In the beginning

[Linda3009]

Hi.

I've recently been diagnosed with fibromyalgia.

For the past four years, I've had episodes of muscle stiffness, extreme fatigue and dizziness.

Each episode lasted between 7 - 10 days, and they occurred at roughly 3 monthly intervals.

It now seems to me that the symptoms I had then are very similar to what I have now, although now the symptoms are ongoing.

I wondered if maybe the fibromyalgia has been coming for some time, and if anyone out there has had a similar experience.

[Hidden]

Hi

Yes I was getting symptoms long before diagnosis. Hoping you get some relief soon. Love and hugs Lynne xxxx

[Linda3009 in reply to Hidden]

Thanks for replying.

I never got to a doctor when it was happening previously, I could never get an appointment in time.

This time round, I was initially treated for GCA. By a process of elimination we've reached the diagnosis of fibromyalgia.

I'm waiting to get some hydrotherapy.

Hope you're managing to stay well.

Linda xxx

[Hidden in reply to Linda3009]

Hi

Hope the hydrotherapy works for you. I'm in pain 24/7 cos of many conditions. Got pain injections tomorrow morning. Love and hugs Lynne xxxx

[Lovemyfamily89]

Hi Linda3009,

Apart from the timings of your incidents being different to mine, your story is Very similar. I was diagnosed 4 weeks ago ( although symptoms have been around for a long long time) and apart from my husband, I haven’t told anyone yet, I just can’t get my head around it. I find I’m analysing every twinge- is it fybromyalgia or something else? Also, in a morning when I wake up ( that’s assuming I’ve managed to sleep!) for a split second I feel ok, then someone ‘flicks a switch’ and I feel an electric fence type tingling pain around my body. I’m not sure if this is fybromyalgia- do you get this?

[Linda3009 in reply to Lovemyfamily89]

Sorry to hear that you've been diagnosed with this mysterious horrid ailment.

I don't get any tingling, just a constant background feeling of having overdone it at the gym.

I hope you can come to terms with things, make sure you get help from physios, pain teams etc.

Good luck!

[Lovemyfamily89 in reply to Linda3009]

Thank you Linda3009,

I will, I am sure, and I hope you get yours under control soon x