feel my friend.

Please do not be offended but I have pasted you the contact details of the Samaritans below. I have done this out of friendship and concern for a friend and fellow sufferer:

The Samaritans UK : Telephone: 116 123 (UK)

I would implore you to call them if you ever feel the need to talk to another human being about how you are feeling, they are there to help.

As my friend and colleague, Creativeness1 says, there are lots of friendly lovely supportive people on the forum who will be there for you, if and when, you need a friend.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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My heart goes out to you. I myself and many other sufferers on here have felt the same. Sometimes it's really hard to keep going. Have you been prescribed any form of antidepressants? Please don't let this awful condition win, seek help from your doctor x

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Oh dear,

Hi Angela. My name is Sharon. I am 58 and I live in the states. [Cape Cod Massachusetts]

Well...first, I am glad you found us. This disease is absolutely horrible and I guess the first thing I would like to address is your overwhelming sense of dread and desire for all of this to end.

Angela, I don't think there is any one of us on this forum that can honestly say we haven't wanted to make this go away, by any means. The sad truth is, this is your cross to bear and the answers lie within you. You are stronger than this disease. You do need a sympathetic Dr., one who knows how to treat a patients with fibromyalgia and [it sounds like] rheumatoid arthritis and depression. Your Dr. must have the ability to listen, to treat the disease as well as treat each symptom as it appears.

I would recommend an antidepressant to help with the low days and help regulate your sleep cycle. I would also recommend an opioid pain reliever, stay away from drugs that add to depression and feelings of suicide [research drugs on internet---I take my phone or tablet with me to Dr's appointments and research drug side effects BEFORE leaving his office with a new prescription.]

There is almost always someone awake on this forum at all hours. Many of us are night owls, many suffer from insomnia. There is usually someone here to talk to. I would recommend trying to find a buddy that will be available to help you through the tougher times.

I am sending gentle hugs to you and hoping today might be just a bit better than yesterday.

Love,

Sharon

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I sincerely hope Angela that you can find a doctor who will listen and understand....have you tried another Dr. or Practice? You say you have to see a Specialist...is this a Rheumatologist? Please remember we are here for you to talk to and understand your feelings. I know I have thought before "I don't want to be here" but I don't mean the alternative!! Once you get your meds sorted out (it can take a while to find ones that suit you) life will be better....not perfect but better....I wish you a better future, a more comfortable future and hope to hear from you again very soon....Sending gentle hugs xx

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I am so sorry to read of your pain and depression. This condition is enough to drive anyone to feel as you do and if you GP is not helpful this just makes things worse.

What meds are you on or have you tried?

Is there another GP you can see, or change surgeries? Have you been referred to physio?

Are you in work? If so Your employer should make reasonable adjustments to your workplace, such as special seating if you are sitting in your work.

A few practical tips re controlling the pain:

Electric Heat pads

Deep heat and Linnex heat stick, Linnex is available on the internet. It is very intense and should be used sparingly but is very effective. It is my lifesaver!

If you can afford it, osteopath, chiropractor, acupuncture can all be very helpful. Also massage which is a bit cheaper! Some people are too sensitive for massage though and find it can cause pain so be careful!

You can also buy some really good self massage tools, just search on the internet. I have a variety of tools including a back massager and a roller which is like a rolling pin! In fact you can use a rolling pin too to massage your legs. Also a finger massager which is excellent and spikey balls can also be helpful. It is a matter of trial and error.

Gentle stretches, if possible get some advice from a physio, osteopath or chiropractor.

Hydrotherapy

Pace yourself and do not overdo things.

I hope that some of these tips are helpful.

I pray that you will find some relief from your pain. I suspect if you can this will go a long way to helping the depression too.

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Have you been offered a Dexa scan to check your bone density after breaking your ankle? Do get your thyroid function tested, plus levels of B12, ferritin, folate and VitD. If these are low you will feel so much worse. I am so sorry to hear how low you are feeling. There are lots of us on here dealing with fibromyalgia and several other illnesses too. We all try to help and support each other to cope, and offer a sympathetic ear to those who need it.

Sending my very best wishes, and hopes that you will find the help you need.

MariLiz

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Hi Welcome

We are just here for you and your questions, rants and laughs.

The fact you wrote how you are a brave and capable person. Take heart it may not always seem like it everyday is a new day. Whatever your aches and pains try opening your front or back door or however you can get outside and take a shuffle outside. The sun or rain is still better than 4 walls all day.

Talk to people , the telephone , an invitation to someone to share a cuppa.

We all have not so good days especially if there are multiple issues to handle.

Just say to yourself today I am going to rule this lot of conditions it will no rule me!

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